Thanks Sue. I do think some of it is a general lack of moving my body!

x

Hey ladies, 

Ah sorry to hear you in pain Claire. Hope painkillers will work. Is the move all done for you? Hope u taking it easy

Thanks Davia for the update, I'll find out more on the 10th and let you know. Can't remember sis you have another scan aftrt chemo? 

The challenge is just for March so should be fine with opp as would imagine be after this. Only managed 6000 odd yesterday as the weather was awful! So may make up for it this weekend. 

Last chemo at 2pm! Yay. Hope u don't stay there too long as its alway hectic on a Friday afternoon in the unit. Did bake a cake tho nom nom.

Any more news in your treatment Sue? 

Big hugs all around ladies xxx 

Claire I read on another site that after chemo you can get joint bone ache, maybe it's that, hope it clears quickly for you xxx

Mitch, last chemo today, woop whoo,  hope your out of there quickly, bribe them, get me done quick and I'll give you cake lol xxx

Sue, i hope the tiredness goes off, i find after doing anything, short walk, house work, I'm pooped and need a nap, xxx

Had my drain out on Wednesday, it didn't hurt, I was expecting it to but it came out no trouble. It took me 8 days to get over the anaesthetic, I felt terrible, very low no energy at all, nurse said it can do this, but thankfully I'm feeling more myself today. I have been having horrid nightmares, anyone else have them? Had one last night, not related to me but it was really vivid and horrid, like horror movie, wired!

surgeon app on Monday will know more about opp and when radiotherapy will be booked in, can't lie, I'm nervous, it's the "results" anxiety, 

Keep well ladies xxxx

Hi Ladies,

I'm just back from my Oncology appointment and am feeling really gutted. I am having to have 4 months of Capecitabine (Xeloda) which is an oral chemo and will start in about 3 weeks. The side effects sound horrendous. I will still need 4 weeks of radiotheraphy after that. The reason is that althought they said I was clear of cancer, I didn't get a total response which means there is a 20 - 30 % chance of the cancer returning. I haven't stopped crying since I got the news.

Davia, how did you get on at your Surgeon's appointment?

Mich, Any date yet for Surgery?

Claire, how are you recovering?

Linda, hope you're doing OK.

Love to you all,

Sue xx

Oh Sue I'm so sorry, what a kick in the teeth, that absolutely sucks. It's good that they're making sure they reduce the risk of it returning but absolutely gutting to have so much more treatment ahead of you. Sending love and hugs and channeling strength your way xx

im ok, thanks. Ended up going to a&e Sunday as I suspected, correctly, that my wounds had become infected. Now on a course of penicillin. Have to see the doctor again before starting radiotherapy which is due to start 23 March.

Davia, hope the appointment went well. I've definitely been having very vivid dreams since starting treatment.

Mich, fabulous that that's the last chemo! How're you feeling? First part of the move is done, I'm at my parents til May. They'll look after my son whilst I go into London each day for rt. I move back to my house in May. Loving being back despite the weather.

Anastasia, hope the recovery is going well. For the most part I didn't find chemo too bad, the last 3 sessions were a bit rough but the first 13 not bad. I didn't bother trying to keep my hair, once it started falling out my boyfriend shaved my head, I also went the headscarf route. I felt quite emotional on the ec chemo and very nauseous. The taxol gave me no side effects at all.

Love to you all x

Hello All, I've just been diagnosed with stage 1 TNBC.  I moved from the UK to The Netherlands recently as well so am completely numb and dealing with a different healthcare system.  Today has been a heart scan, MRI and bloods.  Meeting with oncologist on Thursday and genetic testing next week.  I can't stop googling and fearing the worst.  I'm 43 with an 11 month old baby.

Hey ladies, 

Ah Sue, im sorry to hear that. I rely hope the side effects are non at all, just like when you read the side effects on paracetamol and think WTF should I be taking these! Like Claire said it seems its an extra precaution to eliminate reoccurrence.

How u feeling today? 

I saw the consultant yesterday Ana he seems to think I can actually have a lumpactomy! Something I was not expecting. The tumours have shrunk enough for them to operate. They are going to discuss my case again tomorrow with oncology and then give me a call and must decide. Theyll do the opp in about 3 weeks, subject to this virus! 

So a little confused on what to have. I can't remember did u ladies all have lumpactomy? I'll still need a full node clearance. Apparently they rest the tissue aftrt removing to see if any active cancels cells which gives a percentage of reoccurrence. I wonder if this is how they decided you needed the tablets Sue? 

I'm OK otherwise just tired. On way to meet up with my boss, don't think I want to go into the office, maybe meet at a coffee shop. 

Aww sorry to hear that Claire, poor you! Hope it clears up soon. Must be lovely to be near your family again My mom is in South Africa but I have a younger sister here who works at the hospital so often kept me company.

Quite an emotional rollarcoaster couple of weeks for us ladies. Hang in there, if hugs xxx 

Hi ladies, sorry i've been quiet its taken me the whole 3 weeks since last doxe to feel human, had 5th one friday just gone and feel heaps better side effect wise as i had the dose cut by 10% and extra steroids so fingers crossed it lasts. 

Last chemo is Friday 27th, realised today they havent sent me home with the setroids for the 3 days so called them as I may be having a telephone consutation with my oncologist on the 23rd due to the coronavirus so wont be able to collect a prescription so they are sending me 1 to boots for friday. 

Opp pencilled in for Wed 22nd April. lumpectomy as my lump has been well and truely blasted, no sign of it at all .. unless it comes back i am BRCA + then i'll probably opt for preventative surgery with recon.

Also I have been awarded PIP at long last so thats a big weight off my mind as i am due to go down to half pay at work in 2 weeks.

Sue i am so sorry to hear you need oral chemo but look at the positives, they are doing everything to redue the risk of it returning, its bloody unfair though when you have been through everything you have so far on this journey, sending you a big virtual hug xx

Claire I hope youre infection has cleared up and you're starting to heal and feel well.

Davia i hope your doing ok and the nightmares have stopped.

Mich FAB news on chemo being completed and your surgery goes ahead as planned.

Take care ladies xx

Hi Anastasia

Welcome to our friendly group, I hope you are recovering well from your surgery. 

As Sue said Chemo isnt nice but it is doable, drink plenty of water the day before and day of chemo so your veins behave if you're having it via cannula, i've had 5 this way as chose not to have a Picc line, I have 1 left to go. I'd also suggest calling the helpline after chemo if the meds they send you home with aren't keeping sise effects at bay, they have meds for everything so you dont need to suffer. I was lucky and had none on my 3 FEC but knocked bandy on my 4th Doxetaxol but am ok on this 1 .. I hope it all goes smoothly for you 

Linda x