I am new to this.. Hello!
Has anyone lived with a family member who had/had this condition.
It is rare and aggressive, so little known about it.
Am desparate to find more about it, because my husband has it.
Many thanks in advance.
I am new to this.. Hello!
Has anyone lived with a family member who had/had this condition.
It is rare and aggressive, so little known about it.
Am desparate to find more about it, because my husband has it.
Many thanks in advance.
Hi there yes experienced it with my dad, the gold standard cisplatin chemo didn't work. Vinorelbine (sorry cant remember spelling) worked while he had the injection/vein route. When they changed to oral it stopped working. It was a long time ago though, hope treatments moved on. Mavis Nye is an inspiration she has several facebook groups, you can get some good help on there. Thinking about you Cat x
Thank you, Cat.
It is very hard at the moment when everything considered.
I will remember your comments should his pain become stronger.
Presently we can top up with Oromorph.
Thanks again. X