Hi Sam 

Am glad you are back n feel better, so happy for you.atleast hamster is gone now leaving us without boob. Oh. That was my only asset coz my lower body its shape is not well so now am like oh oh ok. Anyway worth living.

I went for pathology results unfortunately didn't respond completely with chemotherapy, lymph nodes clearance  of 10 and 6 were positive so surgeon said I will do chemotherapy again which now meeting oncologist on Wednesday for treatment plan. It's hard to think of chemotherapy again but coz I want to live, can't do otherwise, so as of now no radiation yet until am done with this. We will see what oncologist suggests,  ivf one is not easy at all don't want Hickman line again it's not good.

   At first last year was only 1 node involved but during surgery 6 means cancer was still progressing in front of chemotherapy yet primary tumour was reduced  and all period of waiting for surgery didn't grow at all could notice.anywsy there is light at end of tunnel. 

Am glad your pal came bless her n Adrian, this is time they prove their love.Not by mouth but action. Alot do not come close when in such season but bless them all.

Also glad exercising go on well, now I feel much better although not completely,  I feel myself am still healing but coz am alone have to do all things like normal with just a wish my family member was here with me then I could definitely rest.

Have good day Sam ,may you recover well n God bless

Nel

Nel

Sorry to hear that you have to have more chemo and that, like me, the cancer has spread to the nodes. It may be that they'll give you oral chemo in tablet form - I hope so!

And we're both delayed re start of radiotherapy too....its such a hard slog isn't it?  

I don't even know if there was any node involvement in the beginning so think mine came about during the treatment.  Think we both have very aggressive (and naughty!) cancer types.

Am glad you're still being positive, its a good way to be.

I hope your pals are rallying around you, and am sorry there's no family there for you. I've had 2 pals down this weekend so although am feeling a bit pathetic (as have a very painful seroma under arm now) have still had lots of fun.

Keep well Nel

Sam X

Hi Sam

Sorry to hear you are in pain, may you get well.i remember one night had deep pain although I took co-ocodamol, I had to ring 111 and in the morning looking into the drainage bottle were things like threads long one and white floating stuff since that day I felt better.

Sam if I think of this disease I cant even eat ,I know its aggressive, not completely responsive to treatment still am positive, as these days are may options of treatment at some point we will bring good news. Mine before treatment was one lymph node involved, when I started treatment found 3 then after treatment during surgery 6, so annoying but heads up Sam, do not give in or pive up let's fight still.

Just this evening was chatting with my next door neighbor' who shared that 11 years ago she had same TNBC ductal carchcoma, at 50 years a d had bowel cancer which bears killed her when was 34 years but she won all of these a d is quiet strong and health. I was so emotional so miracles do happen still  let's grab ours with positive mind, we definitely dont know when but it surely come.

I watched tv 2 weeks ago where that actress and another tv presenter had stage 3a and 4 respectively, underwent 18 months of aggressive treatment they are both in health.We will be there one day.

It's good you have friends enjoy Sam and sleep well.

Xxx Nel

Nel

Glad you are still being so positive - from my point of view its the only way to be!

Though what came out in your drain sounds abolotely vile and am sooo glad that I wasn't given one post op no. 2.  I think my under arm is slowly improving, either that or I'm getting used to it.  Its the numbness of the underarm, top of arm and back that is most disconcerting...and horrible!!

Other than that all is good, and I think we're also in a good position re this blummin coronavirus (despite having lowered immunity) as we've been partially self isolating for the past month anyway.  Is your daughter still at school, if so hope she's being super hygienic so as not to bring her Mum another thing to contend with.  I think one big C in our lives is enough isn't it?

I hope none of our appointments or ongoing treatment will be affected, I'd be surprised and cancer treatment is being ring-fenced but its strange times out there currently.

How are you doing Nel? Is your mobility ok and the exercises easy yet - I bey they are!  What's next for you on this journey?

Off for a walk in the woods later, I've noticed that I walk so slowly post surgery, think I shuffle along like a little old lady (not far off that actually!).  Am sure I'll be striding purposefully before long...

Stay well Nel

Sam X

Hi Sam

Hmmm situation is tough but The Lord is on the throne still  I went to meet the oncologist today for treatment plan. He says things have changed these 2 weeks because of outbreak so chemotherapy has been  cancelled because they are protecting us as chemotherapy lowers down immune system and this outbreak needs good immune system. Instead he moves me for radiotherapy of which he had put through order so waiting for letter. He says even them already on chemotherapy they are being cancelled.  I asked a question that after radiotherapy will I go back for chemotherapy? He says no need as it can't benefit you after missing it 10 weeks.

