Diagnosed breast cancer but feeling OK - am I odd?

Hello,

Initial diagnosis just RHS breast at stage 2 but grade 3 so having chemo pre surgery, 1st EC on 29th August, awaiting CT, bone scan & biopsy on LHS, results due 21st August.  Had really quick & excellent treatment compared to many plus am a stoic/daft Yorkshire lass who is ready for an adventure (although I can think of better ones!!)

Been looking at the forums more so for practical advice re what to expect re chemo, what I should be doing re diet, questions to ask the cancer team who are supporting me.

Told all family & close friends and set up a whatsapp group so they know what I am doing, so far enjoying this as it’s an opportunity for all to be entertained as well as not having to have the same bl00dy conversation over & over. Definitely decided against face book as they're not close & I know it would be filled with motivational quotes - not what I am after at all. 

Hopefully there are some other people out there who are feeling relatively positive, in the meantime am off to Edinburgh fringe this weekend to watch some very odd shows - whoop, whoop!

  • Hi Kez

    Hope all is well with you.  What results did you get from your biopsy?  Still a bit early for results from the PET on 24th I suspect?

    Are you still planning for the NY trip?  My Irish friend has just been there (en route to seeing a Canadian pal who has lung cancer...its all over!) and had a great time, even went to a baseball match, got a vid, looked fun (and I generally loathe sports).

    I have a small trip planned mid October, given hospital visit post no1 chemo have decided to stay in Blighty, planning to go up north (what a surprise!) and visit Northumberland as don't know it very well at all, really only been as far as Newcastle in that area and looks like stunning countryside.  So me and a pal are doing a driving holiday to Yorkshire (of course) , to see my Pa near lake district and explore Northumberland, just gotta work out a route but luckily love a bit of planning.

     

    As you can see from other messages everything is quite boringly well with me and hope its the same for you (& all on here) - would hate to think my wellness is zapping anyone else's strength!

     

    Sam X

     

  • Patrice

    As you can see all is very good with me. Annoying aren't I?  Sometimes I annoy myself if it helps.

    I've been on the tummy injections (GCF or something?) like you, that may be accounting for a lot less side effects post no2 chemo than no1..odd, if things carry on like this I'll be healthier post no 4 than I was before all this madness started, not sure that's how it's supposed to be but you never know...

    My hair, like yours, started coming out at the end of the 1st chemo and lasted for a number of days, always said if am moulting more than my fatter & hairier cat would do something about it plus its pants when you roll over in bed and get a mouthful/face full of hair! So my boyfriend, Vidal Sassoon, bought his clippers round and partially gave me bald, partially grade 2 and with some scissor action (resulting in a near van goph)...I think Stevie Wonder could have done a better job.  Went to the barbers yesterday, told them to do whatever they could....the look on their faces as I removed the chemo cap!

    Hope you've got lovely things planned for the weekend, I plan to spend mine laughing with pals,  Have told them for a small fee will flash my grade 1...they are sooo lucky.

    Sam X

  • Hi Sam

    Got results yesterday although now waiting for pet scan images and brain MRI scan on Tuesday before treatment can be confirmed.

    CT scan said nothing in lymph nodes but pet scan found two small areas they want to check so current scaling it T3 N2 M0.

    Had to cancel New York because of biopsy but as it turned out I was flying with Thomas Cook so wasn't going anywhere  

    Still winding everyone up and threatening a punch in the gob if they're looking miserable, but in general most understand my sense of humour and go along with it

    Have a fab time away, take care x

  • Hi Sam 

    Am always happy reading from you and glad to hear you are doing well, it cant be perfect its toxic but atleast its manageable,  when feel more tired it's not bad having vitamin c, sometimes I do.

    Iam even laughing at your question that "are you sure they are giving you right chemo? Ha ha definitely Sam my hamster is nearly clearing its melting at fast pace dear which is a significant chemo has good effect on it!! Every body responds differently for different reasons, some loose weight while some gain, I have abit not too much but I have coz iam eating well but health .I love my nuts different types and avocado... chemo hasn't really changed my eating habits although mouth can be horrible first week of chemo.

    Iam going to try again on Thursday PICc line ,am praying that it should be successful as my veins oh no cant stand it again, 

    Am trying to eat more beet root for red blood cell making last time was abit low want to beat it this time by God s grace.

    My chemo is due next Friday on 4th and after 21 days will change to a different drug which will be weekly, fingers crossed , I still trust God for for strength honestly, .

    Let me know MRI Results,, am sure hamster is packing off ,her time is over now, blind hamster .

    Am seeing oncologist on Wednesday the 2nd, .

