Did you ever find out what your cause was? 

Hi, obviously your going through the same as me and looking answers. What your situation? 

Went private in December and specialist said colonoscopy, I did ask for virtual one which he said was fine under nhs but they didn't contact me until April and may only giving me 5 days notice which due to work I couldn't do, also had no symptoms at all. 
 

not taking medication, I did do probiotics but made me extra gassy. Internal pils you can't always tell or feel by when I took Sheriprotoct that cleared them up. Normally raised Calprotectin is linked to one form of IBD. Yeah scopes are taking forever at the moment due to backlog. Saying that I'm dreading Tuesday week 

My doctor didn't give me much details, getting bloods done on Wednesday so have a week of waiting for results on that. I'm going to private next Monday with the test results. The scope private is still gonna be 10 weeks they said. I'm hoping the inflammation is down and is was just a virus or something. 

Not looking forward to a scope but can't stick this worry. 

Keep me posted. It's nice to speak to someone else 

Bloods aren't always a good indicator with bowel, I have had 4/5 lots over last year and all have been normal (one set late back). Your levels of Calprotectin don't seem crazy high hopefully an infection or something as you say.

Yeah like wise, I hope you get some good news and fast results to help put your mind at ease. 

Hi. 
 

im pretty much going through the same at the moment except my entire body hurts. Joints, muscles etc. My level is 250. I'm usually healthy and have been feel awful for the past couple of weeks. Constant head and feeling puffy. Apparently all may be due to my bowel. It's awful. Hope you all find some answers soon

Hey dude you're not alone. I had high levels too and have been urgently referred to gastroenterology and endocrinology. Constantly fatigued. Can barely do anything and lost quite a bit of weight. Blood in stool.  Hopefully find answers soon. Hope you do to

So awful. The fatigue is unreal. Sometimes comes on all of a sudden too. I have inflammation in all my joints but my whole body hurts if you press. My scalp is even sensitive. Hoping we all get this sorted soon. Will post any results I get. I'm going private so hopefully some answers soon. 

It's awful isn't it. Not knowing and the worry is half the battle. Havent been able to do anything for weeks. Barely leave the couch. hope you get sorted going private. 

Yeah I'll post results too. My bloods are all normal but my inflammatory markers were high in my stool so prompted urgent referral. 

All the best 

The worry is awful and probably making fatigue worse. 
 

Do you have colonoscopy booked? I was meant to have mine today but had such a bad headache I couldn't face the prep so have rescheduled. Even though my head is still so sore, I really wish I had just done it now 

I think they are doing initial observations and then probably will get me booked in for one if it warrants it. 

Yeah I definitely think you should re book one just to be on the safe side and put your mind at ease

I've done that thing what we all tell everyone not to do and fell down a Google hole! 

So Ive never had stomach issues, but since May of this year Ive been having on and off really bad pains (feels like trapped wind type cramps but x10). Ive lost control over my bowels twice in this period of time as well and other times it feels as if I'm not finished...also blood in my stool. Reading some of you are saying about headaches and fatigue which I have but putting down to just current life. I had three lots of bloods done that all came back negative so I ended up doing a stool sample. This has come back abnormal "Feacal Calprotectin Content > 6000ug/g [<50.0] Consistant with active bowel inflamation suggest urgent gastro referral"

Looking to see if anyone else had had anything like this or results so high? Or even if this is high as I cant work it out!

Im currently waiting for the hosptial to call me back as I've had a call to say the Consultant has advised they want me in for a colonoscopy.

I've done that thing what we all tell everyone not to do and fell down a Google hole! 

So Ive never had stomach issues, but since May of this year Ive been having on and off really bad pains (feels like trapped wind type cramps but x10). Ive lost control over my bowels twice in this period of time as well and other times it feels as if I'm not finished...also blood in my stool. Reading some of you are saying about headaches and fatigue which I have but putting down to just current life. I had three lots of bloods done that all came back negative so I ended up doing a stool sample. This has come back abnormal "Feacal Calprotectin Content > 6000ug/g [<50.0] Consistant with active bowel inflamation suggest urgent gastro referral"

Looking to see if anyone else had had anything like this or results so high? Or even if this is high as I cant work it out!

Im currently waiting for the hosptial to call me back as I've had a call to say the Consultant has advised they want me in for a colonoscopy.

