Thanks Hikts and all, appreciate the advices and encouragement ! Feeling human again today and back to Business as Usual.

That's exactly what I've been having Hilts, sickness and nausea and being off food and fluids - which might be the root cause of it (not enough water flushing all the meds thru).

I don't have a JEJ, was on TPN IV feeds post op which came out day 5 and been flying solo since which is now maybe an issue as another way of getting fluids and nutrition in would be handy on the sicky feeling days !

Good to know it's a similar experience across the board and not just me - thanks all.

Hi

The waiting is awful, I'm sure when you find out what your actually dealing with things will feel slightly better.

My Husband 53 years old was diagnosed in July with squamous cell of the oesophagus,  has completed 2 cycles of chemo, and starting weekly chemo and radiotherapy in 2 weeks then surgery. It is a difficult road to travel, but one day at a time.

take care

t123

Hi Tracy.

Welcome to the oesophageal cancer club (: one you'd no doubt rather NOT be a member of ! 
This board seems to be gaining some fame or maybe infamy ! LOL. 

Seems that a lot of folk are directed here- which is great. All of us on here are but fellow travellers, not medics, just experts in the 'lived experience' , the biggest rollercoaster ride in town.

My husband, 56 yr at diagnosis 14 months ago. Adeno- stage T2, down to Tlb after major nuke and surgery. Now regarded as 'visable disease free' after 9 months of gruelling treatment. I am the onlooker, not the victim- plenty of us on here as well.

We all talk on here about the good, the bad and the downright ugly. All diagnosed at various stages, with various treatment plans. The shock, disbelief, the highs and low of treatment and the emotional storm that is compulsory.So spill as little or as much as you like. I tend to spew out everything that is in my head, a total chatterbox(: 

Chemo is no fun , but in it for the greater good. It is nuclear stuff, but does the job. Read back through the thread, you'll see the highs and lows we all have and still have.

Anyway- you are among people who 'get it' . Ask away. You have probably discovered that the internet is nothing but a horror show- I think we all have, particularly at the start .

Keep the faith

Hilts

Thanks Tracy. I think you're right. 

The verdict is in. T3 N0 M0. Strangely, this terrible news came as a relief. Which is crazy! The plan is in place for chemotherapy & surgery. It's moved incredibly fast to be honest.

There's 250 miles between where I live and parentals. I'm just back home after dropping everything the day after his diagnosis, to go up there. It seems a little ridiculous now but it made me feel much better. It sounds super cheesy but being able to help him choose a good waxed flat cap for when/if he loses his hair was poignant moment. 

I think I read on a post here, you have to except the diagnosis but the prognosis is negotiable (or words to that effect). I rather like that.

Thanks all for your kind words of guidance & understanding. 

L

Hi

Hilts

yes I did find out pretty quick that google is not a friend in this scenario.  You be dead before your first scan if you took any notice of it.  My Husband is T2, N2,  M0.  Never really heard much about this type of cancer and brill he was diagnosed. Can't believe how many people actually have it and the age of people, 

Its a harsh world 

tracy

Hi y'all

Tracy & Lizzie- night owls ;worry or box sets?? (:

Big hand clapping emojis for you both NO M's and as for N2 , well they will soon be smashed into oblivion (: 

So no spread for either of you. The vast majority on here are the same.

Being as common as the rest of us, the treatment plans will probably be similar FLOT chemo x4 , surgery, FLOT chemox4 .

Ours moved incredibly fast. From THAT endoscopy to starting chemo= 5 weeks and in that time all the scans etc and we went on holiday! What else do you do eh (:

Lizzie- it is really strange, but as I said, once you get the verdict in and know where you are going with treatment, I kinda gets a bit 'better' - the plan is some kind of route map. I don't know why it makes it better- but for me it did. The new cap will certainly come in handy! The hair will go, I was seriously in envy of husbands legs!! But it will come back before you know it. 
Tracy- yep, I thought we were rare breeds at diagnosis, but clearly we are as common as muck(: there are LOADS of us all similar ages and that is just on here. When husband had his chemo and op, he travelled through treatment with 4 other blokes, husband being the oldest at 56 !!!. They spent hours comparing and contrasting side effects, war wounds etc. They are still in touch now! Your staging is not terrible news, of course you'd rather not be in this position, BUT , that staging is actually quite good. It is amazing how bad news can also be good- if that makes sense ?

Both - You will have billions of questions- ask away, we are all on here 'experts in the lived experience' (: Read through our past posts to capture the 'highlights' of the last year or so.

Keep the faith

Hilts 

Hi y'all, 

Well the verdict is in . CT Scan on Wednesday. Call from MDT nurses. Scan been 1 reported, but needs another. NO SIGN of any reoccurrence. Nothing dodgy yaaay.

However ( always one eh) he has something called aspiration.  We kinda knew that was going on, but surgeon ringing on Monday to discuss what to do. It will involve a barium swallow to see what is going where, then plans going forward.  So good.

Anyone out there had this? I might post on a new board.

Anyhows  off now

keep the faith y 'all

Hilts 

Great news it's nothing dodgy Hilts !

Wish him well from us and enjoy the weekend now !!

Hey Hilts that sounds great news it's nothing dodgy!!   What a relief.   The aspiration thing sounds hopeful there is a solution for it at least a plan to do something about it.   Did you mention that the hay fever tablets(?) seem to help?   SallyX