    Am still doing my 2 nights a week atleast for beetroot lol.God bled and good night Sam

  • Kez
    I get the impression that it hasn't spread from what you tell me, you must be relieved, I know my boyfriend was in particular when I got the results back from CT which showed the same.
    Hope all the other tests are going OK, am awaiting results of MRI to see what effect chemo has had (due Weds before next chemo).

    A pal of mine is also in same boat re NY in Nov, got a full refund so am hoping you do too without too much hassle.  Hope you will be re-booking in the future.  My trip to Northumberland delayed to Nov (due to idiot friend!) but no problems just means I'll be able to avail myself of cooler weather (ideal for me as hate the heat of summer).

    Had a great week here, feeling really good (in hospital this time following round 1 of chemo) so much so off for bike ride shortly...cue the rain!

    Made some new pals at a MacMillan course this week, hopefully where you're going to get treated you will also have an active MacMillan office/person and will get details of the many courses/support available (got mine in a sort of welcome pack)...I've found them good and a great opportunity to meet others and share stories (good & other).

    Good luck with results

    Sam X

  • Nel
    Am still feeling fine..the boyfriend thinks they're giving me tizer rather than which ever of the E or the C is the red stuff.  If it wasn't for your hamster regressing I'd think the same of you...cut backs in the NHS and all!

    Good luck with the PICC line, my veins are totally misbehaving and are collapsing every time they see a nurse..very naughty.  Before I started chemo I had a chat with someone who had gone through PICC and PORT and decided the latter was better, despite a small operation to install...what appealed to me was no maintenance (am sooo lazy), less obvious than PICC and the fact that you could swim (am waiting for the magic moment when my body learns to do so as couldn't before I had a PORT!!).
    Not sure how many more treatments you have left but may be worth considering?

    Hope the 4th chemo and doc appointment went well, I've my 3rd next week, what drug is the weekly one you're switching to?  I do hope you're as lucky on the new one and can keep up your 2 nights a week.
    I've been feeling like Wonder Woman this cycle (and although wasn't too bad post 1st chemo feel 100% better post 2nd) so let's hope that feeling remains.

    Right my Saturday list of chores is not going to do itself so am off!  Glad to hear you're well.

    Sam X

  • Hi Sam

    Good to hear you're doing well re treatment, I'm back in limbo land as they've decided I need a bronchoscopy to investigate a lymph node. CT had suggested no spread but pet scan picked something up so was sent for a brain MRI and now waiting again for more tests. Having more problems with hormones at the moment  due to also being menopausal, may invest in a punch bag to take it out on

    In the not so sunny south for a few days, a change is as good as a rest they say..

    Hope next round isn't too bad

    Take care x

  • Kez

    You are in my mind, sending good vibes and prayer that all should go well.

    I can imagine the feeling more especially in the night when all birds are sleeping and head up in bed, everything gather against ,all I can say,keep staying positive, be stubborn in positive expectation. 

    All the best and God bless

    XxNel

  • Hi Sam

    Iam so glad you are doing well, that's we all need honestly. 

    Iam too ,cant complain,  I made my head balding and today went to church with it but with good makeup and accessories was like fashion, honestly my skin is even glowing than before, iam laughing and say waw had it been cancer knew ,it wouldn't even start this battle in me.

    Anyway it's bad news that your veins are also as bad as mine, am going for small OP tomorrow just for port fitting. I was supposed to have treatment on friday the 4th but had to shift for Tuesday, my veins more especially right hand all lines in dark colour are clearly visible that even my little one noticeds and ask why lines mum? I just answer becoz of hamster!

    Am changing to single drug ,starting with pisces.. .. now am on 3 combined drugs. Am hoping this single drug gonna be kind with me still.am not expecting for any bad changes but good.

    Wish you well on next treatment, how many will you have? My weekly one will be 12weeks × 3 three weekly ones=15.i declare even before I finish it's all clear.

    Have a good night  and messed week

    Xxx Nel

  • Hi Yorkshire_defector.. I too feel the same way about my diagnoses.. maybe I'm strong or maybe I haven't come to terms with it .. 

    I am 29, with stage 2 breast cancer as well as being her2 positive. There has been no history in my family of cancer at all - I am the first one going back quite far so it has hit my family quite hard - not me.. I'm just getting on with it. 
     

    I started my first AC chemo on 4th, next one is on 21st.. 2 more after that and I am on Taxol for 12 weeks. Mastectomy, reconstruction and then 4 weeks of radiotherapy. Another treatement every 3 weeks for a year and then hormonal therapy for 5 years. 
     

    im just taking it as it comes, the first chemo I was fine with .. wobbly legs towards the evening and slight fatigued on the weekend but I'm fine now.. I hope this is what I will have on going haha (high hopes!). 
     

    Wishing you all the best on your journey xxxx 

    Jodie