Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Nat, welcome and sorry to hear about your diagnosis. How did the surgery go? Have you had chemo?

Sending love x

Hi Ladies,

Davia, I wish you a speedy recovery. Hopefully every day you will fee stronger.

Mich, well done on attempting the 10000 step challenge. I really need to get back in shape, it's easier when the weather is better. I hope you start feeling brighter soon, I know the dark days only too well.

Claire, I'm seeing the oncologist next Tuesday. I'll find out then if I need more chemo and I'll let you know what he says and the reasoning behind it. I haven't got a date for radiotherapy yet but I'm also having it for 4 weeks.

Linda, I hope you're doing ok.

Love to you all,

Sue XX

Hi, had the surgery last Thursday. 
home now resting and recovering.

Next meeting with consultant on the 20th. 
They said that I will need chemo but not any detail yet. 
 

Any hints on what to expect, welcome. 
 

Hope everyone else is coping ok.

Anastasia 

Hi Anastasia,

I wish you a speedy recovery. Chemo is not nice but it is doable. Everyones experience is different so hopefully you will be able to tolerate it well. Drink loads of water, it really helps. Take books, magazines etc. as it is really boring.

Stay strong,

Sue xxx

Hi Mich

They give you excersize to do, you do them three times a day, the only uncomfortable thing is when the nerves start healing, well I think that's what there doing, you get spiky feelings, i have also forgotten about the arm and reached for something or leaned on it, you certenly know about it when you do but apart from the low mood after GA it's not been as bad as I thought, when you have your op you may find 1000 steps a challenge, I have had no energy, nurse said it's normal as body is healing and clearing GA not to mention getting over chemo, so be kind to yourself when you have your op, have they given you a date yet? They normally leave you 4-6 weeks after last chemo, but no longer than 6 weeks, I also had a scan two weeks after chemo. Great news your having last chemo Friday well done xx

Oh just had phone call from nurse, she's coming out to take my drain out today, I'm such a baby, I'm now worried it's gonna hurt lol  

Hi Claire 

Hope the move goes smoothly, and your healing well, fingers crossed you can get the appointment moved forward for your RT, I'm seeing the surgion on Monday so will ask him when I can start mine, I hope they don't leave it to long. Let us know how you get on at planning appointment and what they do good luck with it all xx

Sue, yes we would all be gutted if we had to have more chemo, bless you, let us know what they say and why they have mentioned more, hope your healing well from the surgery, hugs xx

Keep well ladies xxxx

Hi Anastasia 

Welcome, I hope your recovering well from your op, as sue says, chemo effects us all differently, but the team really look after you and monitor you closely, listen to your body, was a good tip someone said to me, are you cold capping or going for the shave? , I went for the save, it felt quite liberating, I did buy two wigs but to be honest I hated wearing them, I much preferred scarves and hats, oh o e thing I did invest in a good thermometer just to keep eye on temperature and body cream, you may find your skin dries out. But it is doable, let us know when they give you a start date. All the best xxx

Ladies, everything hurts today! Joints, bones, back, lumpectomy area. Anyone else had this?

x

Hi Claire,

I'm very tender where the lumph nodes were removed, and feel very tired all the time. Strangely, I have difficulty sleeping. I was aching all over but since I started exercising I feel a lot better. 

Love to all,

Sue xx

Thanks Sue. I do think some of it is a general lack of moving my body!

x

Hey ladies, 

Ah sorry to hear you in pain Claire. Hope painkillers will work. Is the move all done for you? Hope u taking it easy

Thanks Davia for the update, I'll find out more on the 10th and let you know. Can't remember sis you have another scan aftrt chemo? 

The challenge is just for March so should be fine with opp as would imagine be after this. Only managed 6000 odd yesterday as the weather was awful! So may make up for it this weekend. 

Last chemo at 2pm! Yay. Hope u don't stay there too long as its alway hectic on a Friday afternoon in the unit. Did bake a cake tho nom nom.

Any more news in your treatment Sue? 

Big hugs all around ladies xxx 

Hey ladies, 

Ah sorry to hear you in pain Claire. Hope painkillers will work. Is the move all done for you? Hope u taking it easy

Thanks Davia for the update, I'll find out more on the 10th and let you know. Can't remember sis you have another scan aftrt chemo? 

The challenge is just for March so should be fine with opp as would imagine be after this. Only managed 6000 odd yesterday as the weather was awful! So may make up for it this weekend. 

Last chemo at 2pm! Yay. Hope u don't stay there too long as its alway hectic on a Friday afternoon in the unit. Did bake a cake tho nom nom.

Any more news in your treatment Sue? 

Big hugs all around ladies xxx