Hi all,

Just a quick question please. My husband still has his jeg and he is flushing it daily. He was given some syringes, two aluminium bowls plus a bottle is sterile water. He was advised to use cool boiled water as well. Due to everything that has happened I'm a bit concerned about infection and re using the equipment and water from the kettle. I do 'sterilize' the bowl and syringe with boiling water first. Any thoughts? 
Thanks

Keeping the faith

Milly

I have just had my first FLOT chemo - on Friday - all OK so far. How are you all doing post op?? Be very interested to know how you all are 

Aha Andi, 

Are you a newbie? If so welcome to the club- I'll respond in full later as running off to town.

we all on here 'world experts' at 'living the dream' and know FLOT extremely well

i'll do better later

 est wishes

HILTS

Hi Andi1947

Welcome to the club that nobody wants to belong too.

It's a bit of a long read, but if you haven't already - take a gander through this thread as there are a number of us at various stages. Many of us post op, and some like yourself who have just started the journey. 

I'm 15 weeks post op and have just had my final flot cycle.

Personally - I'm doing a lot better than I thought I would. The medical team are fantastic, and they do give all the information that you need both positive and potentially negative effects of the operation to enable an informed decision. 

Things have changed and are changing in terms of what you can and can't eat post op, and how frequently you eat. It's an evolving situation - and where I can now eat practically all the food I used to eat in moderation,  I'm still building up to the 4 pints of beer challenge. 

Cheers

Bfg

Thank you all - bit of a scary road but so good to share with others at different stages. You all seem very positive- will join you. Hope you soon build up to the 4 pints BFG!! Appreciate your support - very early for me   Take care everyone xx

Very much a newbie Hilts - first FLOT last Friday - feeling good - long May it last xx

This is soooo encouraging to hear - NHS fantastic - every confidence. How are you doing now dooggreg?

Hi Milly

I just used boiled water then kept at room temperature in a jug and flushed out the line as directed , the worst rhing was the plastic part the tube passes through keeping that clean , ther seems always to be a yellow wax like substance which builds up and that area gets a bit tender, eventually the stiches fall out but i used to surgical tape the plastic thing back on , when i eventually had almost stopped feeding through the tube it actually fell out of its own accord one morning in the shower , of course i panicked and phoned the nurse who told me that was ok and the hole where it entered the bowel  would close in a few hours , once it's out it does however feel like another leap forward towards normality , take it easy

Regards

Douglas

Hi Andi

nice to hear from you , i am just over a year ahead of where you are now and have continually posted throughout the FLOT , the surgery  and recovery phases in an effort to offer some sort of reassurance to others and a bit of non clinical guidance , although i am 95% recovered i reckon on it taking 2 years to reach an acceptable level of normality , so be patient you are not in a race , this time next year you will be writing this advice to someone in the same position , believe it or not i have found the whole thing to be a very uplifting experience and hope it's the same for you and everyone else on here , got any  questions ? no matter how trivial just ask ,there is a wealth of non clinical knowledge amongst those who post on here , meanwhile  stay strong and take care of yourself

Regards

Douglas