Hi guys. Sending love to you all. We have just lost my mum to this cancer after only 6 months post surgery. My advice push for the chemo after and push for all the scans you can get after too. If this had been possible for mum then she might still be here. Xx

hi,

it,s sad to hear about your loss especially after your mum going through the operation i know its difficult to accept your loss especially when you read posts like mine telling others it will all be fine , god bless you and take care of yourslef and your family.

Hi Daisy

Thank you! I was kept going will regular snacks, fruit smoothies, banana milk shake still my favourite and even an odd glass of lucazade, anything to give me a boost when i felt at my worst, kjeep strong both of you and stay positive it has certainly helped me.

Yay, Ray- good to have you back.

great news that the FLOT has done its stuff. It really seems to be the proverbial dogs b****s

you read exactly like my husband. He felt it was like Groundhog Day. Every fortnight Thursday night start the steroids, get nuke'd on the Friday, stop steroids on the Sunday, blotto for 3-4 days then better every day until time to go again.

He had all that pre op fitness workup. Lung capacity expanding stuff, bike ride 'stress' test, nose clip etc.

Mine is now post op. Had the whole thing done by keyhole!! OMG is that genius of a surgeon, my new best friend. He was only in for 7 days!!! 4 bullet holes, that is it!!!They chucked him out xmas eve, best present ever. He is now adjusting to eating smaller meals haha haha, not liking that one bit. Interesting though , in the 4 bedder with him were 4 guys similar ages all had the same diagnosis, surgery etc etc. What is going on with Oesophageal cancer, it seems 'catching' He still has his jejunostomy feeding tube in, but stopped them overnight last weekend.

We recently had the pathological final staging. Gone down from a 2 to a 1b, clear margins with no lymph's. Surgeon said there was very little cancer left, mostly scar tissue. So we are now waiting to hear on whether he needs the post op chemo- we are expecting it -in for a penny and all.

The whole thing seems a bit 'surreal' we are almost there in terms of treatment, but the emotional impact will take a lot longer to work through.

Hilts, So pleased to hear your husband is doing so well post op! Fantastic news about his grading, and you sound so upbeat its lovely x

Hi Daisy, 

yep, it is weird, I feel very upbeat about his treatment  and it has all gone so well BUT- there is always one (: I am waiting for bad news, I am also very intolerant of other things, life in general, you know stuff like getting stuck behind a tractor, annoying adverts, other people in general (: deliberately  emotive charity ads, and all that identity politics arrrgggg watching one of those *** programmes on TV at the mo as the 'screech sirens blaring' to an 'emergency', which turns out to be a drunk on a bench, love in a public toilet ( perish the thought hahaha)or minor theivimg ,really a blue light emergency!!!!- I could of course switch it off, but hey ho. Moaning at it is far better.One thing that is really dragging me down at the mo, is my idiots of bosses, changing their mind every 5 mins. I am particularly angry at our hysterical media, they *** off the NHS day and night, claiming horror stories at ever turn, but our experience has been amazing, seeing none of what they are banging on about.

I guess it might be called 'displacement' , who knows. The psychological will be a lot more difficult to heal I suspect.

hi Hilts

hope everything is going ok , everything has gone quiet on this page 

kind regards

Douglas 

Hi Doug, 

it has gone all quiet on here. I always think it means 3 things 1) we are all trucking along and are in reasonably good places. 2) We are mid treatment and crawling through a surreal twilight zone or 3) We all have popped off!!!- i have nightmares about 'chatting' on a thread only to find the person has checked out!!.

As an ex nurse I have always had a rather dark sense of humour, then this diagnosis, we'll if you can't laugh what can you do eh!
Anyhows, we are quiet, because we are good. Recovery continues, although he has a nasty 'rash' on his gut- not the wounds, I reckon it is an allergy to all the tape n stuff, annoying rather than problematic. He is walking much further now and is back driving

Food ' discovery' is going well. He is managing to hang on to weight, only lost 6lbs since August. He even managed ( I told him not to!) eat a pie!! - left off the mash, but plenty of gravy and ate the lot!!! I despair sometimes- he only got (this time) a slightly raised heart rate. He was very pleased.

Oncology appointment on Wednesday, to discuss if any further chemo needed. We are expecting it, despite the good pathology. In for penny and all that.

Will update then. 

hi Hilts

thats good to hear , anyway i am also doing great no more hospital visits until June you both take cars and keep in touch

Regards

Douglas

hi RayB

i just seen your post , i was wondering what had happened to you , i am gladf you coped with the chemo  and are getting your surgery soon , as i mentioned before its nothing to worry about ,if i can cope with it anyone can , the whole hospital episode just whizzes bye and before you know yit you are back at home , anyhow take it easy and keep us updated during your recovery.

Regards

Douglas

Hi Douglas

Nice to hear from you,I was at the hospital on friday gone and met the surgeon and team members my operation has been put back a week due to the COVID crisis.Yes taking it easy lol will stay in touch.

Regards

Ray

Hi Rayb, good to hear you are ok. My husband is due to have his third EOX cycle next week (delayed a week due to unpleasant tummy side effects) his appetite came back slowly this week during the break, and he is managing to get some soft foods down, we actually had shepherds pie dinner together last  night woop woop! 

I love hearing everyones updates, this is a difficult time for everyone, more so for cancer sufferers and its good to talk, and be in it together. Take care everyone. 

Hi Rayb, good to hear you are ok. My husband is due to have his third EOX cycle next week (delayed a week due to unpleasant tummy side effects) his appetite came back slowly this week during the break, and he is managing to get some soft foods down, we actually had shepherds pie dinner together last  night woop woop! 

I love hearing everyones updates, this is a difficult time for everyone, more so for cancer sufferers and its good to talk, and be in it together. Take care everyone.