Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Oh thank you Mich

    My sister lives in Cornwall, but she's been great.

    like you say, I'm a bit numb at min and once i get this sorted in my brain I should be OK, I will kick Cancer a.se. 

    Hope you have a good day, sun is out again  

    Love and hugs xxxxx

     

     

  • Hi  Davia,

    I'm so sorry to read your update and that you're having to deal with all this again it's just so unfair and you really don't deserve this after everything you've been through.

    You're such a positive person Davia and I know as distraught as you feel at the moment that you will fight it and be strong, as all the ladies say you've done this once and you will do it again and kick cancers a**e.

    Be strong Davia you can do this and yes time to get those big pants on and fight your battle!

     

    Sending big hugs xxxxx

     

    Karyn  xxxx

    I've been up half the night unable to sleep and diazepam this morning trying to psyche myself up for this afternoons appointment.

     

  • Hi Karyn, 

    I pray you get good results. I'm thinking of you today xx

    Thank you so much for your lovely post, I must admit I took a whole diazapan yesterday lol once I get my head in the right place I know I will get through this, we TN wortiors  are a tough bunch

    Let us know how you get on, we're all with you xx

  • Davia,

    I can honestly say I think you're the bravest person I've ever seen. After a setback you've got those boxing gloves on and are already fighting! You may not feel calm or in control just now, but to speak as calmly as you do is amazing.
     

    You got this kiddo, we're all in your corner. Xxxx

    sending love and prayers your way xx

    carla xx 

  • Thank you Carla, 

    Lovely message, I'm in a bit of a jiggle at the moment, like someone just threw my jigsaw up in the air, but all we can do is sit down and put it back together, it's hard and very frustrating and at this moment I don't know where to start but all you lovely ladies have helped me, like you say, I've done this before I can do it again. 

    Sending you virtual love and hugs xxxx

  • Hi Ladies 

    I'm not long back from the hospital after a lengthy agonising wait and pleased to report my mammogram was clear and MRI scan didn't show anything sinister either and lymph axillae was clear.

    The most frustrating part was the radiologist saying they had nothing to compare it with as my treatment was all done at a different hospital and they had no idea of my previous clinical history and it was my oncologist that referred me there as it's a screening centre for high risk women.

    They said there was thickening of the skin of the left breast and breasts were asymmetrical and this was also due to the radiotherapy after having the surgery last year.

    The consultant then said I'm still at a 60 - 80% risk of a further breast tumour because of Brca 1 and that even after having my preventative double masectomy It could still come back somewhere else in the body!

    So ladies even after getting my results I still dont feel elated because of these comments and with the possible lengthy  delays that there could be with the preventative surgery because things are getting put back all the time I was told.

    Thanks for all thinking of me and Davia I hope you're feeling stronger to fight this again now and have those boxing gloves at the ready!

    Sue I hope your managing to get some more sleep.

    Linda well done with finishing your radiotherapy and hope you have a nice celebration with family.

    Carla and Mich hope you're both well and radiotherapy been ok

     Claire hope all ok with you too.

     

    Be strong ladies & take care xxxx

  • Karyn 

    That is good news that scans are clear, I'm happy for you for that, the other stats are just that, stats, keep pestering them for rhe op, and know that they will always keep very close eye on you. Take the good news and file, if you can the stats, 

    Sending big hugs xxxxxx

  • Thanks Davia

    I've been thinking about you all day and how you must be feeling and it didn't really feel right posting good news after your post yesterday.

    I just want you to focus on beating this disease again and know that you will fight it all the way in true warrior style, you can and will do it!

     

    Take care Davia and bigs hugs too xxxx

     

    Karyn

     

  • Davia im so sorry to read this, cancer really does suck I cant imagine how you are feeling:(

    But i do know you have kicked its *** once and you will do it again in round 2, you are stronger than you think and all of us ladies will be with you every step of the way. 

    Sending you a big hug.

    Linda x

  • Hi Karyn,

    I'm so pleased your scan and mamogram were clear. The Consultant said you're a still at a 60/80% risk of a further tumor but it's up to that risk so it could be a lot less. Don't get hung up on statistics,  just enjoy life. 

    I hope you get you're surgery soon so you can put all this behind you.

    Keep focusing on the good news, it's worth celebrating.

    Loads of love 

    Sue xxx