MRI results showing growth to frontal lobe.

Hi all have just joined as wanted urgent advice for a family member I am really concerned about. 

 

She has experianced an episode from last year as she really wasnt herself. Two weeks ago she collapsed a few occasions but not passing out, vomitting and severe migrane.

We had recieved the MRI report which they said she had a cystic/necrotic growth mesuring 18cm to the frontal lobe.

She also had a swelling in her gum at the same time of her bad symptoms. The doctor has said it's a Tumor but I wanted to make sure of this. 

We have now waited two weeks and have been told a team of doctors are waiting to talk about the situation and what step to take next.

I have also done some research and have found that there is no way of confirming what it is until biopsy which leads me to be asking more questions. 

I have tried to get a second opinion but im not sure who can help and want the best treatment. Please can anyone offer any advice on who is best to see for this or even if anyone has had a similar experience. 

 

I wish everyone the best of luck for your journeys. 

 

Thank you for reading. 

  • Hello I have just read your post . I was diagnosed with the same thing last year in March. I had an 9 hour op to most of the truma then I had 6 weeks of radioation then had a month break and tomorrow I stat chemo for a year 

  • Tumour/tumor is a word that doctors use to describe any lump that is growing where it shouldn't, but the word itself shouldn't be confused with cancer.  A tumour may be cancerous or it may be benign, but many people hear the word tumour and automatically assume cancer. 

     

    From what you say, the growth can be clearly seen on the MRI so there's not anything to make sure of.  What remains to be discovered is whether it's malignant or benign, and that's why the biopsy is necessary.

     

    Regarding a second opinion, I'm not sure what you'd hope to achieve by this. It's not really likely that another consultant is going to look at the scan and decide it's been misinterpreted, and if that did happen, who would you believe?  Or would you go for a third opinion??  I know it's difficult to stand aside impotently and let the doctors loose on a loved one, but unless you have specific suspicions that the medical team is incompetent, it really is best to let them get on with it.  And don't forget that getting a second opinion will put additional strain on the patient, whilst almost certainly gaining nothing.

     

  • there will be an MDT (multidisciplinary team meeting) to discuss - this is totally normal procedure in neurology whether cancerous or not

    patient can usually get a copy of brain mri scans via consultant's secretary (there's a fixed charge)

    it sounds like early days to be going for second opinion though as there doesn't seem to be any diagnostic doubt regarding fact there is a tumour, its location and size etc only whether the tumour is benign or might have malignant potential/is malignant for which you need a biopsy result

    why not wait for biopsy result and MDT outcome as MDT brings together team of specialists who can make appropriate referrals and draw up a treatment plan - the meetings only happen once a week or once a fortnight as it's a lot of different experts sitting together to determine treatment etc

    it just seems very early to be asking for second opinion when you haven't got the first one fully yet. Second opinion is normally where diagnostic uncertainty/concerns if treatment plan appropriate or not. Remember other experts will review the scan at the MDT meeting so that in itself is another opinion

  • Thanks for the reply.

    Maybe I hadn't worded this the right way. I agree with it being the best option to wait for a team of specialists but wanted to mostly make sure if we've not missed anything. If of any way to test for an abcyss.

    On the MRI report it states it's a frontal glial tumor likely high grade transformation within a more diffuse.

    We did ask the gp if this could be an abcess and he replied no it's a Tumor. I understand the only way to tell for sure is a biopsy and couldn't understand how abcyss has been ruled out. 

    Looking up the meaning of this leads me to think its stating cancerous. 

     

    Thanks again. 

     

     

     

  • If there's a query your relative's first port of call would be Consultant's secretary. Best to discuss things as fully as possible with team. If relative (or someone your relative has authorised to act on their behalf) feels so urgent cannot wait for whatever reason then links below cover getting second opinions. But would encourage any specific question be put to Consultant's secretary first. Would need to be patient or someone patient has given consent to liaise with medical staff on their behalf. That is what neurology told us to do if queries between appointments/new symptoms and to do so by e-mail. Don't know what procedure is for your relative's hospital, however.

    about-cancer.cancerresearchuk.org/.../different-doctor-second-opinion

    Macmillan Cancer also has guidelines on getting second opinions. 

    www.macmillan.org.uk/.../getting-a-second-opinion