need to cry on a shoulder

Hi,

This may be my first and last post - I am not usually so sad and feeling so lonely.

My wife has many problems, she has been seriousy depressed for 18 years, she has complex mental illnesses, she has not been able to eat solid food for 4 years - neuropathy in her colon, kidney function is poor, the list is too long to even continue with. Even with all her problems she is a great fighter and anyone just meetign her would not realise she had anything wrong.

We say it is like the Greek Gods looking down and she gets singed out for them to play games - "lets see if she can cope with a broken ankle" "Oh she has so lets add depression that will get her" " She is still going, add on schizophrenia" "How does she carry on - lets stop her eating, she loves eating" and so on each time the Gods add another problem to test her strength and stamina.

A month ago she had a blood test, it  took a month to get the appointent with the doctor who said she needs to be seen following the test - and immediately she was him he requested an appointment for gastroscopy and endoscopy as she is badly anaemic has terrible pains in her stomach and he wants her checked for cancer. She has had severe pains for years so this coud have been hiding anything.

You all know what that feels like - urgently to have tests. Scheduled for Monday - today I got a phone call that all endoscopy is postponed from today with no idea when it will start up again.

My poor wife has been so scared about the virus, she has been terrified going shopping because the people seem so aggressive and selfish. She already has problems going out and meeting people. She insists I should not go out as I am older but she is in a high risk category. She comes home crying.

She has had both procedures before when th neuropathy was diagnosed, so she had to fight to cope with the fear of hving cancer and the tests which were a bad experience for her. Now I had to tell her the tests are off and so she will be worrying about possible cancer for an unknown time.

I try to keep a brave face, we have supoorted each other through so much in the last 20 years but now I am at breaking point and don't know how to cope giving her the emotiona support she needs ithout breaking down myself.

Because of her social anxiety we tend to stay in most of the time (I suppose at least the current corona virus staying at home bit won't cause us any trouble) but we have no friends, the neighbours are a miserable bunch and my children are a ong way from here and dont realy care about me anyway

So I am here just to give me a chance of feeling sorry for myself while I cry over my keyboard.

What if she has cancer - what if it is already at a critical stage and she has to wait months for any help at all?

How can either of us look on the bright side - although I suppose there are currently other options, what if one of us gets the virus - who goes first? Will anyone outside our house even know?

Now I am just thinking that I am stupid even writing this, I need to tell myself to calm down, fill up the dishwasher and brush the kitchen floor.

  • Hi there ..

    And welcome ... you have a good old rant, sometimes just writing it all down helps put things back in perspective ... your not on your own .. everyone here has a story to tell .. we hold each other up when low, and give a vertual pat on the back in things are o.k ..

    I personally had a grade 3 breast cancer in 2017 and masectomy .. lost a cousin to lung cancer in Dec 2017 .. my untie diagnosed with breast cancer 6 months after me .. we lost my great niece a few months ago to cystic fibrosis.. she was 31 .. my granddaughter is just 18 was diagnosed with acute myeloid leukaemia just over a month ago .. she's now starting her second round of chemo .. and just back from my sister's funeral who passed with dementure...

    So I know that feeling of "what can they throw at our family next"  that feeling of when will we get a break .. but I find just going from day to day .. not looking ahead .. no "what ifs"  but having to take every problem as and when it comes up... it's the only way to get through another day .. 

    I just wanted you to know, I know those feelings .. so hold on in there .. life's deff not fare .. but being brave is being scared witless but you do it any way... you can do this .. I'm here most days .. if you want a rant, or just chat .. or whatever ... sending you both caring vibes and a vertual hug... Chrissie x

  • Please allow yourself time to cry, your wife is a very lady having you so devoted to care for her.

    I am so sorry you are having to endure such a horrendous time & trauma

    You are stronger than you think, you must be absolutely knackered.

    Is there no one that can help you ?

    I think you are doing an amazing job of caring for your wife I really do.

    if I had a fraction of that support I would be a happy lady.

    please access support networks online.

    there is no shame in asking for help. 
    Stay the strong man that you are xx

  • Hi notusuallylonely

    I'm so sorry for the situation you find yourself in.

    For many of us there are bad times and these get even worse with more nasties being thrown at us. At times it seems like there is no light at the end of the tunnel.

    Take heart that you are both still together, support each other and look forward to the time when everything gets moving again.

    If you have a God try praying, if you haven't, try praying anyway, I will join you from a distance.

    Best wishes.

    STC

     

  • Hi, not lonely. (couldn't be bothered to put it all down)

    My darling wife has been diagnosed with Alzheimers and parkinsons she's also had TIA'S(mini strokes) and white matter brain decease, (where the brain is being killed very slowly) she can't support herself her arms and legs don't work properly her coordination is no good. She has trouble with her speech. i do everything for her. Have been for years. i had to promise I'd look after her when she got old she's nearly 14years older than me.

    In February 2016 i was diagnosed with prostate Cancer gone to lymph nodes, spine, ribs, pelvis and a lung been on palliative care since I'm keeping fighting and sticking to my promise to look after my wife nomatter what even after 47 years together.

    Oh and hope you do a good job on that floor, i  hate that job. 

    Best wishes.... Billy

    P.s alot of people come on forum to have a rant, just let it out writing it out does help. 

  • Thanks to those who replied to my post.

    As you will know at this time things seem to change! She was to have endoscopies Monday - Friday afternoon we had a phone call - the department has closed to sort themseves out because of the virus.

    So she can worry for an indefinite period now.

    Her mental health and depression are my great concerns right now, it needs a lot of fight to deal with cancer and she is getting very low on fight.

    Thanks again

  • Hello,

     Wow what a huge amount you have been through. I just posted on here about my own woes and not feel doubly selfish! Waiting for results is just awful, no way round it and for me nothing takes my mind off it. I hope though perhaps being able to write on here can let you offload a little as we all need that. You sound like you have amazing strength with all that you have already been through, no doubt they will get you through this too my friend x