osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

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  • Hi guys. Sending love to you all. We have just lost my mum to this cancer after only 6 months post surgery. My advice push for the chemo after and push for all the scans you can get after too. If this had been possible for mum then she might still be here. Xx

  • Hi

     

    I too would advise, push push push.  My brother had been visiting his GP since March with fears of this dreadful cancer and was pooh poohed and told it was acid reflux.  Eventually at the end of August he had an endoscopy and a biopsy.  By this time he had lost 1 and half stones in 6 weeks.  He was rushed into hospital on 20th September, and passed away on 25th October without having had any treatment.  I could go into far more detail but would not wish to distress anyone on this forum.  It was obviously too late for him and I find it extremely upsetting that in spite of him doing the right thing and going to his doctor, (and advising the doctor that his paternal grandfather had died of the same disease) he was sent away and not seen to in sufficient time to give him a few months quality of life.  

     

    Make a nuisance of yourself, push and push for scans and tests and treasure every moment you have xx

  • Hi y'all.

    That the good thing about being on here. We all 'get it' the ups , downs and everything in between.

    i am reassured by the fact that it is not regarded by team as 'urgent'.

    I wonder how much of it is 'one experiment too far' LOL. He has been told to eat smaller meals and take it easy, but nah, he eats pretty much like he used to and drink grrrr. But we"'k see.

    Surgeons think it is highly unlikely to be anything' dodgy'.

    As for the chest drains. I remember them being ULTRA fussy with his. It was the last thing to go. They won't take it out until it is almost draining nothing at all. When you see the size on the bucket, it kinda gives an indication of how much they are expecting!
    Off on hols tonight, no packing done....... the sun better shine on the east coast. Apparently, it is 50% drier than the west coast , so fingers x. I think I'll get 'edited' if I say where, but never been to this part of Blighty before so looking forward. At least I am away from work!

    take care all,

    sort of - keeping the faith

    hilts.

     

  • Hope you guys have a wonderful holiday !

  • Hi Hilts 

    Have a wonderful holiday and I hope you have fab weather- it's looking good! 

    Keeping the faith - even my friend is now using this too!

    Milly


     

     

  • Thanx.

    Will try. We live probably in the most 'inland'place in England and it is forecasting 23 deg ! East coast 15!

    NO RAin in the forecast- or so it appears. I grew up in the 'west of Britain' and rain was mostly guaranteed. Rust rather than tan LOL

    Ah yes Keeping the faith- it is VERY nostalgic for me. I think it originated in a 'northern soul' club land- Wigan casino. Have this old pic on the wall, one of those montage-y things. Of us lot circ. 1982 , all on a scooter run to the coast, dressed up to the 9's in full gear. Us girls thinking we were sooooo cool, on the back of these machines that we were way to young to drive !!!!! The Lads in the crew, just about old enough ! Funny I don't remember the rain back then LOL.

    As ever 

    Keeping the faith

    Hilts

    I'll probably end up posting while we are away!!!!! I'll miss y'all too much - ahhh

  • Hi Hilts,

    You've made me smile and we also live in the most inland location furthest from the sea!

    We used to go to  Sutton on Sea as kids. My dad used to 'pack' the sun in a round tin and take it with us lol.

    Have a drink and an ice cream for us!

    Keeping the faith (have to do this)

    Milly

     

     

  • Living in stapleford,  Nottingham. ..that was ppresty central in the UK.. many holidays in skeggy before we went abroad...

  • OMG Millie ,

    THAT IS WHERE WE ARE GOING!!!!!. Talk about small world !
    We used to go to Norfolk on hols, but thought Let's go somewhere we have never been and know nothing about- so booked. Never heard of the place, not surprising as I originate from completely the other side of Britain (Port Talbot- where even the pigeons glow LOL) and of course I've heard of Skeggy. Like Barry Island and Great Yarmouth- I love them both as they are un- gentrified , and have all the brilliant things that the well heeled love to hate - their loss in my view.(:

    We now live / work in Oxford so I think it is very far inland compared to Port Talbot.

    OMG- the next thing will be that we either all know each other, either through friends of friends or we are all related!!!! Nothing surprises me anymore LOL

    Keeping the faith (:

    Hilts

  • Lol Hilts,

    That's uncanny. We went in September last year before the shock diagnosis - no symptoms then! He is still in step down and will be over the weekend.
     

    Its  a small place with a big beach! Great for rounders or cricket. Last year we stayed in a house called Twenty just a short walk from the sea front. There is a cafe on the corner and I'm sure you'll find the pubs lol. Pack the sun and have a lovely time. Skeggy isn't far away if you fancy a day out somewhere a bit bigger.

    We love Oxford - Sutty as we call it isn't anything like that but it does have its own charm somehow for me anyway. A big group of us used to go and I remember us all doing the Ministry of Funny Walks along the prom! Happy days.

    Keeping the faith  and nice to talk about a different journey. 
     

    Milly

     

     

  • Morning all, hope you're well.

    Does anyone have any tips / advice for food to stock up on in the weekly shop today to help with getting through Round 1 of FLOT next week ?

    Any tips on good things to eat / drink to keep strength, energy and weight up throughout would be hugely appreciated.

    Thank you !

  • Hi Redski

    Great question - and I wish there was a great answer. This is the bit at the beginning of the roller coaster where you are slowly getting to the top,  not knowing what's on the other side. 

    Expect to lose weight in the first week, then bounce back in the second irrespective of what you eat. Your

    Taste will probably be affected and what you love now may change, but the usual high fat, high protein foods should help - dairy,  chicken etc. 

    For some of us, eating had become a problem and this,  for me, eased off after the 2nd cycle. 

    Once you know what works for you, then this will help for the remaining cycles. 

     

Reply
  • Hi Redski

    Great question - and I wish there was a great answer. This is the bit at the beginning of the roller coaster where you are slowly getting to the top,  not knowing what's on the other side. 

    Expect to lose weight in the first week, then bounce back in the second irrespective of what you eat. Your

    Taste will probably be affected and what you love now may change, but the usual high fat, high protein foods should help - dairy,  chicken etc. 

    For some of us, eating had become a problem and this,  for me, eased off after the 2nd cycle. 

    Once you know what works for you, then this will help for the remaining cycles. 

     

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