My reading was 250 but I have seen a lot of people with really high readings. Coloscopy is best way to check the cause. I think I'm suffering from an autoimmune response because i have a whole lot going on at the moment. Feeling so awful with pain everywhere. Hope you get colonoscopy soon and you get the treatment you need.

Hey there! Just to let you know mine came back as over 6000 too, getting a colonoscopy this month. How did you get on?

Hi I'm 29 and FC came back as 1017 I'm still waiting on my referral to come through it was sent as 2 weeks urgent and 2 weeks was up yesterday so they must have a big back log maybe? I have suffered for many years on and off but I had severe severe stomach pains which resulted in diarrhea and then the next morning blood on its own twice in that day and then the next day blood in stool. So I'm not sure what it could be but still waiting hopefully hear off something soon 

Hey yes there is a big backlog - I only got an NHS appointment today! (I went private though as I didn't want to wait). The doc found ulcers in my lower colon and thinks I have IBD. I've been taking salofalk and that's been helping loads and thinks seem to have been getting back to normal with it after a few weeks, so fingers crossed! I would recommend doing your own research on what could help you - it could be inflammation in the body which diet can help with!

Hello I am so glad for you that you've been seen and you are taking something that reduces  your symptoms! Especially before Christmas too so you can enjoy it without that worry. Thank you for your advice I've still not been seen yet and still waiting xx

Oh no, I hope you get seen as soon as you can! Are you still getting the same symptoms? I've been diagnosed with ulcerative colitis now, and the blood and mucus comes from ulcers. Chances are if you're not getting any mucus passing then it could be something else – something innocent like fissures or piles! I found I could tell the difference because I would get excruciating stomach pain every time I needed to go which doesn't happen with those two things.

I hope so too, it seems to be taking a long time. I had one really bad episode of excruciating pain and loose stools and then the next morning just blood was passing and then mucus after that the bloody stools. I get really bad wind and stomach pains, feel sick, loose stools, constipation and bloody stools etc periods throughout the day/weeks it varies. 
I'll just have to see what they say I've rang and tried to chase it apparently they've fast tracked me 2 weeks for an urgent appointment but it's already been nearly 5. Just blaming on covid.

I'm glad you've got a diagnosis now that's something so they can start treating you with the right medication :-) xx

You poor thing, that sounds like me. Maybe see if your GP will give you a salofalk enema or any kind of anti inflammatory enema as that helped me as I was waiting to be seen - and stopped damage progressing. Also avoiding wheat and dairy helped too. And caffeine. Hope you get seen soon!

I'll ask about that, thank you so much for your advise! I hope so too fingers crossed it won't be long, have a lovely Christmas xx

Quick message from me while I pass the time in hospital.

I was diagnosed in 2003 with Crohn's. Not sure on calprotectin levels, controlled with various meds from steroid to biologics to blessed imodium. I had multiple ulcers that raptured. Took a long time for me to recover and go into remission. Skip forward to 2017 and I'm being prepped for a left-hemicolectomy (removal of the left 3rd of the bowel) as the ruptured ulcers scarred up and with nothing to push the scars apart like on the external skin surface, the scars shrank until my large intestine was a few millimetres wide. Much drama later and I went into a 5yr remission almost to the day.

5 weeks ago diarrhea hit and nothing could stop it. Imodium gave me some control but 7 toilet trips a day, dropping 14lb and feeling like a lorry hit me when I wake up, I go to the hospital 

They admit me, many attractive and awkward samples later I have a Crohn's flare with calprotectin levels in excess of 3500. Steroid treatment iniaited and I should be out in a few days with a new management plan to boot.

Short story, calprotectin can be high for many reasons, if you were tested without having diarrhea but recently can the flu. Yes it would be in the several hundred... Maybe less than 400. Elevated calprotectin levels over a sustained period of normal life, that's when you should be chatting with a gastroenterologist and letting James Cameron and his team have a look around you. 

Regular colonoscopy's keeps a (stink) eye on the gut health, diet control gives you stability throughout your life, drugs do work (prescribed ones*) and not being embarrassed to discuss your issues with someone qualified is always a great (and sometimes funny) idea.

The 2week wait that GP's are doing now is because of COVID delays and "normal" issues are being flagged as high priority normal issues. Which is a good thing! Just don't panic, if it was clearly a cancer symptom, a 2WW would be cut very short.

Happy pooping everyone