Sarcomatoid mesothelioma

I am new to this.. Hello!

Has anyone lived with a family member who had/had this condition. 

It is rare and aggressive, so little known about it. 

Am desparate to find more about it, because my husband has it. 

Many thanks in advance.

 

 

  • Hi there yes experienced it with my dad, the gold standard cisplatin chemo didn't work. Vinorelbine (sorry cant remember spelling) worked while he had the injection/vein route. When they changed to oral it stopped working. It was a long time ago though, hope treatments moved on. Mavis Nye is an inspiration she has several facebook groups, you can get some good help on there. Thinking about you Cat x

  • Thank you, Cat. 

    It is very hard at the moment when everything considered. 

    I will remember your comments should his pain become stronger.

    Presently we can top up with Oromorph. 

    Thanks again. X