Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Good luck, that should feel so much better once it's out, xxx

  • Hi Ladies,

    Belindajane, I hope you're ok. Let us know how you get on.

    Davia, what surgery are you having besides Lymph node removal? I'm sure you will feel better after surgery, it's easier mentally.

    Claire, I'm glad you're feeling ok, I didn't have a drain. I'm getting better every day.

    Mich, How are you coping with the chemo? Not long now till you finish.

    Linda, how are you doing? What stage of your tratment plan are you at?

    Have a great weekend,

    Love to you all,

    Sue xx

     

  • Hey ladies,

    Sorry for the delay been a strange week.  Hubbys hernia opp went well so been looking after him. poor guy they said it was quite a large hernia so had to open surgery not keyhole.  He's never had general anesethic so was rather groggy when he came around.  But all good now. I was emotional this week after the steriod low and morbid, urgh was horrible.  But did go for a long walk on my own along the beach and just took it all in.

    Chemo done today whoop whoop!  Just 3 more now with combo next week.  I started with a new symtom this week, sore mouth.  Felt like my tongue was on fire!  The nurse has given me some gel solution to use and a rinse for my mouth and i know have Wilko kids tooth paste lol! Guess not too bad its started now with 3 to go!

    So glad to hear you are managing ok Claire and lovely your parents are out there with you. 

    I'll be having full node clearance on my left too.  Random question, if you have full node do they do the lumpactomy / masectomy the same time?

    Good you have your date Davia, they seem to be working quite quickly with the opps so hopefully not long for me to wait.  I'll be having my LGFB workshop on that day, so will be thinking of you :)

    Linda you managing ok with the side affects?

    Hey BelindaJane, let us know how you get on :)

    Hugs all around ladies!  Spoil yourself today.

    xxx

     

  • Good Luck Wagondriver, hope you get some results soooon!  Let us know if you want to chat or rant to us Breasties!  Hugs xx [@Wagondriver]‍ 

  • Hey Thessa,

    Ah thank you for letting me know. Yeah may be an option still for me as my ovarian reserve was good before chemo so will see.  I've been on zoladex every month.  At the moment im taking it one day at a time and trying not to worry about what is around the corner.

    Hope your chemo is going ok, i had chemo this morning, Paclitaxel. I have it weekly and then every 3rd week they combine with carboplatin.  I have 3 more to go whoop whoop!  I have a port too, works well as my veins are sh** now they really struggle to get blood out of me as they are tiny!  Quite irconic only thing tiny about me being 5.10" haha!

    I'll be having an opp and then radiotherapy so opposite to you.  Did you have lymph nodes taken out.

    Hope its going ok today.

    Hugs xxx

     

  • Hi Ladies,

    I had chemo number 4 today which was my 1st Doxetaxol, veins played up but i think its because i didnt drink much this am I had to be there at 8.30 so after a failed cannulation in my right hand the Picc lady came along with her scanner and found a vein in my left arm and hey presto it all went ahead with no reactions, now to see what side effects it will grace me with in the next few days!

    Hope you are all doing well xx

  • Had doxetaxol today Mich and feel ok as am full of steroids, hoping its king to me like Fec was, Glad hubbys op went ok x

  • Hi Mich 

    Glad hubby is doing well, you have had your hands full, no wonder you felt low, hope your feeling OK now x 

    I'm only having lymph nodes removed from left arm, all of them are coming out, I got a leaflet of what excersize to do, you start day after op, I think they do, lumpectomy/mastectomy at same time, I did hear of one lady where they removed her lymph nodes from the incision in her breast so she didn't have the wound under her arm,

    My nutraphils were low after chemo, I started taking manuka honey last week and I think it's done the job, my nutraphils were 1.4 last Friday, and today they've gone up to 3.5, and all my other levels in blood have come back to normal, so if you need to boost blood get manuka honey, great stuff, I took three teaspoons a day and bought the really strong one from Holland _Barrett, it's expensive but if it works think it worth it

    Hi Linda 

    Glad chemo went well, hope the dosataxel is kind to you, during loads, I'm sure it helps with side effects. Only three to go, hang in there xx

     

    Keep well ladies xxxxx

  • Davia you beat me to it. Manukau honey, great stuff! Mich when I started getting a sore tongue a spoonful of Manila honey a day sorted it out within about 3 days. I didn't take anything else for it.

     

    Love to all x

  • Hi Ladies, I've just read a really good article I found on another site, I can't cut and paste as it's a bit long, but you may find it useful. Google 

    After the Treatment Finishes, Then what

    By Dr Peter Harvey, Consultant Clinical Psychologist

    I found it really good and it explains a lot of feelings we have that others don't understand, or we feel guilty because we're not feeling the way we or others expect us to feel.

    Keep safe today with this storm Dennis brewing xxx