Thyroid Cancer

hi, 
 I have been going through a tough time and would like to chat to those of you who are going through similar.

I have just had an operation for thyroid cancer, awaiting results and what is next?
I May need another operation and radiation therapy 
Had my operation on the 10th June 2020 after a very long wait due to this terrible Covid pandemic many operations and treatments have been delayed sadly!

A lump was found in my Thyroid after a routine scan of my ongoing lung problems and was told on the 2nd March at hospital appointment, which was a bit of a shock when CANCER was mentioned! On the 27th April I had a scan and 5 Biopsies done and the results came back as 2 lumps and T3 which means it could be Cancer, so then I had a very long wait for my operation which was on the 10th June to remove 1/2 my Thyriod and also the middle part(can't remember name of it) post operation was quite painful, but it is settling down now
Would like to talk to people who are going through similar, maybe we can help each other through this x

Parents
  • Hi Lucie,

    Thank you so much for answering me, I have this morning had my appointment for results

    I've been so very nervous waiting almost a month from operation, but so happy to say that the results are Great, I was told I am cancer free!!! Yay!!

    They did find a Cancer Tumour in my right Thyroid

    They took out all of right side of my Thyroid, plus also the middle part across my throat (not sure what that is called?) So I now only have 40% of my Thyroid left.

    There were 2 lumps, one was calcified, one was a cancer tumour, so I am so happy it has at last all gone after waiting so long due to Covid-19. 
     I have to have follow ups for regular bloods ect, to see if my much reduced Thyroid can cope, if not I will need medication, plus regular checks to make sure I don't get the cancer back I guess?

    He said it was a good job they got it out when they did (he did say why but I was a bit mind blown to be honest) I think it was something like it was about to cause problems!!?? 
    But Most importantly they got it all!!.......

    So I don't need the 2nd operation to remove the remaining part of my Thyroid or  Radiation Treatment he said I may need afterwards.

    The scar is healing well, but the right side of my scar is still very painful, plus I have some odeama that side too.

    It's like an electric burning pain especially when I touch it, even gently, so I asked my surgeon in the appointment if this is normal? He then told me in the operation they accidentally cut a nerve on that side so he could understand the pain I am getting. (Not sure he would of told me if I hadn't asked hIm, but I am not worried, just glad it's all over with)

    He then said it would take quite a while for the nerve to grow back, so I will get this burning pain, tingling and numbness until it regrows! I also have tightness on vocal cords, voice is ok but I get tired talking, it's like having slight laryngitis. But that is to be expected I guess.

    I can't tell you how much I feel SO very blessed and  relieved!
    But I have a couple of questions if I may please?

    My main question is....can the cancer come back elsewhere later on or can I feel safe that I am forever free of it?

    Next Question is......what do you think he meant by "it's a good job that they found it a got it out as it was changing"?

    Also I forgot to ask what kind of Cancer it was, would you know by all I have told you please?

    Why do some lumps calcify and is this also potentially a danger?

    Last question is.....how long does it usually take to grow the damaged nerve back?
    Many Thanks For Everything, and Hopefully answering my Questions

    I am happily Healing now, with a Brand New Zest for Life

    Best Wishes
    Missymay 

     

  • Hi there. I've come across this post and just wondering what everyone's symptoms were. ? My daughter is waiting an urgent ultra sound  she has a very big neck which has always been put down to her "make up" as she has cerebral palsy and lots of distonic movement. Anyway we notice a swollen gland just about mid neck just right of her throat (photos prove it was there last August)  however she also has a few other enlarged glands when you feel around her neck.  Dr briefly mentioned thyroid, but EVERYTHING I've read says that if lymph glands are enlarged then that would indicate cancer   she has no infections as all blood have come back fine ?  We are all so desperately worried. she also complains of something in her throat and is constantly fatigued. She is 22 yrs old. Any answers much appreciated 

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  • Hi there. I've come across this post and just wondering what everyone's symptoms were. ? My daughter is waiting an urgent ultra sound  she has a very big neck which has always been put down to her "make up" as she has cerebral palsy and lots of distonic movement. Anyway we notice a swollen gland just about mid neck just right of her throat (photos prove it was there last August)  however she also has a few other enlarged glands when you feel around her neck.  Dr briefly mentioned thyroid, but EVERYTHING I've read says that if lymph glands are enlarged then that would indicate cancer   she has no infections as all blood have come back fine ?  We are all so desperately worried. she also complains of something in her throat and is constantly fatigued. She is 22 yrs old. Any answers much appreciated 

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