Hello Cabbages and welcome to the forum! 
We've lots of members here who are living with incurable cancer and I'm sure that some of them will pop along to share their tips for coping day to day. In anticipation I've edited the title of your post slightly to try and help attract attention from those folks. 

I think we all understand that the waiting for tests and results can be a very difficult time and I'm sure that lots of members here will be able to empathise that it doesn't get any easier. 

We do have a section on our website about coping with cancer and hopefully you might find it helpful. It's great to hear that you've a good support system in place with your family but you're right, sometimes outside support can be very helpful. And so I guess that's where we come in! You're welcome to post here anytime to ask questions, have a chat with others, offload or have a rant. I know that the community will support you. 

We also have a team of nurses that you can call to chat to. They're available Monday to Friday 9am to 5pm on 0808 800 4040 and they would be very happy to giv eyou some support. 

I hope that you don't have to wait too long for these results and that your treatment runs smoothly. 

Keep in touch Cabbages and let us know how you're getting on. 

Best wishes, 
Jenn
Cancer Chat moderator

Hi cabbages, 

I can understand why you want to talk to others I've got prostate Cancer that's gone to lymph nodes, spine, ribs, pelvis and a lung. It's classed as palliative care. I was diagnosed Feb 2016 I'm on permanent hormone therapy and cemotherapy when neaded. I was lucky managed to work (metal fabrication and welding factory) some of the time when having cemo.

It definitely helps to keep occupied and busy. I'm now officially carer for my darling wife (Brenda) had to retire to look after her she needs 24 /7 care she has Alzheimers and parkinsons she also has had TIA's (mini strokes) and got brain decease.. So anything can happen, she can't walk without someone holding her up or feed herself.

If it wasn't for Brenda I'd really be struggling what to do. 

Can you find something to keep you busy then your consontrating on that rather than illness. If you want to talk or as jenn says a good rant or even a curse now and again your welcome hope to hear from you soon.

Billy

P.s i also have addisons it means my adrenal glands don't work and i kneed permanent medication to keep me alive. I'm normally on forum daily. Seeing if I can help anyone again it keeps me occupied. 

Hi Billy

Thank you for replying and given your history I am the lucky one. Please take care and look after yourself,  especially with the lateset Coronavirus  and hope you have a good support system there for the both of you, with all the shopping etc.

Have been to the Marsden and had chemo yesterday and the cortisol seems to be righting itself so fingers crossed, they think it could have been Dexamethosone related. My biggest fear there was I lost a cousin to Addsons so I have my fingers figners for you  and they keep it controlled.

I have a garden to loose myself in but the weather has been appalling but it is getting better so maybe I can get out there again. Being retired give you too much time to think doesn't it? But I am lucky with my super family.

Like you I am on palliative care and it took me a while to get my head round that one I can tell you.

All I think we can do is take one day at a time, but am so grateful that there are people like yourself out there for me and others.

Please take care and thank you again for replying.

Stay in touch.

Regards Lyn

Hi Jenn

Thank you for editing my heading, call it a chemo brain couldn't think how else to do it, and thanks to you have had a lovely reply.

Regards

Lyn

Hi Lyn wish i did have a good support system. Anything we want i get. A very good neighbour pops over to look after bren wile i go to appointments or shopping. 

All our family have work and family of there own so never really see them (sometimes one will pop over for an hour every couple of months.)

I've had addisons over 14years.

I've got plenty of gardening to do same as you when weather clears up I've got a mobile monitor so I can hear if bren calls for anything.

Take care and keep fighting one day at a time definitely. 

Billy xx 

Hi Billy

I have decided that to protect both Chris and myself we are going to start doing on-line shopping. Is this an option for you. At least that way are also finding out what is not in stock so don't have to waste time wandering around the shop trying to find it. Do you not get any Social Services  or carers input at all?

Our kids both work and have children of their own but are always on the phone checking up on us, one of them a toddler and doesn't live that close either, but will help when he can and his wife works from home.. Our daughter herself has a compromised immune system so we try to keep her well to, although she does work full-time but with M.E. sometimes it isn't that easy and her work aren't that helpful fortunately it doesn't kick in too often, she can go a few years then forgets she has it, then over does things which with a 9 and 5 year old is easy to do, her husband is a great help but at 36 he had to have both his hips replaced, Never rains but it pours eh? 

At least we now both have some thing nice in common and pick each others brains for the garden, we also have an allotment, and both the kids grow their own food to, so have been givien my list of seeds to put in for all of us, but given the weather has been put back a month, too warm and then no where to put them until I can get the greenhouses put back up again and move all the cuttings I did into those and take them out of the glass one.

I hope you live far enough South that you haven't had any snow, but then Riegate got some snow today and that is further South than us,  we are lucky enough not to have had any. 

Please take care.

Lyn xx

Hi Lyn, tried on line shopping couldn't figure it out (not very good on line at all). Got usto forum but been on ages now.

I didn't get the garden tidy from last year till last week pruning roses and dead leaves all in bin now if slightly warm i try to keep it tidy got grass cut two days ago. Otherwise our chihuahua (Bella) gets all wet underneath don't want her getting ill she's on meds for bladder infection. Last year vet thought she had bladder cancer. Luckily infection but its back again this year.

Live in North Lincolnshire so weather not to bad (fingers crossed).

We have a carer comes in morning to help wash bren when i say help they are not allowed to lift so i hold her up while they wash her, but it's easier than me trying to hold her up and wash her. 

We've got ceiling hoists but bren doesn't like them plus you can't wash where the sling is.. 

Glad you've got good support system, bit jealous really. But we manage been over five years now so got a routine going. 

Good to talk to someone who knows what it is like. Keep plodding on. Best wishes. 

Billy xx

P.s if I've forgotten anything I'll probably remember later definitely cemo brain,. 

Hi Lyn things aren't quite same here, bren gets Attendance Allowance and has disabled badge. Can't get anything else, got some money off council tax. With me still being mobile can't get anything even though classed as disabled.. We manage on pensions so it's not to bad.

Yes i drive bren can't. 

I've tried macmillan twice and with me be mobile and looking after bren there not bothered.. 

No nurse coming nothing, now and again occupational therapist comes to check if any gadgets might help but that's it.

You seem very organised and plenty support well done.

Keep organised and keep going.. Billy xx 

hi Billy

You can get a car sticker in your own right as well you kmow.

We seem to be better oragnised with the help we can get down here..

What about your G.P. can't they help? I know we have had to keep pushing for anything but a few phone calls does seem to do the trick.

You should have a C.N.S.  we all have to have one, I think they are also called Key Worker Nurses based  at the  hospital and that is where they come from not the Community..Your Oncology clinic should have given you one and their contact number.

Keep pushing please.

I am so glad  I have found you to, so good for the extra support when someone else knws what you are going through.

Please take care.

Lyn xx. .