I have just recently ( in April 2020) being diagnosed with womb cancer grade 2 endometrial adenocarcinoma. For years I have had really heavy prolonged bleeding, with lots of clots, for my periods, I have never had regular periods, and when I did I had about 1/3 periods a year sometimes periods lasted for months, with my longest one being 4 months, I was constantly on iron tablets and was told it was my thyroid and weight causing them, after suffering with my periods like this for 10/12 years I had stopped even mentioning them as an issue, I had seen gynocologists over those years and was only ever prescribed norethisterone, tranexamic acid and Mefenamic acid, and offered a coil I did not want and refused, they also could not do the Endometrial ablation surgery, due to having had 4 C sections, and said I was too young at 33 ( at that time) for hysterectomy, yes I asked for one, i was that sick of the heavy bleeding.

In September 2015 I started my longest period ever, it did not stop until January 2016 I was then 41/42, and did not have any more bleeding for 2 years, although I still had problems with anemia, still had to take iron tablets, I believed/assumed I had started the menopause, and was glad to have my periods over.

 In February 2018 I was prescribed some ovestin cream to help with menopause symptoms, was told I may start bleeding a little, I had also just found out I had diabetes at that time too. (diabetes can increase the risk of getting womb cancer, I did not know this until told recently). Within a month of using ovestin cream, I had started bleeding again, I just thought my periods had started again, I was not aware this was abnormal, so did not bother dr,  the drs always made me feel like I was wasting their time, and I did not think they would do anything else for me, I figured it was the cream causing them to start up, so I stopped using it after that first month,  and assumed they would eventually stop again, but I still continued to bleed heavy and prolonged like before, each time I was left feeling shaky dizzy and breathless from blood loss.

In February this year 2020 I'm now 45, I started bleeding again, then in march feeling like I usually do after I have finished bleeding, I had a heart attack ( probably due to heart working harder to pump blood around and diabetes causing an artery to be blocked), I had to have a stent in my heart, and also had to have a blood transfusion it was very scary in hospital covid was just getting worse, it did not feel safe,  there was a gynocolgist sent to see me, she was young and probably only just finishing her training, but she took an interest and really listened to my history, she then said she wanted to take some samples, I did not know at the time it was a biopsy she was doing until they went through everything when they were discharging me home a couple days after lockdown, I went home with loads of new medications and was not really worried, thought nothing much of tests done, until I got a phone call nearly 2 weeks later, asking me to go see them the next day, I went in there, I had to go in alone due to covid, I really wished they had let my husband in with me, for them to tell me I had cancer, they also introduced me to a Macmillan nurse. they said they would be organising a CT scan for ASAP, so they could see if it had spread anywhere, and they would ring me with this information, I got my CT scan just over 2 weeks later and a few days later I had a phone consultation with the consultant who said they would be starting me off on hormone therapy, to buy them time until I could have a hysterectomy, which they cant do because of covid and  also because of my heart, due to blood thinners I'm on and it being too soon, after heart attack, they said they would not stage my cancer until after hysterectomy.

Has anyone had to have a hysterectomy with a heart problems?,

Good news is the cancer seems to be contained in my womb ( consultants words) but it has highlighted a couple of other areas they going to keep an eye on, there are a few nodules in my lungs ( they going to monitor them for changes I will have another CT scan in 3 months) and they spoted something in my left breast, which has since being diagnosed as a fibroadenoma. I am still a little worried/ concerned about leaving the cancer in my womb until its safe to remove it, they said it would be months not weeks before they could remove it, hence the hormone therapy.  I just want the cancer removed, it feels wrong leaving it in.

Please see you gp if any of you reading this have unexplained heavy bleeding, that persists for a long time, the heavy bleeding is scary at times you are unsure on what you should do, you feel like you should be getting help but do not want to waste the drs time over a period.

In a way the heart attack probably saved me, because I would not of gone back to drs with the bleeding, I had being to see them too many times and did not think they would of done anything different to other times I had being. I do not know how long the cancer has being there, but dont believe its being there long, they have never done a biopsy before to check and cervical smears do not catch womb cancer, again I assumed that because my smear test was ok, everything was ok in that area. I believe the long gaps between my periods followed by the heavy bleeding for years has caused the cells in my womb to become abnormal over time and develop into cancer.

Hi thank you for your reply. I have a incurable brain condition that is made worse by hormone changes and every time I bleed it effects my head so badly, the heavy bleeding is horrendous isn't it. My whole family has suffered with it always, my mum had a womb scrape or something Simlar when she was younger, my sister also suffers and we all take mefanamic acid, the heavy bleeding I coped with but the irregular symptoms and pain with it I had to sort out. I'm just so angry at the doctors messing up the refereal as every minute of every day I'm in agony with my tummy. I haven't slept for so long due to being up bursting for a wee every 5 minutes literally. I'm so so tired and worried they won't see anything on the ultrasound and il be left waiting again, I want them to say ok yes it's a huge cyst and deal with it. But knowing my medical luck that won't be the case. I'm sorry for what you have been through and the waiting due to covid that must be awful :( sending hugs x