Hi guys. Sending love to you all. We have just lost my mum to this cancer after only 6 months post surgery. My advice push for the chemo after and push for all the scans you can get after too. If this had been possible for mum then she might still be here. Xx

Hi

I too would advise, push push push.  My brother had been visiting his GP since March with fears of this dreadful cancer and was pooh poohed and told it was acid reflux.  Eventually at the end of August he had an endoscopy and a biopsy.  By this time he had lost 1 and half stones in 6 weeks.  He was rushed into hospital on 20th September, and passed away on 25th October without having had any treatment.  I could go into far more detail but would not wish to distress anyone on this forum.  It was obviously too late for him and I find it extremely upsetting that in spite of him doing the right thing and going to his doctor, (and advising the doctor that his paternal grandfather had died of the same disease) he was sent away and not seen to in sufficient time to give him a few months quality of life.  

Make a nuisance of yourself, push and push for scans and tests and treasure every moment you have xx

Hi y'all.

Glad to see everyone chugging along.

We are now having a problem...... husband doing so well, I suppose I thought we were done with complications aha- not ):

Although I have to say- not a really bad one as things go.

He is booked for an endoscopy. He's had a dreadful cough - been going on since post op, but they are thinking 'tight ' scar tissue causing reflux, = cough. Treatment pretty straightforward according to them - we know nothing is 'straightforward' in this game (:

If it is found to be tight then they will dilate it with a balloon- quite common apparently. Scar tissue from the join. We are both pretty wobbly. The mere mention of 'endoscopy' fills us with dread after the last time eke!

Surgeons pretty sure nothing dodgy going on, but thought that once before!

so , trying to keep the faith

Hilts

Ps- I follow this thread and get notifications every time there is a post, makes me look like I am on here all the time- just once a day (:

Hi Hilts,

I'm afraid we don't feel like we are chugging along, more up and down but hoping for more up! Over 3 weeks since first op which went so wel ..... 

I think I've read about this procedure somewhere - is it to stretch it?  It's natural to feel concerned. Hopefully it will be sorted quickly and help with the cough. 

Keeping the faith

Milly

Ray,

you are nipping at my heels. I feel more "sickly" too this time around - especially when it came to eating, but that wore off after a week after the cycle- my fingers tingle too, and sometimes my right foot decides to go off somewhere on it's own adventure (at size 14, I'm sure it's out there scaring old ladies).

Milly - they are ultra cautious about the chest draining.  My other half (which is another novel in itself) wouldn't be let out of hospital too, until the drain stopped draining - very frustrating.

Lee - great news about the bbq chicken.  My surgeon is very much of the opinion that improvement in eating can tell you more on how things are working than any scan - it was following my 2nd cycle 1st time around that eating improved.

Hilts - I read about this on another forum.  It's not uncommon and straightforward - but I know what you mean.  The last time we all had an endoscopy, it didn't turn out that well - but better to know and when his cough stops, he can drink more beer!

Keeping the faith, really!

I definitely feel his nerveousness too ! I have an endoscopy @ 1130am this morning (am in the Uber en route now!) ... it's just a box ticking exercise this time of a pre treatment biopsy to be able to join a clinical trial. But, like you and BFG say, the last time I had one - the experience and memories associated weren't great, so a bit nerveous !

Starting my FLOT-A next week, excited to get underway and start nuking it finally (as odd as that probably sounds!).

Thanks all for your great updates too, is super helpful not riding the roller coaster solo !

I'm sure your Husband's procedure will be fine, he sounds like he's doing so well through it, don't worry !

Hi y'all.

That the good thing about being on here. We all 'get it' the ups , downs and everything in between.

i am reassured by the fact that it is not regarded by team as 'urgent'.

I wonder how much of it is 'one experiment too far' LOL. He has been told to eat smaller meals and take it easy, but nah, he eats pretty much like he used to and drink grrrr. But we"'k see.

Surgeons think it is highly unlikely to be anything' dodgy'.

As for the chest drains. I remember them being ULTRA fussy with his. It was the last thing to go. They won't take it out until it is almost draining nothing at all. When you see the size on the bucket, it kinda gives an indication of how much they are expecting!
Off on hols tonight, no packing done....... the sun better shine on the east coast. Apparently, it is 50% drier than the west coast , so fingers x. I think I'll get 'edited' if I say where, but never been to this part of Blighty before so looking forward. At least I am away from work!

take care all,

sort of - keeping the faith

hilts.

Hope you guys have a wonderful holiday !

Hi Hilts 

Have a wonderful holiday and I hope you have fab weather- it's looking good! 

Keeping the faith - even my friend is now using this too!

Milly

Thanx.

Will try. We live probably in the most 'inland'place in England and it is forecasting 23 deg ! East coast 15!

NO RAin in the forecast- or so it appears. I grew up in the 'west of Britain' and rain was mostly guaranteed. Rust rather than tan LOL

Ah yes Keeping the faith- it is VERY nostalgic for me. I think it originated in a 'northern soul' club land- Wigan casino. Have this old pic on the wall, one of those montage-y things. Of us lot circ. 1982 , all on a scooter run to the coast, dressed up to the 9's in full gear. Us girls thinking we were sooooo cool, on the back of these machines that we were way to young to drive !!!!! The Lads in the crew, just about old enough ! Funny I don't remember the rain back then LOL.

As ever 

Keeping the faith

Hilts

I'll probably end up posting while we are away!!!!! I'll miss y'all too much - ahhh

Hi Hilts,

You've made me smile and we also live in the most inland location furthest from the sea!

We used to go to  Sutton on Sea as kids. My dad used to 'pack' the sun in a round tin and take it with us lol.

Have a drink and an ice cream for us!

Keeping the faith (have to do this)

Milly

Living in stapleford,  Nottingham. ..that was ppresty central in the UK.. many holidays in skeggy before we went abroad...

Living in stapleford,  Nottingham. ..that was ppresty central in the UK.. many holidays in skeggy before we went abroad...