Hello D

I just wanted to say something supportive to you.  I am waiting for results after having a small cancer removed from my bladder to know how big a deal this will will be so I simpathize and how that your worry will resolve

Agnes

Hello Agnes, thank your for your message.

I hope everything will be fine for you. Yes waiting is soo nerve-wracking. 

Three years ago I had heavy periods and back pain. They found a fibroid. I got it removed and a IUD placed to control my periods. After few months it fell off (one of the worst pain ever). Didn't want another one. 

I managed to go through life with still some weird cycles. One year ago had some awful pain heavy bleeding the whole thing again another fibroid. A week after I realised my right breast was heavier and could feel a lump. It took me divers gp and howyi visits an another year of me explaning how painful it is for them to accept having everything check.

I've been told that my breast is fine just a "lumpy breast" I'm still worried about it but they don't care. Didn't even had a scan... 

I had a hysteroscopy 2 weeks ago ,they first SAID the fibroid was small enough to be removed without General anaesthesia. Half way through the procedure the doctor told me it was bigger than what they thought. Also she saw that my endometrium was too thick. She didn't tell me how thick. I also didn't ask. She then did a biopsy. That was the second worst pain I ever felt. I wasn't ready prepared for that didn't know what to expect. No anaesthesia or anything. 

It's been 2 weeks now and I'm still bleeding, not sure if it's my period (was due after the surgery) or still from the procedure. I am now waiting for a letter with the surgery dates. And the results for the biopsy and full blood count test results. . I have now a rash covering some parts of my body, my gp didn't seems concern and only said fungal infection. 

The cream he gave me doesn't work. I don't know what to do now. Waiting for everything to be done. I'm getting so anxious... 

Oh D

I can see why you are anxious- medical stuff is such a pain and you have been through lots.  I hope this all resolves soon.  I am waiting for the post here.  Take good care 

A

Hello, 

Yh me too. Im only 18, ive been having headaches for years but doctors kept dismissing my headaches saying they were stress. Last year december had an mri and they found a tumour on my brain stem. Radioligists thought it was a high grade cancerous tumour. Had an operation on the 23rd of jan this year and it turned out that my tumour was benign so im very lucky i got the results of the tumour type on 7th of feb . It was a ganglioglioma which is a very rare tumour but because of that there is barely any information about and doctors cant determine a prognosis.

Hi Callum, 

Oh gosh I am sad and happy at the time for you. Having such a hard experience so young but thankfully they say it is benign. What are the follow ups? Do you needs any type of medication or more??

I found it infuriating that because people are young they are not taken seriously. Answer to someone who feels ill "you're too young for this or that" is so stupid. I know that they are the professionals ones but some of them should learn how to listen more.

I'm not talking about my lumps on my chest since then because of the judgmental look and remarks from the lady at the Breast clinic. 

Thq k you Agnes, I will keep you updated. It feels great to be able to talk

It only took 10 days for my biopsy results. Ive seen people say it took 8 weeks for them. So far ive been told that I need to have regular mri scans to monitor it. And this week wednesday talking to an oncologist to discuss possible radiotherapy. Its just annoying like I had to withdraw my uni application because of it. My surgeon told me its been there for many years, my earliest symptoms i remember were when I was  12 or 13

Yeah I heard a lot of people waiting for a long time for their results. It's the waiting game that makes me anxious. 

It's sad that you had to postpone  uni, but I guess your health is more important.

But it's crazy that nobody realised that something was wrong all those years. 

I hope everything will be OK for you. Good luck tommorow with the oncologist.

Hey it's me again... 

It's been 3 years since I last posted. Let's just say I've been through a lot and my mental health was (still is if I being honest) extremely fragile.

Since my last post I've not been better. My rash was diagnosed as eczema and been given loads of various cream. It also put on my job being stressful.

I did use the cream and it got better,iI have flair ups here and there.

But then my lymph nodes starting to act up. I thought again it was the eczema.

But then I began massively intolerant to alcohol and the itch got worse and my lymph nodes were all over the place.

They just said I had infection. But no doctors listened to me and how I felt. At the same time i started to also have issue eating. Felt like something was stuck in my throat all the time. Got tested for H pilori. Had a round of antibiotics. And it kind of  got better. I could at least eat. And less Globus feeling in my throat. 

I finally met one Dr who actually took the time to listen and sent me for a scan for the lymph nodes . One node was alarming. I then I a whole journey through the Cancer centre they were concern it was lymphoma. After multiple tests (ultrasounds, pet scans...) it came out as négatif. I was so relieved. 

I managed to get back on track with my life but still struggling . But my job made my mental state worse.

I then last year started to have gastric issues again but worse. Couldn't eat anything, everything got stuck on my throat. I felt bloated and full all the time and was loosing weight constipated and hemmoroids. Obviously it scared me. But the Dr again didn't listened to me and said that I was worrying a lot. 

I left my job this March and it was what was needed to focus on my health. My gp sent me finally for an endoscopy and they find a hiatal hernia and small inflammations /lesions on my bowel

I finally got referred to a gastroenterologist and saw him yesterday . I'm now referred for a barium swallow, another endoscopy, a sigmoidoscopy and a chest ultrasound.

I'm Sooooo tired of my body right now. I'm just a ball of sadness and anger and depressed. I'm scared of having gastric cancer. When will it stop... 

If anybody out there had similar experiences. I'd love to know. Sorry for the long post.