Borderline ovarian cyst

Hi everyone I'm 57 and just been diagnosed with borderline ovarian cyst. What a shock!,wasn't expecting that. In March I noticed my stomach was bloated and large but thought it was due to the constipation I was suffering from.after phoning doctors as they were not seeing patients I had consultation with doctor over phone. Was given lactulose to help with the constipation and sent for bloods. Ca125 came back as normal but things didn't get better. More phone consultations with doctors given fybrogel nothing was working and I had a pain on my left side which then moved to the right. In may I telephoned Doctor again and asked if they were seeing patients as I definitely needed someone to take a look at my stomach doctor eventually said he would but would be sending me for a scan anyway. It was decided that I would be better just going to the scan. I paid private for the scan and was told I had a large 25cm multicystic ovarian cyst.i was fast tracked through the nhs as couldn't go private as all private had gone across to nhs. Lots of stressful phone calls at a time when I could have done without it. Had gynaecology appointment then mri. Results borderline ovarian cyst. Needs removing asap am now waiting for a date as with the coronavirus everything is slower. Feel let down and as if healthcare is only bothered about the virus. But resigned to just waiting for my op
 

 

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  • Hi, not sure if you've had your surgery yet?  I've just had a borderline ovarian cyst removed 4 weeks ago. It was 30cm diameter by the time it was removed (22cm when I had my MRI). Covid issues have made it much harder but I got there in the end. Hope your surgery went well

  • Thank you for replying. I had my surgery on the 17 July. I am surprised how well I felt afterwards. I'm not back at work yet but hope to return by the end of this month. My cyst came back as borderline and it burst when they were removing it. I have to be checked in 3 months then every 6 months for 5 years but it's not cancer and that's the main thing. Hopefully you will get a good result and I wish you a speedy 

  • Thank you so much - that is really reassuring. Fingers crossed, all will go well.

  • Hi 

     

    I had the same operation as Jackban 10 days ago to remove a 35cm cyst. The main pain was due to trapped wind and my bowel objecting to the surgery. My pain is very manageable- I took a single codeine at night to help me sleep for the first few days home from hospital and occasional paracetamol. I'm feeling far better than before my surgery. I've been signed off work for at least eight weeks as my job is quite active. I get tired and need more rest.  I'm sure that after a couple of weeks post op it would be fine to spend an hour tutoring. It's very frustrating not being able to do things.  

  • Thank you - that's good to know. Keep safe and take care

  • Hi. Have you had your surgery? If you have how did it go? 

  • Hi 

    I had my op last week, so very much still recovering, but much better than expected. I think I should be able to tutor by half term which would be good. Seeing the consultant next weekend, so wont know the path results till then, but I think if he'd seen anything sinister he'd have mentioned it.

  • Hi Jackban 

    hope you dont mind me messaging. I seen you have been bery supportive to other members so hope you dont mind me asking you for a bit of advice. 
    im very confused i have just been told by consultant i have a borderline tumour she said its not bengin and its not cancer (confusing) she said they need to do surgery most likely remove my ovaries as its sitting on them but i will discuss with consultant at meeting in 2 weeks. Im just so scared im 39 with a daughter age 11 and its just me and her i keep thinking the worst. The consultant said you go down the fata track route even tho its a borderline tumour which has confused me more. How was surgery for you the docotr said i may need full hysterectomy as my tube is also looking damaged but i knew this already as i had my daughter thru ivf due to damaged tubes 11 years ago seh said its all most likely connected. Consultant said try not to worry as mri shows no spread of cancer its only showing a borderline tumour. Its al so confusing any advice would be much appreciated i would be very grateful xx

  • Hi so sorry you are going through this. I had a 27cm borderline ovarian cyst in 2020. Not the best time to have something serious. I had full hysterectomy both ovaries tubes cervix and omentum removed. I know it's hard not to worry but the operation was not as bad as I envisaged. The pain was not bad either I think a positive attitude helps. I probably like you had the way me I'm going to die. I then had a word with myself and decided I couldn't change what was happening and just took each day as it came. I was positive and I didn't push my body after it's not a race. I'm 2 years since my op now and unfortunately have just had. Stage 1 kidney cancer removed 31st October so just got home from hospital it's not related and once again I'm lucky there is no spread so I'm just doing the same staying positive and taking each day as it comes.sending you big hugs message me whenever you want it's always nice to hear of others positive experiences

  • Hi Jackban

    thank you so much for getting back to me. Im so sorry to hear your going thru all this again you have been on a journey I can see. Big hugs and love x thank you for you for the advice im going to do exactly that keep positive and stay strong nothing can be changed xx my consultant called me last night to say I will be attending my first appoint to discuss the operation and what he thinks should be removed and what's best for me. Hopefully I'm praying it won't be too long after that this t have my operation. He did say that there are a no spread or signs of cancer it's a 10cm cyst on my left ovarie and surgery should be the only treatment I am hoping this stays the same and I make a full recovery. I will keep this group updated as it's nice to hear peoples stories, I wish you a full healthy recovery and you continue to be the strong person you are xxxxxxz

  • Hello Everyone, 

    I'm 35 years old & had one of ovaries removed 3 weeks ago, along with a fallopian tube & an ovarian cyst which was 12cm x 25cm, containing 6L of fluid. I've processed all of this & recovery is going really well. 
     

    Here is my worry, I've been invited back to the rapid access clinic on Tuesday (just shy of 3 weeks post op) and I don't know why? I was told my cyst/cells would be sent away to the lab but I wasn't told of any follow up post operation & I have no idea what to expect. I was told my cyst was borderline & complex & that there wasn't any need for a biopsy on my other ovary. 

    If I'm honest, I hadn't thought of anything beyond the surgery as that was all that was discussed & I had been keeping positive about being able to keep 1 of my ovaries in the hope I can have children. 
     

    I'd be really grateful if anyone could tell me why I would need to see my consultant again or share any experiences they had post op. 
     

    Thanks  

  • Hi

     

    whhen I had mine removed I was called back for my results and also to check everything was going as it should be. Hopefully that's what your appointment is for sorry can't remember how long after it was but mine was a bigger op with more things being removed. Try stay -o sit ive and not worry about the what ifs. Easier said than done I know but until they tell you something you can only deal with what you know at this present time. Sending big hugs  

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  • Hi

     

    whhen I had mine removed I was called back for my results and also to check everything was going as it should be. Hopefully that's what your appointment is for sorry can't remember how long after it was but mine was a bigger op with more things being removed. Try stay -o sit ive and not worry about the what ifs. Easier said than done I know but until they tell you something you can only deal with what you know at this present time. Sending big hugs  

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