Did you ever find out what your cause was? 

Hi, obviously your going through the same as me and looking answers. What your situation? 

I've done that thing what we all tell everyone not to do and fell down a Google hole! 

So Ive never had stomach issues, but since May of this year Ive been having on and off really bad pains (feels like trapped wind type cramps but x10). Ive lost control over my bowels twice in this period of time as well and other times it feels as if I'm not finished...also blood in my stool. Reading some of you are saying about headaches and fatigue which I have but putting down to just current life. I had three lots of bloods done that all came back negative so I ended up doing a stool sample. This has come back abnormal "Feacal Calprotectin Content > 6000ug/g [<50.0] Consistant with active bowel inflamation suggest urgent gastro referral"

Looking to see if anyone else had had anything like this or results so high? Or even if this is high as I cant work it out!

Im currently waiting for the hosptial to call me back as I've had a call to say the Consultant has advised they want me in for a colonoscopy.

My reading was 250 but I have seen a lot of people with really high readings. Coloscopy is best way to check the cause. I think I'm suffering from an autoimmune response because i have a whole lot going on at the moment. Feeling so awful with pain everywhere. Hope you get colonoscopy soon and you get the treatment you need.

I'm going through similar as few on here calprotectin 260 just not feeling right constant cramping stomach pain and terrible back pain feeling tired.. started after my second covid jab previously fit and healthy. Been told probable IBD but need to redo test don't know why when level high and have symptons. Agree it's awful just want to know what's going on hopefully we will get sorted soon

My Gastroenterologist told me it is not possible to diagnose IBD without colonoscopy. He said IBD is a possibility but he's used to seeing much higher levels with IBD. He told me to stop taking any Ibuprofen and then redo stool sample in a months time and has booked me in for a colonoscopy in September now

Thanks think I will feel happier when booked in for colonoscopy hopefully be soon 

Hoping we all get the all clear and can get treatment for whatever symptoms everyone is having :-)

Had the Colonoscopy today, thankfully all clear and no signs of any inflammation. Did take away a 3mm flat Neoplastic Polyp near rectum that's she said is nothing at all to worry about. Prep was a bit yuk. Tried the colonoscopy without sedation or pain relief, as I'm quite small the first turn around rectum was to difficult so gave me sedation and pain relief and there after didn't even realise it was being done really. Also had a few internal piles. So glad it's over, feel drained tonight. 

Hi did you find out what was causing your issues? Hope you are well X

Hey there! Just to let you know mine came back as over 6000 too, getting a colonoscopy this month. How did you get on?

Hi I'm 29 and FC came back as 1017 I'm still waiting on my referral to come through it was sent as 2 weeks urgent and 2 weeks was up yesterday so they must have a big back log maybe? I have suffered for many years on and off but I had severe severe stomach pains which resulted in diarrhea and then the next morning blood on its own twice in that day and then the next day blood in stool. So I'm not sure what it could be but still waiting hopefully hear off something soon 

Hi I'm 29 and FC came back as 1017 I'm still waiting on my referral to come through it was sent as 2 weeks urgent and 2 weeks was up yesterday so they must have a big back log maybe? I have suffered for many years on and off but I had severe severe stomach pains which resulted in diarrhea and then the next morning blood on its own twice in that day and then the next day blood in stool. So I'm not sure what it could be but still waiting hopefully hear off something soon 

Hey yes there is a big backlog - I only got an NHS appointment today! (I went private though as I didn't want to wait). The doc found ulcers in my lower colon and thinks I have IBD. I've been taking salofalk and that's been helping loads and thinks seem to have been getting back to normal with it after a few weeks, so fingers crossed! I would recommend doing your own research on what could help you - it could be inflammation in the body which diet can help with!

Hello I am so glad for you that you've been seen and you are taking something that reduces  your symptoms! Especially before Christmas too so you can enjoy it without that worry. Thank you for your advice I've still not been seen yet and still waiting xx

Oh no, I hope you get seen as soon as you can! Are you still getting the same symptoms? I've been diagnosed with ulcerative colitis now, and the blood and mucus comes from ulcers. Chances are if you're not getting any mucus passing then it could be something else – something innocent like fissures or piles! I found I could tell the difference because I would get excruciating stomach pain every time I needed to go which doesn't happen with those two things.

