Hi there and welcome ...

Just jump right in ... as there's lots of people with different cancers and different treatments.... must admit, I don't know about yours .. so hopefully you'll get others pop on who know more then me ...  

Yep lots of us are used to sleepless nights ... and worried about results and tests ... that's the one thing we have in common .. just need to keep as busy as possible.... 

Let us know how you go ...  Chrissie x

Hi chrissie 

Thanks for the welcome, mycosis fungoides is a rare skin lymphoma which apparently still not enough information is known about. 

I think I have a long road ahead and will do my utmost to stay positive and normal especially for the sake of my family. 

Thanks again 

Just a update  

Started methotrexate about two weeks ago and already see a big difference in my overall health. 

All tumors are healing with only two stubborn ones taking time to disappear. 

The all over redness ( erythroderma) has also gone. 

Still a little nausea remains and feeling cold but overall a lot better. 

Once the methotrexate stops I think either Puva treatment will begin and radiotherapy on the long finger .

Was staged a #3 then #2b by another doctor so I will just have to see what happens next. 

All the best and thanks for reading  

Hi morsekey noticed chrissie welcomed you to the forum the club nobody wants to join,. So glad your treatment is doing good and thanks for keeping in touch and us up to date with progress best wishes for the future.... 

Billy 

Thanks Billy.