Hello D

I just wanted to say something supportive to you.  I am waiting for results after having a small cancer removed from my bladder to know how big a deal this will will be so I simpathize and how that your worry will resolve

Agnes

Hello Agnes, thank your for your message.

I hope everything will be fine for you. Yes waiting is soo nerve-wracking. 

Three years ago I had heavy periods and back pain. They found a fibroid. I got it removed and a IUD placed to control my periods. After few months it fell off (one of the worst pain ever). Didn't want another one. 

I managed to go through life with still some weird cycles. One year ago had some awful pain heavy bleeding the whole thing again another fibroid. A week after I realised my right breast was heavier and could feel a lump. It took me divers gp and howyi visits an another year of me explaning how painful it is for them to accept having everything check.

I've been told that my breast is fine just a "lumpy breast" I'm still worried about it but they don't care. Didn't even had a scan... 

I had a hysteroscopy 2 weeks ago ,they first SAID the fibroid was small enough to be removed without General anaesthesia. Half way through the procedure the doctor told me it was bigger than what they thought. Also she saw that my endometrium was too thick. She didn't tell me how thick. I also didn't ask. She then did a biopsy. That was the second worst pain I ever felt. I wasn't ready prepared for that didn't know what to expect. No anaesthesia or anything. 

It's been 2 weeks now and I'm still bleeding, not sure if it's my period (was due after the surgery) or still from the procedure. I am now waiting for a letter with the surgery dates. And the results for the biopsy and full blood count test results. . I have now a rash covering some parts of my body, my gp didn't seems concern and only said fungal infection. 

The cream he gave me doesn't work. I don't know what to do now. Waiting for everything to be done. I'm getting so anxious... 

Oh D

I can see why you are anxious- medical stuff is such a pain and you have been through lots.  I hope this all resolves soon.  I am waiting for the post here.  Take good care 

A

Hello, 

Yh me too. Im only 18, ive been having headaches for years but doctors kept dismissing my headaches saying they were stress. Last year december had an mri and they found a tumour on my brain stem. Radioligists thought it was a high grade cancerous tumour. Had an operation on the 23rd of jan this year and it turned out that my tumour was benign so im very lucky i got the results of the tumour type on 7th of feb . It was a ganglioglioma which is a very rare tumour but because of that there is barely any information about and doctors cant determine a prognosis.

Hi Callum, 

Oh gosh I am sad and happy at the time for you. Having such a hard experience so young but thankfully they say it is benign. What are the follow ups? Do you needs any type of medication or more??

I found it infuriating that because people are young they are not taken seriously. Answer to someone who feels ill "you're too young for this or that" is so stupid. I know that they are the professionals ones but some of them should learn how to listen more.

I'm not talking about my lumps on my chest since then because of the judgmental look and remarks from the lady at the Breast clinic. 

Thq k you Agnes, I will keep you updated. It feels great to be able to talk

It only took 10 days for my biopsy results. Ive seen people say it took 8 weeks for them. So far ive been told that I need to have regular mri scans to monitor it. And this week wednesday talking to an oncologist to discuss possible radiotherapy. Its just annoying like I had to withdraw my uni application because of it. My surgeon told me its been there for many years, my earliest symptoms i remember were when I was  12 or 13

Yeah I heard a lot of people waiting for a long time for their results. It's the waiting game that makes me anxious. 

It's sad that you had to postpone  uni, but I guess your health is more important.

But it's crazy that nobody realised that something was wrong all those years. 

I hope everything will be OK for you. Good luck tommorow with the oncologist.