Hi Rayb

just been through this had FLOT april and may operation in june  its a long journey but stick witk it.

It may all sound a bit frightening at first i would recommend you read up on your treatment the FLOT is bearable and the operation is not really a worry although it is a major operation i will say that at no point in my journey have i really suffered any major pain and i am 90  percent recovered as of today if i can offer you any help or advice please contact me as it is always good to hear from someone who has been through this procedure recently , our NHS will take care of you by far the best care you can get ,trust me.

do you know what a plo is in an operation? 

would be grateful if you have any idea

sorry to hear about your diagnosis x

Hi all,

The appointment with the surgeon went well. He was very happy to see Kev and how much progress he has made. He said Kev had seen the very best and worst and everything inbetween! He looked at all his scars and battle wounds and was pleased with how they have healed. I must admit Kev is good at putting E45 on them all! He was pleased with him hitting the top of the spirometre and all the work he's done exercising both before and after the op. He has asked him if he would help with other patients preparing for the op but told him not to take his top off lol. 

So off to the Lakes on Friday and then scan on 20th followed by meeting with Consultant Oncologist a week later. Hopefully that will be good news too. 
 

Douglas interesting re reflexology and also info on Sinus rinse. 
 

Andi I hope you are continuing to make  progress.

keeping the faith

Milly

Hi Milly,

That's really good news to hear...time for a well earned break,  enjoy it.

Lee

Thanks Lee! I hope your dad is doing OK.

keeping the faith 

Milly

Hi Milly that's great news to hear!   Enjoy your holiday in the lakes, it sounds a lovely idea, you must be looking forward to it so much!  SallyX

Hi Hilts, good to hear from you, your reasoning about the food types and fluid intake types sounds good. Yes baked beans on toast definitely sounds claggy to me.   It sounds amazing the amount of food your husband can eat now tho, he is doing really well isn't he!   Good luck with the scan on 13th, SallyX

Hi Sally tanks for your good wishes and we are certainly looking forward to it. I Hope your husband is feeling a bit better. Have you had a follow up yet or a plan on following up? 
keeping the faith as always

Milly

Hi Milly. He has a video call with the oncologist on 14 Oct - next week.   Then a call with the surgeon in November.   He is still "crashing" after eating, but maybe slightly better at only eating tiny amounts which helps.    He has found he can eat small portions of cereals and also nuts so at least there are some things he can eat.   
sallyx

Hi Sally, 

The crash after eating- yep. Old dumping. What husband uses and finds them brilliant is the glucose tablets diabetics use. Oblong things in a long pack. Any pharmacy will do as a 'leading supermarket' beginning with S (:. About a £1 , so always on the bottom shelf, expensive same stuff further up(:

Husband found the chief perps were potatoes, rice, carbs generally, not Beer for some reason! and when he mega overeats with a lot of carbs, like curry rice & chips, which is frequent): he is learning though- albeit slowly! Wally (:

It has got better though as time has gone on. 
keep the faith

Hilts

Afternoon all, hope you're all OK and keeping trucking on.

Started Round 1 of post op FLOT on Wednesday and definitely felt it Friday, Saturday, Sunday and yesterday a bit more than pre op.

Wasn't much fun at all and like someone said to me, everything feels dialled up a notch - but thankfully feeling more human again today and getting back to normal.

Hilts. Milly, Sally ... how did your respectives find their post op FLOT - similar to pre or dialled up more too ?

Andi, hope you're doing OK the other side of the op - well done for getting through it.

Hi Redski, sorry to hear you're feeling a bit rough - stay strong as it's the last bit and the worse is over.

Lee

Hi Redski, sorry to hear you're feeling a bit rough - stay strong as it's the last bit and the worse is over.

Lee

Thanks mate, really appreciate that !