Ileostomy reversal next month

Hello,

I am new to the site today.

I hope everyone is doing as well as is possible today!!

I currently have a stoma after having bowel cancer which was unsuccessfully removed im lucky to say late June.

Been slowly getting use to the stoma since then. It started quite erratically although its slightly more consistent and touch would a little less fierce although i still tend to have tp empty it twice a night.

Im waiting on a ct scan and then hopefully moving forward to the reveral mid Oct. 

I know its been spoken about on the site a lot but im looking for some help in what to expect. I realise it can be a very difficult period that lies in wait.

Is it set in stone?

I guess everyones bowel is different and it can depend on treatment. My radiotherapy may possibly affect it and because it was in such a " low position "

Ive looked at things i will need. Underwear to help, creams and such things. Like getting the news of cancer i suppose nothing can prepare ones self for things such as this.

I know it is also perhaps unrealistic to ask but im hoping to gauge time frames for perhaps having no control of bowel movements and what might be a realisitc time frame to get control and manage potential BM issues. Im self employed and have been off work since March and cant not work indefinitely. I have an 18 month old child to provide for not that my surgeon seems bothered and seemed to question why i was jumping for joy when i saw him on Monday. I am of course extremely grateful but i have a life and also my father was just diagnosed as terminally ill a couple of weeks back. My surgeon dismissed these things rather unfairly i thought. 

I also have a family trip with my wife and son abroad booked for late July next year. Is it unrealistic that i will manage that?

Id be grateful to anyone that would be kind enough to share experiences,  advice, info or any info on all of the above.

Many thanks for taking the time reading this. Much obliged 

 

  • Hello Lochlomand and welcome to the forum. 

    I'm sorry to hear about your diagnosis and surgery earlier this year and of course the recent news about your Dad's health has been difficult too. 

    I've had a look through the forum and found this response by [@MrsMill]‍ which may be of interest to you and also this post by [@venger]‍. 

    It's difficult to be specific about time frames and when you may have the reversal as everyone's cancer is different.  The surgeon would consider a patient for a reversal if there was enough rectum left intact, if there was good anal sphincter muscle control, that there was not any active disease in the bowel and rectum and if the patient was in good health.  The doctors also would not consider doing a reversal if a patient was having or being considered for chemotherapy.

    There is some information written by a UK organisation called Bladder and Bowel which has some information on having an ileostomy reversal.  The Bowel Cancer charity Bowel Cancer UK also has some information here. You can find information on the NHS website about having a reversal of an ileostomy


    On the whole I think it is a much more straight forward procedure then having an ileostomy in the first place but patients can be troubled by diarrhoea in the first few weeks until the bowel has settled down.

    As you feel that your surgeon hasn't been particularly helpful in disucssing some of your questions then probably the best person to talk to is your nurse specialist. Hopefully they will be able to answer some of your questions. 

    I hope that some of this information helps and that you're given the go ahead for your surgery soon. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • Hi Lochlomond. Great u are doing better. Can also add to my previous post, my stoma had a mind of its own which had problems for me but I was never up emptying the bag during the night except when it leaked. I also emptied before bed too, just in case . I kept a diary of what I ate which helped a lot. Maybe might help u get a night's rest if u not already doing that . I agree with jenn though, that everyone is different. I was able to have my reversal with mm to spare but have had more problems since the reversal. Always happy to help with advice if u need it.

    Venger