Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Good evening ladies,hope you've all been in the warm out of this horrific weather we have had today.

Sue and Claire I hope you're both resting and healing after your surgery, another step closer to the finishing line :)

I hope you are both keeping well Mich& Davia

I'm off to see my consultant tomorrow before 1st Docetaxol on Friday but its number 4 so i'll be over the half way mark whoop whoop!

Keep well all xx

Thanks Claire, 

Hope your healing well xxxx

Thanks sue, hope your healing well and the brushing is going down xxx

Hi Ladies,

I'm sore and bruised but healing nicely. The dressing came off today and it's not pretty!!

How are you Claire? Did you come out of hospital yesterday?

Linda, fantastic you're at the half way mark. Hopefully, Docetaxol will be kind to you. let us know how you get on.

Davia, how are you doing? Have you got a date for your op?

Mich, how many chemo's have you got left? it's one long journey!

Friday 21st is D-Day for me when I find out if the cancer has spread or if I have clear margins. It's a worrying time and totally out of my hands.

Stay warm, love and strength to you all,

Sue xx

Hi Sue and Claire, hope your healing and not to sore. 

Mich hope chemo is being kind, 

Belindajane, hope you get good news, always a worry, fingers crossed for you x

I have my date for surgery, 25th Feb I will have full clearence of lymph nodes in left arm it's going to be a long recovery, I saw breast care nurse today, she gave me leaflet of excersize I need to start doing day after surgery, I am nervous, I've never had major surgery before, but many people have had this op so I'm sure I'll be OK, and I will feel better that the infected lymphs will be out

Hope your all well, keep strong xxxxx

Hi Sue, I came out on Sunday. Feeling ok just a bit sore under my arm but I think my son may have pulled the drain slightly! I'm having it removed today thank goodness. How are you doing?

Davia, that's great you have a date for surgery. You'll be absolutely fine :) How Kong will you be in for?

love to all.

x

Hi Claire

I stay in 1-2 days then nurse will visit me, at home to do drain and check dressing.

Hope your managing OK at home, must be hard with baby, 

Keep well . Xxx

Thanks Davia. My parents are here which is a great help. On my way to get my drain removed now :)

Good luck, that should feel so much better once it's out, xxx

Hi Ladies,

Belindajane, I hope you're ok. Let us know how you get on.

Davia, what surgery are you having besides Lymph node removal? I'm sure you will feel better after surgery, it's easier mentally.

Claire, I'm glad you're feeling ok, I didn't have a drain. I'm getting better every day.

Mich, How are you coping with the chemo? Not long now till you finish.

Linda, how are you doing? What stage of your tratment plan are you at?

Have a great weekend,

Love to you all,

Sue xx

Hi Ladies,

Belindajane, I hope you're ok. Let us know how you get on.

Davia, what surgery are you having besides Lymph node removal? I'm sure you will feel better after surgery, it's easier mentally.

Claire, I'm glad you're feeling ok, I didn't have a drain. I'm getting better every day.

Mich, How are you coping with the chemo? Not long now till you finish.

Linda, how are you doing? What stage of your tratment plan are you at?

Have a great weekend,

Love to you all,

Sue xx

Hey ladies,

Sorry for the delay been a strange week.  Hubbys hernia opp went well so been looking after him. poor guy they said it was quite a large hernia so had to open surgery not keyhole.  He's never had general anesethic so was rather groggy when he came around.  But all good now. I was emotional this week after the steriod low and morbid, urgh was horrible.  But did go for a long walk on my own along the beach and just took it all in.

Chemo done today whoop whoop!  Just 3 more now with combo next week.  I started with a new symtom this week, sore mouth.  Felt like my tongue was on fire!  The nurse has given me some gel solution to use and a rinse for my mouth and i know have Wilko kids tooth paste lol! Guess not too bad its started now with 3 to go!

So glad to hear you are managing ok Claire and lovely your parents are out there with you. 

I'll be having full node clearance on my left too.  Random question, if you have full node do they do the lumpactomy / masectomy the same time?

Good you have your date Davia, they seem to be working quite quickly with the opps so hopefully not long for me to wait.  I'll be having my LGFB workshop on that day, so will be thinking of you :)

Linda you managing ok with the side affects?

Hey BelindaJane, let us know how you get on :)

Hugs all around ladies!  Spoil yourself today.

xxx

Hi Ladies,

I had chemo number 4 today which was my 1st Doxetaxol, veins played up but i think its because i didnt drink much this am I had to be there at 8.30 so after a failed cannulation in my right hand the Picc lady came along with her scanner and found a vein in my left arm and hey presto it all went ahead with no reactions, now to see what side effects it will grace me with in the next few days!

