Mother diagnosed with lung cancer WATCH & WAIT

Previously my mother was diasgnosed with bowel cancer in 2018. She had a resection. Needed no further treatment. Her year CT was last November. They found something on her lung. She had a PET scan. A week later a biopsy. Results came back as lung cancer. We were devastated. All her scan are clear. It is not secondary Thank God. Last week they rang to say the biopsy results showed it is a small, very slow growing cancer. Possibly has been there for a while. The best news we could possibly have. However yhey are undecided on treatment. Risks of surgery, side effects of radiotherapy or to ' watch & wait'. The latter terrifies me as I just want it gone asap. We have an appointment in 2 days to discuss all options. My mother is a young 72. Fit and well and completely symptom free. They said it would never have been found if she hadnt had bowel cancer. Has anyone had experience of ' watch & wait'? My anxiety is through the roof, feeling soo lucky but yet terrified x

I forgot to say.. they saw it on her first bowel cancer scan 14 months ago and thought it was scarring. As it had slightly grown that is why they decided to do the PET scan.

  • Hi everyone

    Pleased to say we have seen the Thoracic surgeon and he agrees for my mam to have surgery. He thinks they got it early so said yes lets get it out. 
    Im running with that atm. Keeping as positive as we can.

    She has her pre op  a week next Wed. Hopefully surgery soon after. Shes having right top lobe lobectomy.

    Hope your all ok

    Sarah xx

  • Hi Sarah,

    Thats excellent news! I'm so pleased for your mum and you. In her situation, a curative operation seems way better than watching and waiting! . Even though I found out after my operation that it was too late after all for it to have cured me, I still feel very lucky that I was able to have it done and I feel it has given me a head start with the treatment. For your mum, it is a different story and hopefully it will actually cure her! I wish her all the best with the operation. I've just seen that I never sent the intended reply to your question. I had a thoracotomy which is what the normally (always?) do for a pneumonectomy. Your mum's procedure should be less invasive I would imagine.

    All the best. 
    Joy xx

  • Thank you Joy.

    Did you have keyhole?

    They have said hopefully it will be keyhole but there is a chance on day to open up. They havent mentioned chemo yet so Im trying not to think too far ahead right now. 

    They said her lung function is very good but will loss 10%. 
    She admitted yesterday she has been getting a lil breathless if she changes the bed or walks for a while but at 72 i dont know if thats her age!! 

    How are you doing now? 

    Sarah xx

  •  

    Hi Sarah,

    This sounds like good news. I'm sure that you all feel more relieved now that you know that she can be operated on. If she is having her pre-op next Wednesday, it shouldn't be long after that before she gets her op.

    Please let us know how she gets on.

    Kind regards,

    Jolamine xx

  • Hi Sarah,

    No, what I had is a big cut all around the side of the rib cage towards the back,  and then two ribs are sort of jacked open and they go in and bring out the lung containing the tumour that way. It's a big op.     ( my cancer was 8x 8.2 x 6.5 cm. the surgeon said it was " a big lump" . I also had a small tumour elsewhere in the same lung.

    So if even after all that I'm fine,  (just did gentle yoga) then your mum is going to make a full recovery I'm sure.  It will just take time. The important thing is to exercise the lungs and keep everything clear. They willl give her breathing exercise to do and encourage her to walk about. Other than that though she will need to rest a lot too. I spent most afternoons on the sofa and try to get her to sleep in the day for a couple of hours.

    Still do a lot of resting.

    xx

     

  • Hi Joy

    Im soo sorry for such a late reply.. I forgot my password!!‍♀️
    Soo good to hear you did soo well after your op and continue to .

    My Mam's op is next Friday(13th) Luckily Im not superstitious. Feeling bit anxious but more than anything just want it done. Praying it all will go to plan with keyhole but guess as long as its gone thats all that matters.

    Hope your well

    Sarah xxx

  •  

    Hi Sarah,

    I'm delighted to hear that your mum now had a date for her operation and that it's fairly soon. The sooner it's done the less worry you will both have.

    I shall be hoping and praying for her on 13th.

    Kind regards,

    Jolamine xx

  • Thank you soo much Jolamine. 
    Hope all is well with you.

    Friday cant come quick enough. They are hoping to do VATS surgery. Fingers crossed all will go to plan.

    Thank you again

    Sarah x