Hi Fae 

Welcome to the forum the club nobody wants to join. 

The first step is always the biggest and you've done that so again welcome. 

If you can please put down what is wrong and others will join to talk, alot of the ladies have extra beauty sleep nowadays so please don't expect a response to soon. 

Think of this as your new family to talk rant whatever. 

Billy 

Hello Billygoatt 

Thank you so much for the kind reply & help also 

Three weeks ago almost give or take now, I had had a headache,which being one who does not get them often,I dismissed it as blood pressure,as I had a heart attack last year I just felt out of sorts unsteady,and so on nothing much more,it would not go away and lasted for about 4 days I can not remember really,as my husband said I was not myself,and some thing was not quite right with me,as I for some reason went very tired,and when I put the washing in the machine I was getting more and more confused and falling about or some such So he rang the dr's as I really was not with it at all,but I just felt peculiar,and then could not speak walk and the dr said she may have had a slight stroke,so even with the covid thing she needs to be in the hospital

So,that is where I ended up for a day or two where they ran tests,and so on Mri,other scans,and so on but I really did not know what was happening in fact I felt drunk and strange but very calm it was very odd to say the least..  I had not had a stroke which was good they said,nor was my heart problem worsening etc,but they had consulted a Neurologist,seeking advice as there was something odd on one of the scans

I saw the chap who was to send me to another hospital,I was on my own all the time obivously because,you could not take anyone with you etc due to the covid,and so on,and sadly all those in hospital were very ill too,and not many staff,which made things hard for all of them They were really nice,and helpful even under all these things they have to deal with which must be awful for them all

I am waffling on apologies to you, I was sent to another hospital,but there were no beds,so I was put on steroids and so on to help,with other drugs, I still could not speak well and it was really all a blur,then after this more tests etc etc, I was told that I needed to have an operation on my head,as soon as possible,and my heart meds stopped etc I remember all of this but could not speak back to the Neuro surgeon & team etc,so they rang my husband again told him they would be operating on me,as they had found a mass on my brain,which perhaps had brought about lack of speech and what happened for a few days before admission

So I went to theatre had a crainiotomy where,I can not spell it so I am sorry all went well after 5 hours surgery etc,and when in my head they found a tumour which after testing it etc,turned out to be cancer in my brain,which may have been there some time,and I did not know

It is some thing which I can not spell so once more I apologise,I can speak now I can walk now and did well all things considered I was told that it was a stage 4 agressive type,that they had got a lot of it out,and that I would need radiothearpy when my head had healed up,which I begin in 2 weeks time,I have been back and forth to the hospital cancer unit,had a mask made pre treatment mask thing,on Friday,ready for when I begin the treatment in two weeks time

It is a grade 4 Glioblastoma, I hope I have spelled it correctly,the aim now is to control it,stop it spreading,contain it as best they can etc The out come apparantly is not too wonderful,and it is agressive or some thing and usually you do not get much time once it is found So I went to have my broken head mended,as I call it,got my speech back,walking and so on feeling much better that I was,only to be told,that it was basically incurable,but managable for a while,with the radio therarpy etc and perhaps some chemotherpy,but there was not much else that could be done

So now I am home,with a broken head in my terms,trying to make sense of it all,and I am doing o k for now,this is what happened with me,and I really do not understand yet what is going on,other than I am better talking walking and so on I am not in any pain,I am on steroids and so on to make sure the swelling stays down,and basically that is that until the next stage in two weeks time

Grade 4 Glioblastoma is what came back from the labs and I am still none the wiser,I did not google it as I was told not too just incase it upset me or some such,which I have not done,as I am not very wonderful with p c 's anyway,and also,It was better not to,and take it one bit at a time until I begin the radio thearpy thing So that's about it with it,I went in with what was thought to be a stroke or my heart wonking up,and I have cancer in my brain,even though they got alot of it,they could not get at it all etc

So Billy this is where I am up to today Thursday evening,none the wiser really,but glad they sorted out what they could for me,I am 60 so I am not young etc,and have no idea,how it will all pan out,but that said thank you so much,for your kind reply,your welcome,your help and kind ness 

And thank you also for how you put that at the end,it was so kind of you,as I feel so alone with a broken head,and so on,and I feel so sad for my husband,and I am trying my best to make him feel o k as it has hit him harder than myself

Billy Thank you for your kindness,and welcome,I hope that my post reply comes back to you,just incase I have messed up again with it,and also my deepest thanks to you for being here

Fae

Hi Fae. 

If i didn't have spell check on my phone you wouldn't understand half the things i write. 

I'm classed as uncurable (palliative care) as well, living with my uninvited guest, was diagnosed Feb 2016.

Different cancer though prostate gone to lymph nodes, spine, ribs, pelvis and a lung, main thing is keeping positive and keep fighting. 

Have to go now washing machine finished. 

Talk later. 

Billy 

Morning Billy many thanks for your reply I hope today will be a kinder day to you I am so sorry to

read what is on your page,I did find it which took me some time,but I got there in the end You have

great courage,and much to cope with it seems and here am I waffling on like I do,perhaps as usual 

making my entrance again,with my usual flair making a mess of what I truly wish to say,and generally 

wreaking havoc where ever I go That said I am so sorry,to learn this for you,and also for yours,so very

sorry indeed If I can be of any help to you then do please let me know My replies may be muddled,but

I mean well always I got 3 hours sleep last evening well Yippee,but it is better than the usual none at all

I will write again,when I can,and until then Once more many many thanks for your kindness support and

offer of help given all that you have to cope with Have the best day that you can,may it a postive one 

filled with all things far more wonderful Please convey my very best wishes to your family and of course

to your self Peace always & always in love

Hi Fae. 

I've decided you certainly know how to write long letters, bet you talk alot as well, typical female,. He he he 

Don't worry quite usto it after all the years I've been married.                                                              I'm surprised others haven't joined you yet I've noticed there are a few similar to you I'll have a look when I get a chance if that's OK with you.

If you want to look your self if you go to the beginning of your original letter just about it is a blue line if you open search and type in what is wrong it will search for you and hopefully give you a list of people. 

There something to keep you occupied for a while unless your doing the housework. 

Billy

P.s what i didn't put down about bren is she's had at least 5 TIA'S (mini strokes) and has got white matter brain decease (it's were the brain is slowly dieing.).