My husband has esophageal cancer diagnosed Tuesday

My husband had a Gastroscopy Tuesday and was told he has a 4cm tumour that radiates 200 degrees around esophagus just over half way round 6 biopsies were taken.He had CT scan same day and bloods. CT reported no spread and bloods normal still awaiting biopsies results. Hopefully they will be back tomorrow and his case will be discussed at the multidisciplinary team meeting Wednesday. I do hope so.

 

i am so scared and heartbroken. To complicate matters I have secondary progressive multiple sclerosis 26 years.

Complex needs. He is my husband best friend full time carer and my heart of love. He is so worried about me and who will look after me and I am so out of mind with about him.

 

Dont know what to do or who to turn to.

  • Hi Ronnie, do you mind saying which Nystan and Difflam products do you recommend please? I want to prepare for my husbands chemo if I can help him be comfortable at all would be great. Thank you. 

  • Hi 

    Good morning everyone this is such a wonderful site to be on . This is all new to me and to be honest about comments you read are helping me .my partner rang me this morning 09/12/20

    Hes had a rough night with the 1st session of chemo being sick bless him .

    When he came home from the hospital on monday the 07/12/20 he has medicine for anti sickness and to be honest I dont think he had any I'm going to have to watch him from now on has it's not nice when this sickness kicks in . This is a learning care for me . I bought a trolley from IKEA has hes got loads of meds and feeding bottles has hes on a tube to feed has unable to eat or drink . This is an ideal thing so I can put all his essential things on it to hand for both of us . Cant have him keep getting up and downstairs in night has he doesn't wake me . Love him more than words can say hes my world and my rock . Hope we get to have more years together and to make memories. x

  • Hi there

     

    Difflam oral rinse is the mouthwash he was given when his mouth was ulcerated but he  may be able to ward that off by swishing regularly with salt water. Nystan treats oral thrush and was in a small green box. My husband said the ulcerated mouth was the most painful and Nystan did make it better but it was on prescription. If your husbands mouth starts to get very sore even with salt water swishing it is worth getting that. Sorry I can't check the box for more detail as we took back all the drugs after he died, and there were loads.

     

    I feel very sad for what your family and that of DiaDia are going through. It is a horrible time and I hope you have lots of support. I am so grateful that we were able to care for my husband at home and we were all with him. I do wish we had talked more about how he felt and our memories but we coped by being in denial.

     

    lots of luck

    With very best wishes

    Ronnie

  • Hello

     

    im sorry to hear your news. We are going through the same thing. My husband Tony 55 had his 4 cycles of FLOT chemotherapy and like your partner it put him in hospital with a bleeding duodenum. He had his oesophagectomy surgery on 27/11 and came home last evening. He did very well, of course he is sore and very tired some rectal bleeding but we hope that stops soon. We are waiting now for lymph node histology results which we are desperately hoping come back clear of any problems. Then dreading chemo again but hopefully a good outcome.

    this is a long and painful road all anyone can do is love and support each other and keep your eyes on the goal!.

     

    wishing all of us a healthy and happy future

     

    bernadette

  • I am so sorry to hear that your husband died, it is very brave and kind of you to come on here to try and help us with information, thank you. 

  • Hi bebe0309 

    I do hope Tony is improving every day has now hes had his operation and hope keeps improving .its such a horrible disease for our partners . 

    Shaun my partner hasn't had his operation has yet hes got quite a few session more than a break then fingers cross operation.  Hes back home now but really tired and exhausted now .

    Anyway take care hun look after yourself to .

  • My husband is in palliative care and we're just working on pain management. Although this is the most diffcult and at times terrifying point in my life, you must remain strong and ever so positive. I can't imagine what my husband is experiencing and he is the most head strong, stubborn person I have ever had the pleasure of meeting. 
    Every day I think about the reasons why we eventually got together and that makes me smile, I relay that back to him, that makes him smile.
    I write a lot down, it maybe as simple as what is just going through my mind at that time or it may take the form of a poem.I will then look back on it and make a few adjudicate necessary in a different colour.:I find this helps me put thoughts in order and that makes me find a little bit of peace in my very troubled mind. I hope that this helps , take care 

  • I hope your husband is doing well after his surgery Bernadette, have been thinking of you and everyone who has posted here going through this. 
     

    We have not been told if my husband is curative or palliative and I dont know who or how to ask this awful question. They have only said he cannot have surgery just chemo. I was not able to go to oncology appointment with him due to covid restrictions. 
     

    dia dia, it sounds like your husband has just started his chemo, I hope he is feeling bit better now, the trolley idea sounds good.  My husband starts his chemo on monday, I just feel so unprepared for how to help him, it's sometimes overwhelming reading everything here (lots of medical terms i don't understand) but it is comforting to know we are not alone. 


     

     

  • Hello Laura

     

    Writing things down is a very good idea. When I look back,  those times are a complete blurr and I keep wondering if I did enough and if we talked enough? What did we say and feel? Having a record of your conversations and the things that made you smile is a very good and comforting idea. Try not to leave anything good unsaid.

     

    Ronnie

  • Laura you sound incredibly brave, I love your advice to keep smiling.