Hope you are all doing well xx

Had doxetaxol today Mich and feel ok as am full of steroids, hoping its king to me like Fec was, Glad hubbys op went ok x

Hi Mich 

Glad hubby is doing well, you have had your hands full, no wonder you felt low, hope your feeling OK now x 

I'm only having lymph nodes removed from left arm, all of them are coming out, I got a leaflet of what excersize to do, you start day after op, I think they do, lumpectomy/mastectomy at same time, I did hear of one lady where they removed her lymph nodes from the incision in her breast so she didn't have the wound under her arm,

My nutraphils were low after chemo, I started taking manuka honey last week and I think it's done the job, my nutraphils were 1.4 last Friday, and today they've gone up to 3.5, and all my other levels in blood have come back to normal, so if you need to boost blood get manuka honey, great stuff, I took three teaspoons a day and bought the really strong one from Holland _Barrett, it's expensive but if it works think it worth it

Hi Linda 

Glad chemo went well, hope the dosataxel is kind to you, during loads, I'm sure it helps with side effects. Only three to go, hang in there xx

Keep well ladies xxxxx

Davia you beat me to it. Manukau honey, great stuff! Mich when I started getting a sore tongue a spoonful of Manila honey a day sorted it out within about 3 days. I didn't take anything else for it.

Love to all x

Hi Ladies, I've just read a really good article I found on another site, I can't cut and paste as it's a bit long, but you may find it useful. Google 

After the Treatment Finishes, Then what

By Dr Peter Harvey, Consultant Clinical Psychologist

I found it really good and it explains a lot of feelings we have that others don't understand, or we feel guilty because we're not feeling the way we or others expect us to feel.

Keep safe today with this storm Dennis brewing xxx

Hey Linda

I had the same with my pre assessments so early in the morn at 8am.  I drink loads before i go to bed, have water and squash when i wake up, do the flappy arms chicken dance and they still cant get to my veins!  Last week my assessment was later at 1020 and voila, she found it.  She did say it was tiny but no probs.

Hope the side affects are not too bad for you and you are relaxing this weekend.  Deff a day for recharging the batteries indoors eh!

Hey Davia, glad to hear you are managing ok .  How are the exercises going? Are you still going for blood tests?

Thanks ladies, i've heard manuka is good for you.  Going to order some now :)  My mouth is feeling a lot better the past couple of days.  Stll bit of a nose bleed.

Ah thanks Davia I'll take a read.  Last week was rough, i felt so low but numb couldn't get past the foggy wall didn't want to talk, was so zombie and blue.  I was convinced my hubby wanted  to leave me and the cancer might as well reoccur now and get it over and done with.  so dont want to have those horrible feelings again this week. So taking one step at a time. 

Claire i'm doing the utube mediation videos too they help me relax and sleep, think i should do some during the day when i feel my mood changing lol!

How you feeling now Claire, hope you not in too much pain. 

Sue are you near Leigh on Sea?  I see there is a charity called The Bennos Boob Foundation and they do charity events and evenings raising funds for triple negative research. I found them on facebook, they are on instagram too and located in Essex. 

Happy Sunday vibes xxx

Hi Mich,

I live in Leigh on Sea, small world! I'll look up the charity online. I too am feeling morbid and sorry for myself. I've worked myself up about the results the surgeon is giving me on Friday. I keep thinking that the cancer has spread and keep imagining lumps in other parts of my body. My husband doesn't understand and tells me I'm being stupid.

I hope you start feeling brighter soon, I think we all have bad days. Stay strong, we will fight this

Love and hugs,

Sue xxx

Haha how spooky eh!  Seems like a lovely lady that has set up this charity from when she was diagnosed a few years ago. 

Are you having another scan on Friday?  Is that when they say the margins are clear.  I know its horrible, i was convinced it was in my bones last week as my rib cage was so sore on the left! No idea why, it is feeling a bit better this week. 

I know my husband doesn't like to hear when i'm morbid, he doesn't know what to say.  Its hard on them as they just want to keep postivie and keep things going and a sense or normality. 

Thanks doing ok today, going to the cinema in a mo to watch Bad Boys lol!

Hugs all around xxx

Hi Mich,

Enjoy the film. I'm not sure if I'm having a scan on Friday, I didn't think of that. The removed nodes get examined and I'm not too sure how they tell if it's spread. I feel frightened all the time and it's not a good feeling. I'll snap out of it.

Enjoy the  popcorn

XXX