I hope so too, it seems to be taking a long time. I had one really bad episode of excruciating pain and loose stools and then the next morning just blood was passing and then mucus after that the bloody stools. I get really bad wind and stomach pains, feel sick, loose stools, constipation and bloody stools etc periods throughout the day/weeks it varies. 
I'll just have to see what they say I've rang and tried to chase it apparently they've fast tracked me 2 weeks for an urgent appointment but it's already been nearly 5. Just blaming on covid.

I'm glad you've got a diagnosis now that's something so they can start treating you with the right medication :-) xx

You poor thing, that sounds like me. Maybe see if your GP will give you a salofalk enema or any kind of anti inflammatory enema as that helped me as I was waiting to be seen - and stopped damage progressing. Also avoiding wheat and dairy helped too. And caffeine. Hope you get seen soon!

I'll ask about that, thank you so much for your advise! I hope so too fingers crossed it won't be long, have a lovely Christmas xx

Quick message from me while I pass the time in hospital.

I was diagnosed in 2003 with Crohn's. Not sure on calprotectin levels, controlled with various meds from steroid to biologics to blessed imodium. I had multiple ulcers that raptured. Took a long time for me to recover and go into remission. Skip forward to 2017 and I'm being prepped for a left-hemicolectomy (removal of the left 3rd of the bowel) as the ruptured ulcers scarred up and with nothing to push the scars apart like on the external skin surface, the scars shrank until my large intestine was a few millimetres wide. Much drama later and I went into a 5yr remission almost to the day.

5 weeks ago diarrhea hit and nothing could stop it. Imodium gave me some control but 7 toilet trips a day, dropping 14lb and feeling like a lorry hit me when I wake up, I go to the hospital 

They admit me, many attractive and awkward samples later I have a Crohn's flare with calprotectin levels in excess of 3500. Steroid treatment iniaited and I should be out in a few days with a new management plan to boot.

Short story, calprotectin can be high for many reasons, if you were tested without having diarrhea but recently can the flu. Yes it would be in the several hundred... Maybe less than 400. Elevated calprotectin levels over a sustained period of normal life, that's when you should be chatting with a gastroenterologist and letting James Cameron and his team have a look around you. 

Regular colonoscopy's keeps a (stink) eye on the gut health, diet control gives you stability throughout your life, drugs do work (prescribed ones*) and not being embarrassed to discuss your issues with someone qualified is always a great (and sometimes funny) idea.

The 2week wait that GP's are doing now is because of COVID delays and "normal" issues are being flagged as high priority normal issues. Which is a good thing! Just don't panic, if it was clearly a cancer symptom, a 2WW would be cut very short.

Happy pooping everyone

Hi I know this post is over a year old but I've just been going through all the comments about calprotectin levels I'm having issues at the minute with my bowels 

this all started after having my second child January this year via c section I started to get constipated but thought that was normal after having a baby which I know it can be as I was like this with my daughter but things started to get worse this time 

every morning I get stomach cramps and urgency to go to the toilet and the pain will only go once I've been but I have been getting brow mucus after every bowel movements then I was getting urgency to the toilet with loose bowels and blood I went to the doctors he oreded a stool test to check for inflammation it came back abnormal at 157 so not massively highly but he said there is something going on with the symptoms I'm having and the stool tests so he said repeat it again on 2 weeks time 

anyway all my symptoms disappeared for 2 months I was back having normal bowel movements but 2 weeks ago I have now got back ache cramps urgency mucus with bowel movements not clear mucus browny ‍♀️ I rang my GP back and he said I will need to do another stool test which I have and now I'm just waiting on my results and I should get them this week at some point he did refer me the first time to have a colonoscopy but currently pregnant and the hospital called me last week and said they don't like doing colon on people who are pregnant as it can causes probslem misscarges so I need to wait till I've and my baby and that's not till January I'm worried sick I'm sick of the back ache stomach cramps and the urgency constipation lose bowels mucus and more ......

suppose I'll have wait and see what my results are this week he thinks it's some for of IBD but no one knows that until I have a colonoscopy ‍♀️ Just hope it's nothing to serious I have 2 small children and I'm currently 5 months pregnant 

x

What uve been told there is utter bollox u dont have to have mucus at all!