Hi I  have long segment barretts.in September two years ago I had a surveillance endoscopy which confirmed long segment Barretts and a small nodule.in November I had another endoscopy which confirmed  this nodule was cancerous(adenocarcinoma).things moved pretty quickly after this and I then had a ct scan to see if the cancer had  spread which luckily it hadnt.then I was scheduled for an emr at the end of december.but the nodule wasn't visible at this time and may have been removed by all the biopsies taken of it.however at the next meeting it was decided that I would still have an emr in february to remove a deeper section of tissue to make sure all the nodule had been removed.I wasn't seen for eight months after this and biopsies showed I had a lot of high grade dysplasia.I have now had three sessions of halo ultra (rfa) and one argon plasma coagulation with another one due in a couple of months.hope this helps give you an idea of possible timelines.although every hospital is different.I hope everything works out well for you.

Best wishe james

Hi I  have long segment barretts.in September two years ago I had a surveillance endoscopy which confirmed long segment Barretts and a small nodule.in November I had another endoscopy which confirmed  this nodule was cancerous(adenocarcinoma).things moved pretty quickly after this and I then had a ct scan to see if the cancer had  spread which luckily it hadnt.then I was scheduled for an emr at the end of december.but the nodule wasn't visible at this time and may have been removed by all the biopsies taken of it.however at the next meeting it was decided that I would still have an emr in february to remove a deeper section of tissue to make sure all the nodule had been removed.I wasn't seen for eight months after this and biopsies showed I had a lot of high grade dysplasia.I have now had three sessions of halo ultra (rfa) and one argon plasma coagulation with another one due in a couple of months.hope this helps give you an idea of possible timelines.although every hospital is different.I hope everything works out well for you.

Best wishe james

Hi James,

Thank you for sharing your experience.  It sounds as though the medical profession moved very quickly when you were first diagnosed and are closely monitoring you on an ongoing basis.  Have you found the treatment onerous?  Did you have a hiatus hernia?

I have today been advised that I should get a phone call tomorrow to discuss a treatment plan.  To date none of the biopsies taken have proved to be cancerous, for which I am very grateful, but I seem unable to establish how urgent treatment for High Grade Dysplasia is.

I wish you well for the future - please keep me updated on your progress.

Kind regards

Sparkie

Hi sparkie 

Yes I do have a hiatus hernia and I'm now on hi dose ppi 40mg esomeprazole twice a day.i feel so lucky that the cancer was caught early.you can never guarantee that it wont come back but so far so good.most people with barrett's never progress to cancer but in my opinion high grade dysplasia is quite an urgent thing to be removed.i was told that the progression is barrett's then low grade dysplasia then high grade  dysplasia and possibly cancer.if you have an emr then you will probably have some rfa treatment as well unless you're dysplasia is very small.the bonus with rfa is that it removes the barrett's along with any dysplasia. Have you been told if you're barrett's is short segment or long.on a positive note you're dysplasia has been  found early and should be able to be treated successfully. 

Best wishes james

Hi James,

I'm incredibly lucky.  The Barratt's was only found because of investigtions for a 5cm paraoesophageal hiatus hernia.  The Barratt's measures C0 & M1 on the Prague scale, (confirmed by 3 different gastroscopies) the smallest measurement possible. 

Did you have surgery on your hiatus hernia? 

Kind regards

Sparkie

Hi sparkie 

No surgery for me.im told it's a last resort and I haven't  been  offered the option of surgery anyway.let me know how you get on.

Best wishes james