Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Hi Mich

You really don't need a cold on top of chemo, poor thing, hope you get rid of it soon and it doesn't delay combo next week, drink loads try flush it out. 

My oncologist said the scan is for two things, looking to see how cancer has reacted to chemo and also for the radiotherapy team, I have a lymph in my chest that is effected, on last CT scan it was undetectable, I think pet scan is to see if any avtivaty is there, I'm not looking forward to it, blooming scary, but I know it needs doing. Talking to other ladies it's normal to have a CT or Pet scan at end of chemo. You have to wait two weeks after your last chemo before having a pet scan. 

My hair is growing, it looks a mess, I get bed head now and it's a bit curly and spiky, I said to my hubby, I look like the joker from batman I really hate the way I look now, no eyelashes and no eyebrows make me look so pasty. 

After my paxol on Monday I have felt really yuk. I think it's the top up effect as I had combo week before, Tuesday I did to much and ended up an emotional mess so stayed in bed and solobed  yesterday, feeling brighter today so may venture out. 

Hope your not feeling to crapy, sending hugs xxx

Hi Sue

Maybe ask your oncologist if you will have a scan, they may bring it up at surgery appointment. 

Hope the hair looks better after your trim, I've been contemplating having my sides and back zibbed of just to give my half inch of hair some sort of style, it's looking so messy and sticking up rather than laying down.

I'm still waiting for my surgeon appointment to come through, they say I should have surgery around 21st February onwards, hope they don't leave it to long, just want to get it over with. 

Good luck with your appointment, keep well 

Love and hugs xx

Hi Davia,

When I look at my hair in the mirror, I don't know whether to laugh or cry.. I often do both!

it's four weeks tomorrow since my last chemo so I hope to get a date for surgery soon. The waiting game never gets any easier.

The hospital seem to be taking good care of you, it's hard our fate being in someone elses hands but I have to keep reminding myself that they are the experts. I hope your scan goes well.

take good care of yourself,

love Sue xxx

Hi Sue, 

Thanks Sue x

Hope you get surgery appointment soon, yes waiting game is hard. X

I do the same, some days it doesn't bother me, others I feel so gross, I say to my hubby, "I just want to be me again" I know we will get there but u till you have walked this road, you really don't know how hard it is emotionally and physically, we will start that warrior group up after all our treatments and we've kicked this C to kingdom come x

Let us know how appointment goes, sending love and hugs xx

Hey Ladies,

Ah thanks not doing too bad, just have that silly tickly cough.  So out comes the Corvonia!  I was wide awake at 5am so up having porridge and doing washing.  I only went to bed at 1am! So maybe having a cold so close to treament not too bad timing with the steriods getting me through.  Just gotta get rid of it by the weekend when i crash.  Funny thing i realised is that i have lost my nose hairs so you dont get th tickly feeling any more when you are going to sneeze and no pre warning when your nose is going to start dripping like a tap when you bend down, no hairs to bufffer haha!

I'm staying indoors today and keeping warm.  I might ice my christmas cake,ive got the fondant and marzipan out.  Although cant really call it christmas cake any more.  Just didn't get around to doing it!  Hmm maybe celebrate my boobs cake.

Good luck for your appointment tomorrow Sue :)  Ooh and fingers crossed Davia your opp will be around 21st Feb.

I'm going to trim my hair too today.  Going to pop to my friend around the corner and use their clippers. Hubby says it looks less scruffy when shorter, hmm thanks!

Hugs xxx

Mich I just looked up my nose, no hair, I never noticed lol

Maybe mould the cake into boobs before icing with pink icing, ha ha ha, we will all meet up for a boob party :D

Xxx

Hi ladies,

Just a little tip for you re: the lack of nose Hair. Put a dab of vaseline inside your nostrill, it stops the dripping.

I've had my hair cut and I can't say I feel any better for it. I used to have shoulder length hair and I can't get used to seeing myself looking like WorzelGummidge.

Onward and upwards Ladies, we will beat this. 

Stay warm

xxxxx

Hi Ladies

Sue thats a really good tip which i'm going to do when i go to bed, In the last week I have very watery eyes, i checked fec s/e and this is1 of them still i'm not grumbling as sit could be a whole lot worse!

I'm having my last fec tomorrow so next month i'll start to fret about having the doxetaxel lol still tomorrow is the half way chemo mark! 

Hope you are all keeping relatively well ladies and good luck with all your up coming appointments / ops

Linda x

Ah thanks Sue, to works! Although at the moment i'm blowing my nose every 5 minutes!

