Mother diagnosed with lung cancer WATCH & WAIT

Previously my mother was diasgnosed with bowel cancer in 2018. She had a resection. Needed no further treatment. Her year CT was last November. They found something on her lung. She had a PET scan. A week later a biopsy. Results came back as lung cancer. We were devastated. All her scan are clear. It is not secondary Thank God. Last week they rang to say the biopsy results showed it is a small, very slow growing cancer. Possibly has been there for a while. The best news we could possibly have. However yhey are undecided on treatment. Risks of surgery, side effects of radiotherapy or to ' watch & wait'. The latter terrifies me as I just want it gone asap. We have an appointment in 2 days to discuss all options. My mother is a young 72. Fit and well and completely symptom free. They said it would never have been found if she hadnt had bowel cancer. Has anyone had experience of ' watch & wait'? My anxiety is through the roof, feeling soo lucky but yet terrified x

I forgot to say.. they saw it on her first bowel cancer scan 14 months ago and thought it was scarring. As it had slightly grown that is why they decided to do the PET scan.

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    Hi Sarah,

    Mum had a mastectomy, followed by radiotherapy. When she developed secondary cancer, there was nothing they could do for her.

    That was 23 years ago. I was diagnosed with breast cancer myself 10 years after she died. It is just amazing how much diagnosis, treatment and after care have improved in that time. There is just no comparison between what she had and what I have experienced.

    Kind regards,

    Jolamine xx

  • Im soo sorry to hear that Jolamine about your Mum.I cannot imagine how hard it must have been for you.

    Wow you sound like you are doing amaaazing. 
    Thank goodness things have progressed soo much.

    Hearing positive stories gives me soo much hope ️

    Thank you Sarah xxx

     

     

  • Hi Everyone

    Had best news today. 
    It is definately not secondary bowel. It is small, 2.5 cm and slow growing and they want to do a lobectomy with curative intent. 
    Consultant said 2 surgeons were reluctant to do surgery in MDT due to her age, 72.  Having met her today he said he would not hesitate to refer her for surgery. She is fit and well. He said if they refuse he would push for 2nd opinion and " jump hoops" as he thinks she is suitable. We are "over the moon "to say the least. ECG all fine so hoping to see surgeons within 2 weeks to schedule the surgery. Not over yet but know where we are going now.. so lets do this
     

    Sarahxxx

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    Hi Sarah,

    This sounds more hopeful than you seemed to be expecting. Has your mum been given a grade for her cancer? I am so glad to hear that it is slow growing and, that her surgeon seemed willing to carry out surgery, despite her age.

    It is also good news that her heart can stand up to surgery and that her surgeon is willing to stick his neck out on her behalf if he needs to. I am sure that surgery will be a challenge for your mum, but it is amazing how much better both of you will feel once you have a pathway to follow. it is never easy when you are trying to deal with so many unknowns.

    Please let us know how you get on when you have spoken to the surgeons. we are always here for you both.

    Kind regards,

    Jolamine xx

     

  • That's such good news Sarah, you now have a plan.  I hope all goes well with the treatments.  Carol x 

  • Thank you Jolamine.

    He did not say the stage but said it was a Lipidic style Adencarcinoma. The nurse just said that means slow growing. It is 2.5 cm right now and a new primary. Everything else has come back clear, brain scan etc. There is only the one tumour. 
    Im praying they agree to the surgery. I feel soo much better already. 
    Thank you again. Sarah xxx

  • Thank you soo much Carol x

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    Hi Sarah,

    What great news that it is a new primary and not a secondary. I remember being so relieved myself when I was told that my second bout was a new primary, as I had convinced myself that it was a secondary.

    I do so hope that the surgeons will go ahead with surgery for your mum and, that you don't have too long to wait before she gets it.

    Please keep us posted.

    Kind regards,
    Jolamine xxx

  • Hi Sarah,

    I have followed your thread and just wanted to say how pleased I was to see that your mum's cancer is a new primary and she is hopefully going to have a curative operation. I had lung surgery 2 months ago and if you are fit and active like your  mum, it is perfectly manageable. I had a pneumonectomy and I already have no awareness of it at all in my daily living. 
    Good luck and best wishes to you and of course your mum.

    Joy x
     

  • Thank you Joy.

    Wow 2 months ago.. that is amazing to hear your doing soo well so quickly.

     We are hoping they carry out the Lobectomy. Its at the top of her right lung. Her lung function tests are great so hopefully it wont impact her too much.

    Did you have keyhole Joy? 

    I'm soo pleased to hear how well you are doing.. more positive vibes.

    Sarah xx