osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

Parents
  • Hi guys. Sending love to you all. We have just lost my mum to this cancer after only 6 months post surgery. My advice push for the chemo after and push for all the scans you can get after too. If this had been possible for mum then she might still be here. Xx

  • Hi

     

    I too would advise, push push push.  My brother had been visiting his GP since March with fears of this dreadful cancer and was pooh poohed and told it was acid reflux.  Eventually at the end of August he had an endoscopy and a biopsy.  By this time he had lost 1 and half stones in 6 weeks.  He was rushed into hospital on 20th September, and passed away on 25th October without having had any treatment.  I could go into far more detail but would not wish to distress anyone on this forum.  It was obviously too late for him and I find it extremely upsetting that in spite of him doing the right thing and going to his doctor, (and advising the doctor that his paternal grandfather had died of the same disease) he was sent away and not seen to in sufficient time to give him a few months quality of life.  

     

    Make a nuisance of yourself, push and push for scans and tests and treasure every moment you have xx

  • Thinking of you today Millie58,

    Get 'slashing'

    i have been doing some 'therapeutic ' sorting. The old vynil in the loft! Supposed to be sorting it LOL. My kids have nicked the Nirvana, Bleach blares out (:. Spending good time completely wasting it. 

  • Thinking of you too, Milly58. 

    Unfortunately there was no signal getting the FLOT and the wifi doesn't allow connection to this website.

    And I have to say it.

    May the 4th be with you.

    And Hilts - good luck with the vinyl!  We've an old 1960 jukebox that has kept us entertained for years and about a 1000 45's that needs sorting through!

    Cheers all

    bfg

  • LOL- nice to have you back BFG, 

    indeed - may the 4th be with Millie (:

    What is it about vinyl? The music sounds so much more 'real'. My kids are really getting  into it.

    When CD's first came out it was WOW, no scratching, jumping, convenient, no tape spooling da de dah,of course we now know 'not true' . CD's just doesn't'feel ' the same.

    How are you anyway BFG. Started the next FLOT yet? Last hurdle, then DONE.

    Mine goes back to work next week !!!!!! See how he gets on TBH I think it will do him wonders he's had nothing else to think about for the last 9 months apart from cancer, he needs a distraction now and 'getting back out there'. Distraction certainly kept me going (:

    Daisy and Ray- where are you?
    Keeping the faith

    HILTS

     

     

  • Hi Hilts

    FLOT started this morning - so far, so good.

    Some of the best sounding music on our juke comes from original vinyl from the last 50's - later music comes no where near it. 

    I'm fortunate to have started a contract wfh a year ago now and since diagnosis and treatment over the past 6 months, they have been incredible patient and flexible and have just been extended another 6 months (I restarted working 4 days a week s month ago).

  • Hi Hilts, BFG and all,

    I received a call from the surgeon just after 5 to say my husband's op had gone according to plan which is really good news. He's now in ICU. Thanks for the messages of support and I'm pleased the first FLOT has gone well BFG. Also great news re your husband Hilts - another step forward. 

    Keeping the faith 

    Milly 

     

  • Yyyaaaayy Mille58-

    yep, YOU made it, never mind your bloke! He was nicely unconscious, while you were hopefully out there slashing....... LOL (:

    ICU = mine was on there for about 36 hours. Varying degrees on here. He will be enjoying his opiates (:

    Yep, little steps going forward. 
    I am sooo glad the hospital saved my guy.......... I can now cheerful kill him myself............he really does need to go to back to work (: LOL

    Millie - you, like me will get there.(:

    laters

    Hilts

  • Great news Milly!

    I spent a couple of nights in ICU, being very well looked after by a whole host of angels, before being taken back to the ward. It was a surreal couple of days and for a few days on the ward - time didn't make any sense - what felt like hours could be 10 minutes, and of course they are taking tests, bloods, bp etc at all times of the day.

    My "messaging" was all over the place - it could take 15 minutes to respond or even just to write a simple comment - as what I had been writing was complete rubbish - so don't worry if you get gibberish, or it takes a while. 

    You should be able to get the phone number for the nurses station when he is back on the ward- what my other half didn't realise was that my room was next to my nursing station, and the number of times she phoned up "after" we had communicated all concerned - it was quite funny, as she thought I was psychic when I told her off.

    Cheers

    bfg

  • Hi bfg, Hilts and all in this 'club',

    Thank you for your warm wishes and information! I don't know about my husband being muddled I couldn't remember my password to this site! 

    Yep he's still in ICU as expected and is in for the night getting spoilt by the nursing staff! He is doing well, so far so good. He's been sat in a chair and the staff have been great. I've been able to speak to him on their phone and and seemed pretty good considering everything. The surgeon believes that they've got it all and good margins. So best news possible- just typed a I instead of an o 'hello hello' lol. 
     

    Relieved doesn't cover it! He had keyhole on his abdomen and open up top. Hopefully we can FaceTime when he feels able to in a few days. 

    Hope you're doing OK bfg after your first FLOT and regards to all. Thanks again.

    Milly who is feeling more like Mandy again!

     

     

  • Yaaayyyy, 

    Excellent news Millie58.

    your garden is hopefully weed free by now. Hope you have exhaled.(:

    No mercy on the patients. They had my guy out in the chair the next day! Much to his disbelief and horror (: I think he thought it would be like 'carry on matron' ! LOL. Day 2 or 3 up and in the shower ......., no 'brow mopping ' stuff, but plenty of opiates (:

    So now, 3/4 done , just think he will be eating probably by day 5 , I think BFG really enjoyed his 'textured chicken' as did my guy (:. I think that motivates anyone to get cracking with the eating (: Another 10 or so weeks , all done, finito. Then no doubt you will sit and look at each other and think WTF just happened.....just as we are, but as ever ,

    keeping the faith

    Hilts.

  • That's really good news Milly 

    Lee 

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