Hi Rayb

just been through this had FLOT april and may operation in june  its a long journey but stick witk it.

It may all sound a bit frightening at first i would recommend you read up on your treatment the FLOT is bearable and the operation is not really a worry although it is a major operation i will say that at no point in my journey have i really suffered any major pain and i am 90  percent recovered as of today if i can offer you any help or advice please contact me as it is always good to hear from someone who has been through this procedure recently , our NHS will take care of you by far the best care you can get ,trust me.

do you know what a plo is in an operation? 

would be grateful if you have any idea

sorry to hear about your diagnosis x

Ooooh now that really is a snazzy idea!! 

Haha its only the lactose that ruins the full fat for me! I have odd days where I crave the proper stuff and I'll binge on ice cream or pizza but I pay bitterly for it the next day! Yet I can manage Cravendale with no problems so I have to have that at home. Have just made a nice hot chocolate for the evening.

Ooooh no!!! How can you have decaf, Earl Grey and soya? Who even puts milk of any description in Earl Grey? 

Haha they're the rebellious teenagers of cells x

I had a post op, benchmarking CT Scan today at 11:30am and saw my surgeon at 1:30pm to go through it and my histology results from the lab on what they removed in the op.

Thankful that the CT scan was clean and normal and histology back, all 72 lymph nodes he took came clean back too. He told me to go and celebrate with another Nandos, haha !

So, I'm now waiting to start post op chemo on 6th October which means all being well I should be done by 18th Nov.

Keeping walking forward, head down getting it done.

Hoping everyone else on their respective paths are keeping on, keeping on too and moving forwards.

Oh that's fantastic news!!! Definitely celebrate tonight x

Nice one redski...good news 

Hi Redski

That's fantastic news - enjoy your celebration. I have my 'op' next Wednesday - very scared but nearly there. Good luck with the chemo - all fixed by Christmas 

Andi x

Thank you all, really appreciate it and this thread has been a huge part of the journey and getting through it with all of you and your lovely positivity throughout.

Lee, good to hear from you and I hope your Dad is doing OK too.

Andi, please don't worry ... honestly, you'll be talking away to the anesthetist and before you know it, the next thing you're aware of is waking up in the Critical Care Unit the other side of it and be none the wiser about it.

You can do it !!

Thank you Redski - worried about my fitness level as had a broken humerus which stopped any exercise - so not very fit but surgeon/anaesthetist have decided to go ahead - watch this space

Andi x

Hi Redski

absolutey thrilled for you, well done you and your team awesome news

Tabnabs

x

Thank you TabNabs, hugely appreciated and massively proud of you walking through your journey too. Keep going, keep walking forwards, keep postive, you've already shown a change in direction is possible once, and so it's possible again ! Go get it !

Andi, if you're in for the Op ; they think and know you're fit enough to make it through so have some more faith in yourself - you can do it !

Like a wise BFG once said to me, it's the most routine big op they do ... so these guys know their stuff and if they're taking you through it they know you can get through it.

The physio team will have you out of bed and standing on the day after your op, you won't feel like it at all - but push yourself as it made a huge difference to me over those next few days getting up and moving around getting the lungs working again.

We have faith in you !

Andi, if you're in for the Op ; they think and know you're fit enough to make it through so have some more faith in yourself - you can do it !

Like a wise BFG once said to me, it's the most routine big op they do ... so these guys know their stuff and if they're taking you through it they know you can get through it.

The physio team will have you out of bed and standing on the day after your op, you won't feel like it at all - but push yourself as it made a huge difference to me over those next few days getting up and moving around getting the lungs working again.

We have faith in you !

Hi Redski

I know - just getting a bit (well a lot) nervous. The NHS are wonderful - will be fine on the other side x

Hi Redski,

That's really great news! Well done. So pleased for you.As you say you are onto the last stage. My husband had his last FLOT last Friday and had his Picc Line out on Tuesday. so onwards and upwards.

Andi as Redski said they have done all the checks. It is a big op but the surgeons are very skilled. We went away for a few days the week before my husband's op to try and take our minds off it. It's good to keep busy so the time passes as quickly as possible. 

Hi to everyone else.

Keeping the faith

Milly
 

Thank you Milly - going for a picnic tomorrow

Hi Andi,

Looks like your laparoscopy went well. It's good your op is soon. My husband had a wait of over 6 weeks from laparoscopy to the big op. Enjoy your picnic in this lovely weather -  a real bonus!  

keeping the faith 

Milly

So tomorrow's the day!! No food after 5.30am and no fluids after 9.30. 

Been struggling to bring up some really thick bloody mucus today that feels like it's coming from the stomach side rather than the lungs, so maybe they'll see globs of that on the Endoscopy. 

Praying all is well.

X

Thinking of you Leo xx

All the best Leo, will keep you in my thoughts

Tabnabs x

Hi Leo and Andi,

Thinking of you today Leo and hoping all is well.

I will be thinking of you tomorrow Andi and sending positive thoughts too for your operation. NHS staff are highly trained professionals and it's a big team who look after you. 
 

keeping the faith for everyone 

Milly

Thank you Milly - very nervous - can't imagine what I'll wake up to - it's definitely the unknown 

Andi xx

Best wishes Leo - thinking of you today. 

And best wishes to you Andi for tomorrow. 

You'll wake up in a very happy place and it will be a case of going with the flow and doing what you are told :-). 

Feel free to throw any questions our way and don't worry about not communicating.  I was rubbish at texting for days afterwards.  

Cheers

Bfg