Did you ever find out what your cause was? 

Hi, obviously your going through the same as me and looking answers. What your situation? 

Last August had bad Constiaption for a while with blood etc after taking Amatriplline. Had mild Constiaption on and off for 2 months then in December looser stools and stomach aches mainly below belly button and caused by gas. Had numerous home fit tests and Calprotection/Lactoferrin tests all negative (sheriprotect got rid of bleeding spots). 7 months of being fine. Few weeks ago stomach felt off, then last sat looser stool and almost feels like I'm back in that 3/4 weeks in December. Gassy again always starts in easy hours looser stools although not all time. Oddly had a postive fit test but 4/5 since that are normal (did have a barium swallow a few days before they said could have caused a false positive). Calprotectin test normal but oddly Lactoferrin has a shadow over line of home test so hard to say that's a positive as normally both raised together. I have a Colonoscopy Tuesday week. What's your symptoms? 

Sorry to hear, did you see the doctor last Aug/Dec time?

Are you going private or did you get seen quickly enough through NHS? 

You seem to be taking medication, did you go give them you? 

For a while I had an itchy bum and some bleeding when pooing, but I googled the symptoms and put it down to piles. But last month it was really sore to poo and then after I felt like I still needed to go. Then I had a stomach bug at work and felt like crap for a few days. So and I  decided to see the doc . 

She checked me over and said I had a slight tear from pushing to hard but no sign of haomroids or piles. She asked for a stool sample and it came back 120 calprotein so she has asked for a colonsecope to see why. 

I feel grand now, no symptoms, I've been taken orange juice and high fibre diet to keep my  stool so my butt can heal. 

Just got anxiety about what it all means. I rang and asked how long so the scope and they said like 10 months. So going private. 

Went private in December and specialist said colonoscopy, I did ask for virtual one which he said was fine under nhs but they didn't contact me until April and may only giving me 5 days notice which due to work I couldn't do, also had no symptoms at all. 
 

not taking medication, I did do probiotics but made me extra gassy. Internal pils you can't always tell or feel by when I took Sheriprotoct that cleared them up. Normally raised Calprotectin is linked to one form of IBD. Yeah scopes are taking forever at the moment due to backlog. Saying that I'm dreading Tuesday week 

My doctor didn't give me much details, getting bloods done on Wednesday so have a week of waiting for results on that. I'm going to private next Monday with the test results. The scope private is still gonna be 10 weeks they said. I'm hoping the inflammation is down and is was just a virus or something. 

Not looking forward to a scope but can't stick this worry. 

Keep me posted. It's nice to speak to someone else 

Bloods aren't always a good indicator with bowel, I have had 4/5 lots over last year and all have been normal (one set late back). Your levels of Calprotectin don't seem crazy high hopefully an infection or something as you say.

Yeah like wise, I hope you get some good news and fast results to help put your mind at ease. 

Hi. 
 

im pretty much going through the same at the moment except my entire body hurts. Joints, muscles etc. My level is 250. I'm usually healthy and have been feel awful for the past couple of weeks. Constant head and feeling puffy. Apparently all may be due to my bowel. It's awful. Hope you all find some answers soon

Hey dude you're not alone. I had high levels too and have been urgently referred to gastroenterology and endocrinology. Constantly fatigued. Can barely do anything and lost quite a bit of weight. Blood in stool.  Hopefully find answers soon. Hope you do to

So awful. The fatigue is unreal. Sometimes comes on all of a sudden too. I have inflammation in all my joints but my whole body hurts if you press. My scalp is even sensitive. Hoping we all get this sorted soon. Will post any results I get. I'm going private so hopefully some answers soon. 

So awful. The fatigue is unreal. Sometimes comes on all of a sudden too. I have inflammation in all my joints but my whole body hurts if you press. My scalp is even sensitive. Hoping we all get this sorted soon. Will post any results I get. I'm going private so hopefully some answers soon. 

It's awful isn't it. Not knowing and the worry is half the battle. Havent been able to do anything for weeks. Barely leave the couch. hope you get sorted going private. 

Yeah I'll post results too. My bloods are all normal but my inflammatory markers were high in my stool so prompted urgent referral. 

All the best 

The worry is awful and probably making fatigue worse. 
 

Do you have colonoscopy booked? I was meant to have mine today but had such a bad headache I couldn't face the prep so have rescheduled. Even though my head is still so sore, I really wish I had just done it now 

I think they are doing initial observations and then probably will get me booked in for one if it warrants it. 

Yeah I definitely think you should re book one just to be on the safe side and put your mind at ease

I've done that thing what we all tell everyone not to do and fell down a Google hole! 

So Ive never had stomach issues, but since May of this year Ive been having on and off really bad pains (feels like trapped wind type cramps but x10). Ive lost control over my bowels twice in this period of time as well and other times it feels as if I'm not finished...also blood in my stool. Reading some of you are saying about headaches and fatigue which I have but putting down to just current life. I had three lots of bloods done that all came back negative so I ended up doing a stool sample. This has come back abnormal "Feacal Calprotectin Content > 6000ug/g [<50.0] Consistant with active bowel inflamation suggest urgent gastro referral"

Looking to see if anyone else had had anything like this or results so high? Or even if this is high as I cant work it out!

Im currently waiting for the hosptial to call me back as I've had a call to say the Consultant has advised they want me in for a colonoscopy.

My reading was 250 but I have seen a lot of people with really high readings. Coloscopy is best way to check the cause. I think I'm suffering from an autoimmune response because i have a whole lot going on at the moment. Feeling so awful with pain everywhere. Hope you get colonoscopy soon and you get the treatment you need.

Hey there! Just to let you know mine came back as over 6000 too, getting a colonoscopy this month. How did you get on?

Hi I'm 29 and FC came back as 1017 I'm still waiting on my referral to come through it was sent as 2 weeks urgent and 2 weeks was up yesterday so they must have a big back log maybe? I have suffered for many years on and off but I had severe severe stomach pains which resulted in diarrhea and then the next morning blood on its own twice in that day and then the next day blood in stool. So I'm not sure what it could be but still waiting hopefully hear off something soon 

Hey yes there is a big backlog - I only got an NHS appointment today! (I went private though as I didn't want to wait). The doc found ulcers in my lower colon and thinks I have IBD. I've been taking salofalk and that's been helping loads and thinks seem to have been getting back to normal with it after a few weeks, so fingers crossed! I would recommend doing your own research on what could help you - it could be inflammation in the body which diet can help with!

Hello I am so glad for you that you've been seen and you are taking something that reduces  your symptoms! Especially before Christmas too so you can enjoy it without that worry. Thank you for your advice I've still not been seen yet and still waiting xx

Oh no, I hope you get seen as soon as you can! Are you still getting the same symptoms? I've been diagnosed with ulcerative colitis now, and the blood and mucus comes from ulcers. Chances are if you're not getting any mucus passing then it could be something else – something innocent like fissures or piles! I found I could tell the difference because I would get excruciating stomach pain every time I needed to go which doesn't happen with those two things.