Hi crazzzybob 

Welcome to the forum the club nobody wants to join, more are neaded like you on here. 

There are a few prostate blokes on here different stages and treatments. 

Mine is prostate gone to lymph nodes, spine, ribs pelvis and a lung was diagnosed Feb 2016 been on palliative care since, permanent hormone therapy and cemotherapy when neaded, 

Been living normal life had to retire to look after my disabled wife she needs /7 care she has Alzheimers and parkinsons plus other problems.

As you can probably guess, stage 4 gleason 8 psa 1581 when first found. Just living with my uninvited guest. 

Like you three monthly injection. Just started hormone blockers as psa decided to rise rather quickly other month, waiting to see if my bust gets bigger and my voice changes. 

Any how welcome and please keep us up to date with treatment. 

Billy

P.s T3B N1 M1B 

Hello Billy,

I'm pleased to 'meet' you - and you're right enough - given the choice, this is a club none of us would be members of.

Like all too many men I pretty much ignored early symptoms, putting the gradual detioration in my ability to pee and instances of ED down to age-related BPH. The wake up call for me to book a GP appointment came after I suddenly peed blood one night just before Halloween.

I was fast-tracked to Urology in January 2020 on the back of PSA levels of 23.87 in early December, given antibiotics for a suspected UTI, and a second blood test just after Xmas showing a PSA of 25.84.

A DRE (deemed 'normal' by the consultant - the tumour proved to be anterior), a CT scan and urethroscopy followed in quick succession but in February a real UTI presented itself. Antibiotic treatment delayed the next stage of diagnosis i.e. a third blood test and an MRI scan.

Lo and behold, my PSA results came back as 23 point something but the MRI scan due late March/April was cancelled due to Covid-19 measures. I was parked on Tamsulosin, which I've kept going ever since 'cos this drug helped me pee - what a relief ;-)

July-August was busy: blood test (PSA 28.70), Covid test (neg), MRI scan (left anterior abnormality), trans-perineal guided biopsy (ar5e like a baboon, scr0tum like an aubergine) and a long-awaited diagnosis of locally advanced cancer: T3a N0 M0 Gleason scores of 6(3+3), 7(3+4), 7(4+3), and 8(4+4) across 26 of 58 cores drilled out :-)

I'd pretty much accepted back in December that I probably had prostate cancer - painless haematuria, weak flow, retention, dribbling, Friday night floppies - and gradually feeling more and more tired as time went on.

I've worked all through the lockdown, but I expect to be WFH fairly soon for obvious reasons. I'm weighing up the options - including retirement, but I like my job and might keep it going even if it drops to PT hours. Meantime, I'll ping this site at weekends high days and holidays.

Like you (clearly), I love my Mrs and she loves me.  I'm not so sure she loves me enough to let me share her collection of shoes and handbags as the hormone therapy kicks in, though. Oh well, her shoes won't me fit anyway... (no I haven't tried them on).

Take care Mr Goatt, Sir!
Bob (with three zeds)

Hi Bob, zzz. 

Sleep well. 

Didn't really know anything was wrong with me, kept having sicky doos every day after eating, turned out i had a hiatus hurnea (where some of my stumack has popped up through my diaphragm hence my stumack acid level is higher than normal so agrevates food pipe hence sick, luckily one of the blood tests showed something else wrong so psa. Otherwise no sign at all.

Lucky really otherwise it'd have gone further than to far for treatment. 

Billy Mr for now??

P.s my Mrs has very small feet and all high heels. Handbags look nice though. 

Just remembered, thares [@telemando]‍ and [@woodworm]‍, couple of regulars on I'll let them tell you there stories.

Billy 

Heya Billy,

Yeah, you never know what's round the corner.  Blimey, the spin-off tie-in with psa levels was critical in your case.  Skin of the teeth stuff, huh?  I was just a bit unlucky to fall foul of a global pandemic or my diagnosis might have happened sooner.

Going off-piste a bit, but I suffered for years with acid/reflux myself, and had pots of Sodium Bicarbonate stashed all over the place.. in the kitchen, in the car, at work... and took a spoonful every time it burned. My GP at the time was an anti-smoking Nazi, and told me my guts issue was all down to smoking.  The git.  Then I came back from abroad with a dose of campylocbacter food poisoning... treatment was a course of antibiotics I'd never heard the name of before. Strangely enough, my gut pain disappeared for a few months afterwards too. Thought no more about it till the acid burns came back, added 2 and 2 to make 4 ref the food poisoning event, and having moved house in between I saw a different GP who diagnosed 'Helicobacter Pylori.'  Bingo! My gut acid problem was cured by a week's worth of meds and I haven't looked back since.
 

All in all, I reckon you won't need much in the way of advice from me, matey sausage ;-)

But do you think my bum would look big in a kaftan?  I've had a look in the wardrobe, and I've got nothing else to wear :-)

I'm on bicalutamide, and either a Prostap or Decapeptyl jab next week. Then the real fun begins...

Seriously, I hope your own hormone therapy does the job.

Take care, man
Bob ;-)