It's time to trust in The Lord.

How is yours down there? When you see doctor for new results? Unfortunately we can even fly out could go to India you know

Anyway God is good we keep faith 

Take care

Nel

Hi Sam 

I tell u I did reply to your email but maybe didn't send it I just check now.

Hope you are doing well Sam, healing slowly day in day out, am ok now can complain.

I met oncologist on Wednesday  for new treatment which was IVF for 18 weeks but he cancelled. Things have changed says they protect patients from dying of Covid-19 because of insufficient immunity.  I tried to say maybe give me tablets but he refused. Says no point

So he ordered me for radiotherapy instead but also waiting for ct scan for head and neck following symptoms I developed over time . Sam if I see this situation with physical eyes I can say it's hard but with God's grace am seeing it with spiritual eyes that nothing is impossible with God and also He makes a way and His ways are perfect and Has good plans not to harm me, and those who trust in Him shall never be put to shame and i can take a breath. I dont know how or when but am coming out of this, He is Mighty.

How are you? Does your doctor carry on with chemotherapy?  Let me know .otherwise I send my love ,keep fighting despite situation, everything comes and go, this too will go .

God bless you 

My regards to Adrian 

Nel

OOooo 2 messages eh?  How lucky am I.  Yes they both came through, you're obviously getting carried away with all that's going on - ha!

How do you feel about the additional chemo cancellation? I can see upsides & downsides.  I hope its the best decision for YOU and that treatment isn't being overtaken by this new challenge of cv.  On the plus side they are very unlikely to be changing radiotherapy treatment ( no "bed" involvement and the radiologists are very specifically trained so not much use in the CV fight).

I'm intrigued what's in India that will help you.  I think you're best during this mad time to stay where you are, the last thing you want, especially as we're still mid treatment is to be somewhere unfamiliar where you can't get the treatment you need (am pretty sure India falls into that category).  No getting on a plane Nel - not even sure they will be flying for much longer.

IVF eh?  Just makes me think you're planning on having a smaller friend for your daughter!  Ha! 

Its good they're doing the CT scan, I had one to check given it had spread to the lymph nodes, will hopefully give you peace of mind.

They are carrying on with chemo where I've been treated as saw this when at hospital yesterday.  Had to go in as wound (post lymph node removal) was not recovering as well as it should so had fluid removed and felt a million times better after, also on some more antibiotics as have another (we must be in the 100's with the amount of infections I have had and 1000's in terms of the number of antibiotics have taken) infection in most recently created wound (which looks very angry - as I would be!).

Back in on Weds to get results of surgery.

Don't you worry about me Nel, I was born fighting, intend to carry on doing so until the powers that be decide otherwise.  Adrian is however quite a different matter, to say that lad is pessimistic is an understatement...luckily I have enough optimism for both of us eh?

Hope you've got lots of things lined up for your daughter to do & that your teaching skills are up to scratch...

Keep infection free!

Sam X

Hi Sam

Hope you are keeping well. Am keeping well. Stress is gone now I still look at things as normal,.

Isolation is going on well, with loads of resting and watching ,eating and feeling the body. We hope things will get back to normal soon. What's the story down there? You still have chemotherapy in this situation? Mine I dont know because even radiotherapy I dont know when, but have appointment on 30th April concerning its arrangement.

We will have late treatment but I learn everything happens for reason ,nothing will disadvantage us,is working together. 

Iam going for CT scan on 15th, then neck scan on 5th.

Let's see the trick.

My regards to Adrian and yourself. 

God bless

Nel

Nel

Hi, just checking in.  Hope your isolation is going well, mine makes me very glad I live alone!

All good here, had a session with rads doc to sign forms and listen to the myriad of side effects, the start is being delayed a little but only due to my leaky seroma (which I think may have stopped by now). Due to have rads planning session 14th April and then start 3 weeks after so could well be at the same time as you.

Hope you're managing to make the most of your hour's exercise, I'm walking a lot ( as there's not a lot else I can actually do yet) but do get very tired at the end of a decent walk which I hope passes soon.  I also find that the hormone tablets I'm taking make me ache like an old lady, especially on a morning - gets better when I start moving but getting up from the sofa is such an effort!

So how are you doing home schooling your daughter, or is it, as with many of my friends, that she's home schooling you??

Hope all is well

Sam X