Good morning - didn't know that this forum was on here until my sister found it. I'm a 48 year old man who was diagnosed with a rare form of lung cancer cancer just before lockdown. I've been on an experimental drug called 'alectinib' since April which seems to be working very well (thank god ans fingers crossed). Off fo a ct scan this week to see how far the cancer had spread as a baseline - this worries and scares me considerably!
Life has changed considerably and is now a merry go round of doctors, medication, tablets, temperature and worry and stress and anxiety. Although I was diagnosed in lockdown I'm keeping my fingers crossed that I'm well enough to continue my job in September as I'm a primary school teacher!
Life never feels like it will ever get back to normal - loss of sex drive, constant fear and worry, high anxiety, fear of death, pain and tiredness seem to all be my constant companions at the moment. The whole process is a scary one.
On top of this I have an aortic weakness - an aneurysm - which means surgery in the not to distant future - the idea of an operation terrifies me! So this is me and welcome to my life - was told to come use this site by my sister. Hope to find similar people or people that have worked through this anxiety that know how to help.
It's be good to get to chat to loads of you and share stories and hope altogether. Feeling scared and alone and unable to see the bigger picture - spending time worrying on how far things have spread, life and death and next steps! Please chat or help out out there. Many thanks xx
