Hi Milly. He has a video call with the oncologist on 14 Oct - next week.   Then a call with the surgeon in November.   He is still "crashing" after eating, but maybe slightly better at only eating tiny amounts which helps.    He has found he can eat small portions of cereals and also nuts so at least there are some things he can eat.   
sallyx

Hi Sally, 

The crash after eating- yep. Old dumping. What husband uses and finds them brilliant is the glucose tablets diabetics use. Oblong things in a long pack. Any pharmacy will do as a 'leading supermarket' beginning with S (:. About a £1 , so always on the bottom shelf, expensive same stuff further up(:

Husband found the chief perps were potatoes, rice, carbs generally, not Beer for some reason! and when he mega overeats with a lot of carbs, like curry rice & chips, which is frequent): he is learning though- albeit slowly! Wally (:

It has got better though as time has gone on. 
keep the faith

Hilts

Afternoon all, hope you're all OK and keeping trucking on.

Started Round 1 of post op FLOT on Wednesday and definitely felt it Friday, Saturday, Sunday and yesterday a bit more than pre op.

Wasn't much fun at all and like someone said to me, everything feels dialled up a notch - but thankfully feeling more human again today and getting back to normal.

Hilts. Milly, Sally ... how did your respectives find their post op FLOT - similar to pre or dialled up more too ?

Andi, hope you're doing OK the other side of the op - well done for getting through it.

Hi Redski, sorry to hear you're feeling a bit rough - stay strong as it's the last bit and the worse is over.

Lee

Thanks mate, really appreciate that !

Hi Redski.

i feel for you. It is like Groundhog Day, but this is the final straight. 3 more and you are DONE. After a year, no more (:

In answer to question- yes, absolutely, up notches I would say (:.  Sorry, I have a rep for being totally honest when asked something!! All the guys on the unit felt it too. But they all completed in some fashion. Rumour has it, that now the chemo has nothing left to murder, it causes havoc (: and of course your body has taken a pasting with surgery , mentally just about had enough etc. , but remember nearly finished!!! 
so 'get at 'em' Redski - we are with you

keep the faith

Hilts

Hi Redski,

Yes my husband found post op chemo effects lasted longer and were stronger (sounds like an add for loo roll lol). Seriously though it's not easy but doable for most people or they wouldn't be offering it to patients. 
Count down as Hilts says 3 more then done! My husband found warm baths helped with cramps and drank as much water as he could again. Stick with it - you will get there!

Sally I hope your husband's appointment with the Oncologist goes well and he is able to increase his food little by little. 

On a positive note we are enjoying being in the Lake District and my husband has had his first few beers (not all at once yet Hilts) since Christmas Day which was before treatment began!

Andi I was thinking of you today and hope you are making progress. 
Hilts any more updates on the cough?

Keeping the faith for everyone as always

Milly

Hi Redski, I feel for you.   My husband found the post op FLOT tough.   More difficult than the pre-op FLOT.   The neuropathy symptoms I think he found the worst thing of all, causing painful tingling especially in feet, hands, down centre of face, and internally too, compounded by the fatigue.  He kept as warm as possible, tried to keep going for walks a bit.    Rest, also, don't try to fight the fatigue, and rest some more.   Use your jej feed tube if you still have it for feeding and taking in water.    He managed to complete the 4 cycles of post op FLOT, but could not have done any more.   Your oncologist will be keeping an eye on you, so you will only be given as much as you can take.   Good luck Redski, we are all thinking of you.

SallyX

Hello lizzyp

I see you are a bit of a night owl - like me (: I've always been like it, but worry is probably helping you stay awake all night (:

Welcome to the 'famous' Oesophageal cancer club- one club you'd no doubt rather not be a member of! ( sorry, I think I'm funny). Here we all are, and as you can see there are a LOT of us x

All of us on here have received that dreaded news. I am not the victim, but my 56 yr old husband in July of last year.  He is done with treatment (I always say for now, tempting fate thing , rather than reality). He was given visable disease free status in about March, they never say cured, for at least 5 yrs - happy days eh! (:

Belive it or not, you are at the very worst part of the whole thing, once you know what you are dealing with  and what the treatment plan is, It gets slightly easier for some strange reason. My earliest posts were somewhat hysterical (: I had of course been reading the internet- what a horror show! Turns out to be nothing like the reality. I can't speak for the others one here, but I think I am fairly safe in saying that the old NHS has been unbelievably amazing. From day 1 it really was full steam ahead. Seriously, seriously good. Worldwide data is really problematic, most countries around the world don't have such good free healthcare as us, particularly across the pond, where if you can't afford it, well, the outcome is bad.

All of us on here have been diagnosed at various stage and on various treatment plans, so at least one of us will have the same as your Dad. Do keep coming back and letting us know what's what, now you that you've joined us on this rollercoaster (:

Sally & Milly - scan tomorrow. Cough still there, BUT you'll never guess what stops it in it's tracks (not that we experiment at all ) good old piriton. A seriously old antihistamine. The drowsy ones. Amazing. Clearly, it is due to some post nasal drip for whatever reason. Still driving me mad though grrr.

Millie- I bet that was the best beer he'd ever tasted. Recovery clearly progressing (: As for all at once - give him time, give him time. My incorrable rogue think and says it's 'therapeutic' , well he would wouldn't he (: LOL.

Redski- I forgot until Sally mentioned it about Jej tinkering. Husband shovelled loads down it ! When he felt really sick, off food and fluid- In went feed and about 2 pints of water a day- for some reason really help with nausea, by having something in his ( what's left of) stomach. Stops dehydration too.  It was not 'prescribed' but hey ho after all we've all been through, what was a little tinkering.

Anyway y'all. Long post, and time for bed.

Keeping the faith

Hiltsx