Hi, I would like to introduce myself. I am 42 with a 10 year old son and a 3 year old daughter. I finished active treatment for oestrogen positive breast cancer 18 months ago.
I was diagnosed a month back with Er+, PR+, HER2- lobular cancer stage 3, mostly based on tumour size being a whopper at c 10cm (I do worry about this and feel it is odd to be diagnosed at stage 3 given I have been in and out of the breast clinic for benign lumps over the last 5 years regularly). Anyway, have since had a mastectomy. I had a sentinel node biopsy during the surgery. The results came back positive for cancer so they did a node clearance. A week into recovery and am ok but still pretty stiff in shoulders - no doubt to be expected.
Have been told will defo be having rads but chemo position isn’t clear as yet until path report is back. Am hopeful that the nodes weren’t all positive so chemo isn’t such a forgone conclusion. But being a bit contrary equally kind of hope that maybe the chemo would be an effective treatment ( given I’ve read lobular doesn’t always respond particularly well to chemo).
Anyway completely agree that that all the waiting is a worry and energy drain. Am trying to distract myself by working from home and online shopping for various supplements.
i think the plan post rads (and poss chemo) is to put me on tamoxifen. I’m 41 and pre- menopausal. I’ve read mixed things about the side effects, so am a bit apprehensive about being bounced into menopause a decade early (according to my Mum!).
Is having overies removed a good alternative or do you still have to take meds I wonder.
So super to read about other people’s experiences. Really helps my brain to normalise what’s going on!
