Hello - diagnosed last year, need help moving forward

Obviously don't want to be here but needs must.  Diagnosed 3a bowel cancer in November, operated on in Feb and lived to tell the tale.

Looking for useful info as I move forward with a different life.  I hope perhaps I can be of some use at some point, meanwhile I need to learn.  Probably how to use this site.

 

 

  • Hello Isthatit and welcome to the forum. 
    I thin klots of members here will be able to understand that moving on with life after being diagnosed with cancer and/or going through treatment can sometimes prove challenging. On lots of different levels. I hope that some of our members will be able to share their experiences with you. 

    Is there an area in particular that you're struggling with at the moment? We do have some information on our website here that you might find of interest but I wondered if talking to one of our team of nurses might be beneficial for you too. I'm sure that they will be able to offer some support and guidance. They're available Monday ro Friday 9am to 5pm on 0808 800 4040.

    I think the important thing is to keep talking and if you want to do that here on the forum then we'll certainly be here to listen. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • Hi ISthatit i see jenn has already welcomed you. It can take a few days to get a reply some only come on now and again so don't worry you haven't been forgotten. Thares a few simular to you so hopefully they'll reply soon. Especially if you can help or at least reassure them. Hopefully you'll get the hang of the forum soon and become a regular member.. Best wishes for the future.

    Billy

    P.s just be careful of what you can do comfortably and don't overdo it we find a new normal as we go on.

    P.p.s if you want to save any messages so you don't have to search. Below blue line at top you will see" follow discussion "click on that and it will save it in your avatar folder. 

  • Hello Thatisit,

                       Pleased to hear you survived the knife,thats usually the easy bit since you just lay there leaving others to do the work.l assume that you are now into the harder phase and finding it a bit tougher than you imagined.  It will be a long haul but there is no reason why there should not be a big reward at the end of the journey.

                                  like yourself l was diagnosed initially 3a  heading towards 3b with swollen lymphs nearby,and  it subsequently rushed out to party in my liver, and l had 60% resected.

                                                                                                                                     During my recovery when not in hospital l continued to tend my livestock,work in our guesthouse,and run a low hours community post office., and built a bungalow. Although absolutely knackering,l have no doubt that this helped me through. l never went to bed  as such, but collapsed into one an awful lot. Six years on guesthouse is sold ,still have the animals and land,and do the odd jobs for others.Bowel has only just recently decided to rejoin decent society,but strategically placed portaloos,and a motorhome saw me through the effects of a stoma reversal. l named my rear facing constant companion vesuviarse which gives you some idea, and if there was an award for the most loo visits in a 0ne hour period , l would have been well in the "running". Thank goodness for loperimide and cholestrymine

                                                                         You are right in thinking you will need to make some adjustments along the way, but its different for everybody, just find out what works for you.l realised my bowel went back to that of a newborn baby and it went through all the stages of growing up,so in bowel life l am now four and a half years old.

                                                                   So the message is that whatever gets thrown at you, around you, or indeed from you, time will see you progress and move on, and life is so much sweeter than before. Someone posted on this site that  "a loud fart is better than a deadly silence" which made me hoot weith laughter since for a time back there . l was often accompanied by what sounded like a large herd of marauding elephants,which thinking about it explains why l was drawn to my picture on this page,that and the pure joy it expresses,so l hope you can pick up where you left off, find your joy, and get on  with living,

                                                                                                                                                                  David

                                                  

     

  • This post from David certainly made me laugh.

     

    I had a phone call yesterday to say that I am DPD deficient so that's put a spanner in the works as chemo is imminent. I had a really bad feeling about the treatment now I know why.

     

    Pic line fitting Tuesday. Scared about that too.bdeep joy all round.