I want to say hello and ask others who are having RCHOP if they are finding it a hard road to travel. I am sure I will get well I really believe that but getting through all the tummy upsets the needles and ulcers is hellish.
I am needle phobic it doesnt help and last week my helpline was not helpful so I am nervous to ring again. She was probably having a bad day they are only human after all but it has dented my confidence. When we had our introductory talk the specialist nurse reeled off all these scenarios ending each with 'Call the helpline' filling me with confidence to know help would be there. And it was first cycle I became Nutropenic and was whisked into hospital for two nights pumped full of antibiotics and sent home. They said we are treating you for Nutropenic Sepsis but thankfully all the tests came back negative. My nutrophill count was on the floor 0.05. After my 2nd cycle I was sent home with 5 injections of Filgastrim which my very competent husband injected into my tummy. So why do I feel so ill? I thought I would not feel so bad but I do. In and out of the toilet day and night its getting me down. Generally I am a happy go lucky type but all I want to do is cry.
