This is wonderful news! So happy for you both. 

It's so brilliant to hear from you all, it doesn't matter if it's negative or positive, at the end of the day we are reaching out to talk and listen. I'm here for anyone that needs someone to talk to, please don't hesitate because I've found it a form of therapy(in a strange way),anyway hope to hear from you all soon 

In our positions we have to keep being positive and smile, you can go under if you don't. I just try and talk to my husband when I can. I do remind him that he got a good one at every time, he he. Anyway things aren't great here at the moment but I'll just take each day as it comes and smile every day. Hope you are all ok, speak soon

Wow, 

This thread caught my eye. God, there seems to be LOADS of us in this oesophageal club!!
bebe- good to find you again. My husband is also now post op, chopped last wed -16th. Doing well, to look at him, he only has 4 bullet wounds, all glued no stitches they are really small, no more than on inch each. He is off everything now , and only has his chest drain left. So I am really hoping they will throw him out for xmas- so he can 'enjoy' his puréed turkey xmas dinner with a nightcap of jej feed

Frenchie- I asked the consultant the very same question- is this curative or palliative. I ask for a straight answer , no flannel. In saying that palliative is a very very wide speciality. It does not mean 'end of life' it means, as I understand it, not curable, but treatable. 
I worked with someone once who had a pretty rotten diagnoses of stage 4 bowel AND ovarian. She was / is palliative. She is at this moment 5 years on , on a road trip across America!! With no evidence of active disease!!

I wonder how we can all get on one board ??

I think it would be helpful to have a dedicated board, it does seem to be a horribly common disease. 
I also think the medical professionals could explain this better for us mortals, they told me my husband was inoperable and did not explain that this is not the same as terminal. 

Hello, it's going to be a difficult time, try and be strong, you have 2 boys, just be there for your husband, and also look after yourself. I know what you are going through. It's such a difficult time with the pandemic going on as well. Please look after yourself. 

Hi, 

yes , I wonder how we go about setting up 'the oesophageal club' board. Must be a way, I'm not that tech savvy....

Frenchie- yes , the terminology is baffling. My mother in law was put on 'end of life' care last bloody November (19) . She is ancient (90) with pretty advanced dementia, but she rallied a bit after last Xmas and is now living it large in her care home, looking incredibly well and eating them out of house and home.

As an ex nurse (left in 90's) I sort of get the terminology. Nobody an this earth can predict the time of departure for any of us. It depends on sooooo many things. Everybody would, I am sure love to know their checkout date!
One thing I am aware of and probably guilt of myself is that the medics do this all day, everyday. They no doubt 'forget' that for the patients it is a 'rare, one off event' and they know what they mean, but are a bit 'lax' on realising that us mortals have no idea what they are talking about.

If you look at the terminology 'terminal' makes me smile. We are ALL 'terminal' from the day we are born! - I don't think that is used so much anymore.

palliative- means treatments, but not curable. I know a guy up my road who has been 'palliative' with prostate cancer for 15 years!!!!! Has a monthly hormone injection.

and as you can see from my above, even 'end of life' has no date or logic.

So, what can we do - just plod on I guess.

i was really upset at diagnosis, now I'm relatively okay, I always think 'he could be hit by the proverbial bus tomorrow, or have a disease which had no treatments.

take care

H

Update.

Done - oesophagectomy on 16 dec. All keyhole (didn't know they could even do it like that). 8 hours ish on the slab.  Now day 14 post op. Chucked out of hospital on day 8.

Got the pathological result today. Down from 2, to T1b , no lymph's or mets. Doesn't need post op,chemo now, but they have offered and he is going to go for it. Even if he only has 2 FLOTS , that is better than 0. Then a final PET scan.

Now working on food rehab with his new guts.

Glad he is doing so well, hope you are ok too Hilts.