osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

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  • Hi Rayb

    just been through this had FLOT april and may operation in june  its a long journey but stick witk it.

    It may all sound a bit frightening at first i would recommend you read up on your treatment the FLOT is bearable and the operation is not really a worry although it is a major operation i will say that at no point in my journey have i really suffered any major pain and i am 90  percent recovered as of today if i can offer you any help or advice please contact me as it is always good to hear from someone who has been through this procedure recently , our NHS will take care of you by far the best care you can get ,trust me.

  • do you know what a plo is in an operation? 

    would be grateful if you have any idea

     

    sorry to hear about your diagnosis x

  • Nice one redski...good news 

  • Hi Redski

    That's fantastic news - enjoy your celebration. I have my 'op' next Wednesday - very scared but nearly there. Good luck with the chemo - all fixed by Christmas 

    Andi x

  • Thank you all, really appreciate it and this thread has been a huge part of the journey and getting through it with all of you and your lovely positivity throughout.

    Lee, good to hear from you and I hope your Dad is doing OK too.

    Andi, please don't worry ... honestly, you'll be talking away to the anesthetist and before you know it, the next thing you're aware of is waking up in the Critical Care Unit the other side of it and be none the wiser about it.

    You can do it !!

  • Thank you Redski - worried about my fitness level as had a broken humerus which stopped any exercise - so not very fit but surgeon/anaesthetist have decided to go ahead - watch this space

    Andi x

  • Hi Redski

    absolutey thrilled for you, well done you and your team awesome news

    Tabnabs

    x

  • Thank you TabNabs, hugely appreciated and massively proud of you walking through your journey too. Keep going, keep walking forwards, keep postive, you've already shown a change in direction is possible once, and so it's possible again ! Go get it !

  • Andi, if you're in for the Op ; they think and know you're fit enough to make it through so have some more faith in yourself - you can do it !

    Like a wise BFG once said to me, it's the most routine big op they do ... so these guys know their stuff and if they're taking you through it they know you can get through it.

    The physio team will have you out of bed and standing on the day after your op, you won't feel like it at all - but push yourself as it made a huge difference to me over those next few days getting up and moving around getting the lungs working again.

    We have faith in you !

  • Wwhhhhhhoooopp

    BIG CLAPPING EMOJIS

    Nice one Redski. 
    I love a good story of total murder and destruction- not of your good self of course, your unwelcome visitors. LOL.

    Nando's , Burger King, Greggs, enjoy the blooming lot ((:::

    Andi 47- Don't worry about exercise so much- yes, they love the ultra fit, but most people are not like Usain Bolt! So, if you can't run or cycle very far, try working up the stamina.  They love a good lung capacity.We invented ( probably not) this 'great', free, non gym thing. Walking up and down the stairs. Not any particular speed, just as you normally would. Trust me it is a killer! I managed 1 min and was a jibbering wreck- he worked up to 10 mins!! Twice a day.  If you still have any will to move left, just going out for a walk, brisk as you like for about 20 mins, upping the speed if you can. All free. Redski is right, there is no way they would do the surgery if you were not up to it.

    You will be done soon enough, and asleep the whole time to boot. A general anaesthetic is blooming marvellous. My gall bladder and wisdom teeth are a tad less long ((: and major, but it is bonkers because you go off in a flash and when you wake up you feel no time has passed, My husband wasn't bothered at all from pain, just woke up 'cluttered' with gadgets, which came away pretty quickly, his biggest complaint was slipping down the bed! and the ward being a' bit noisy' , moaning about 'trivia' is always a good sign.  And, es as Redski said, the physios will have you up and about the next day and by day 4 you'll be on the best , most tastiest grub..... and walking around the ward. Mine was chucked out on day 8 post op.
     

    Keeping the faith y'all

    Hilts

     

  • Hi Hilts

    Thank you for that - I will try the stairs - you are all so encouraging - it's brilliant. I will beat it x

  • Hi Redski

    I know - just getting a bit (well a lot) nervous. The NHS are wonderful - will be fine on the other side x

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