Thyroid Cancer

hi, 
 I have been going through a tough time and would like to chat to those of you who are going through similar.

I have just had an operation for thyroid cancer, awaiting results and what is next?
I May need another operation and radiation therapy 
Had my operation on the 10th June 2020 after a very long wait due to this terrible Covid pandemic many operations and treatments have been delayed sadly!

A lump was found in my Thyroid after a routine scan of my ongoing lung problems and was told on the 2nd March at hospital appointment, which was a bit of a shock when CANCER was mentioned! On the 27th April I had a scan and 5 Biopsies done and the results came back as 2 lumps and T3 which means it could be Cancer, so then I had a very long wait for my operation which was on the 10th June to remove 1/2 my Thyriod and also the middle part(can't remember name of it) post operation was quite painful, but it is settling down now
Would like to talk to people who are going through similar, maybe we can help each other through this x

Parents
  • Hi Lucie,

    Thank you so much for answering me, I have this morning had my appointment for results

    I've been so very nervous waiting almost a month from operation, but so happy to say that the results are Great, I was told I am cancer free!!! Yay!!

    They did find a Cancer Tumour in my right Thyroid

    They took out all of right side of my Thyroid, plus also the middle part across my throat (not sure what that is called?) So I now only have 40% of my Thyroid left.

    There were 2 lumps, one was calcified, one was a cancer tumour, so I am so happy it has at last all gone after waiting so long due to Covid-19. 
     I have to have follow ups for regular bloods ect, to see if my much reduced Thyroid can cope, if not I will need medication, plus regular checks to make sure I don't get the cancer back I guess?

    He said it was a good job they got it out when they did (he did say why but I was a bit mind blown to be honest) I think it was something like it was about to cause problems!!?? 
    But Most importantly they got it all!!.......

    So I don't need the 2nd operation to remove the remaining part of my Thyroid or  Radiation Treatment he said I may need afterwards.

    The scar is healing well, but the right side of my scar is still very painful, plus I have some odeama that side too.

    It's like an electric burning pain especially when I touch it, even gently, so I asked my surgeon in the appointment if this is normal? He then told me in the operation they accidentally cut a nerve on that side so he could understand the pain I am getting. (Not sure he would of told me if I hadn't asked hIm, but I am not worried, just glad it's all over with)

    He then said it would take quite a while for the nerve to grow back, so I will get this burning pain, tingling and numbness until it regrows! I also have tightness on vocal cords, voice is ok but I get tired talking, it's like having slight laryngitis. But that is to be expected I guess.

    I can't tell you how much I feel SO very blessed and  relieved!
    But I have a couple of questions if I may please?

    My main question is....can the cancer come back elsewhere later on or can I feel safe that I am forever free of it?

    Next Question is......what do you think he meant by "it's a good job that they found it a got it out as it was changing"?

    Also I forgot to ask what kind of Cancer it was, would you know by all I have told you please?

    Why do some lumps calcify and is this also potentially a danger?

    Last question is.....how long does it usually take to grow the damaged nerve back?
    Many Thanks For Everything, and Hopefully answering my Questions

    I am happily Healing now, with a Brand New Zest for Life

    Best Wishes
    Missymay 

     

  • Thank you for the update. 

    It is great news they got it on time and you do not need to have another operation.

    Hopefully you won't need hormones and nerve heals quickly too. 

    I go for my op on Mon 13th (thanks god its not Friday hehe) 

  • Hi, 

    hope your operation goes well on the 13th, wishing a really good outcome, I am so relieved it's all over, but please remember that drs say, if you have to have Cancer it's the best place to have it as it is the easiest Cancer to cure ok x

    Take all the time you need to recover from it, be kind to yourself, I know just how worrying it is going through this, but hoping you have the same out come as I have had.

    Let me know how you get on

    best wishes Missy

Reply
  • Hi, 

    hope your operation goes well on the 13th, wishing a really good outcome, I am so relieved it's all over, but please remember that drs say, if you have to have Cancer it's the best place to have it as it is the easiest Cancer to cure ok x

    Take all the time you need to recover from it, be kind to yourself, I know just how worrying it is going through this, but hoping you have the same out come as I have had.

    Let me know how you get on

    best wishes Missy

Children
  • Hi Missy 

    I hope you are doing well 

     

    Just had a phone call from doctor. He confirmed i have papillary cancer. The operation will be in the end of Sep, followed by RAI.

    There is no signs of invasion but capsule disruption on the edge.

    The tumour is 4.5cm

     

    Now need to digest it. I am sure it will kick in hard lol

    Xx

  • Hi all

    I have recently been diagnosed with thyroid cancer as I found a lump on my nodule, I have an appointment with the surgeon on Thursday but I got a phone call from the hospital that I have to go for a ct scan and I'm wondering dose every thyroid cancer treatment start with a ct scan or did something show up in the blood sample showing that there is cancer somewhere else.

     

    Regards 

    Darren

  • Hi Darren,  I am sorry to hear about it.

    They probably want to have more clear idea on what they are dealing with, how much it spread and if there are any more nodules.  Don't think too much into that.

    Thyroid cancer usually doesn't show up in blood tests.

     

    I am wishing you good luck with surgery and quick recovery 

  • As soon as I was diagnosed - like literally minutes after I left the doctor's surgery, I got a phone call from the hospital to come in for a CAT scan. I was still too stunned to even really think about why, until they said they were going to scan my neck and chest, when of course, I started thinking, "oh gosh, do they think it has spread to the lungs or something." They didn't. It was just standard and I'm sure it is for you too. They do lots of tests. Most show nothing at all.

  • Hi all

    Thanks for reply, I met the surgeon today and he said the exact same thing that he wants to see the structure of my throat and not to worry about it because as soon as I get the thyroidectomy the cancer should be gone as thyroid cancer is more of an annoyance that anything else. 

    My mind is at ease now thanks.