I've taken a couple more inches off my head now too, feels much better well excpet when i look in the mirror lol!

I didn't get round to icing me cake, i baked a cake for our neighbour instead.  Well a fruit loaf as its his favourite, its his 50th today.   so maybe tomorrrow....

Ah yes, I'll have to do a boob cake when we create our warrior club!  I did one a few years ago for a friend, had to use two pyrex pudding bowels!

Ah Linda, my eyes are streaming all the time now with this cold! That's great you half way there, not long now.... Sure the next drug will be better, i think most of us have found the second lot better than the FEC and EC.  Good luck for tomorrow :)

xx

Hi Ladies,

Linda, I hope your last FEC went well today. The halfway mark whoop whoop!! Another milestone and hopefully the Docetaxel will be kind to you.

I saw the Surgeon today and I am having a lumpectomy on 5th Feb. Davia, you aren't far behind me.This isn't a journey I ever want to repeat.

Mich, how's the cold? I would recomend a hot toddy but as youre still on chemo, probably not a good idea!!

The next time someone tells me I look well, I am going to take my wig off. I still find it hard to look in the mirror. 

Love and hugs to eveyone,

Sue xxx

Hi Ladies,

Linda, I hope your last FEC went well today. The halfway mark whoop whoop!! Another milestone and hopefully the Docetaxel will be kind to you.

I saw the Surgeon today and I am having a lumpectomy on 5th Feb. Davia, you aren't far behind me.This isn't a journey I ever want to repeat.

Mich, how's the cold? I would recomend a hot toddy but as youre still on chemo, probably not a good idea!!

The next time someone tells me I look well, I am going to take my wig off. I still find it hard to look in the mirror. 

Love and hugs to eveyone,

Sue xxx

Hi Sue

That's good you have surgery date and lumpectomy, I'm not that far behind you, my surgery should hopefully be end of Feb. 

I know what you mean about people saying, oh you look so well! Year right, see me with no make up and no wig, they would be shocked, but I sat this morning putting on my face and thought about people who have alopecia for life, I told myself off for feeling sorry for myself, but it is hard when your so run down with these cocktails of drugs.

I have a rare side effect to the carboplatin, I think I mentioned it effects my lower end, well its causing bleeding from behind and I see a RARE side effect is colitis of the bowel, so thank goodness this was my last carbo, fingers crossed it clears up, I will eat bland diet  and I already drink loads. 

Mich hope your feeling better, 

Keep well ladies xxxx

Sue great news that you have a date. You're two days before me :)

x

Hi Claire, we will compare notes. Are you having a lumpectomy or masectomy?

xx

That's good news Sue, glad u have a date and not long to wait. My chemo dates have changed again and now treatment is on a Friday and pre assess on Wednesday. I'm still feeling rough, my cough is on my chest now so hubby gone to get chesty cough mixture. I'm keeping an eye on my temp and taking paracetamol every 4 hours and drinking loads of honey and lemon. I had a sneaky hot toddy last night, well with a wee cap full if brandy. I slept better actually. The steriods will ware off tomorrow so just need to keep my chin up and relax. I'm 8n bed today reading and catching up on bits in my laptop. 

I have my look good workshop in Tuesday, hope I'm feeling better by then. 

Ah Davia I have bowel issues too, still struggling with the constipation and bleeding. But have a good routine now of lots of fibre, flax seeds and laxido and senokot every day! 

I've never drank so much fluids in my life I should have amazing skin by now lol! 

Hugs xxx

Hi Mich 

I really hope your cold is gone before your look good day, it's really grotty you have a cold on top of chemo. I had my picc line done today and the nurse said she's getting over a cold! I said, don't come bear me, I don't want my last chemo postponed, so she masked up and as you know they don't touch anything.

I drink loads, but with my taste buds the only thing that I can drink is lemon squash, I never drank lemon squash before this journey, only ever water, but water doesn't tast right lol 

My motions are loose, I very rarely get constipated so I'm going the other way with diet, low residue, again hope it's eased off by Monday. Oh have you had any neuropathy in fingers or toes, I've felt a bit, when you hold cup of tea fingers feel more sensative!? 

I recon bed is best place to be today, it grotty out there and cold, 

Keep warm, love and hugs, hope your cold is better soon xxx

Thanks Davia, stayed in bed today and rested. I'm now camped out in the coach. I can feel I have a temperature now, it's 37.2 so keeping a eye in it. They say if it's 37. 5 or 38 you have to call the emergency line. I won't take paracetamol this  eve yet until it goes down a bit.

Ah fingers crossed for your last one Do u ring the bell when you have last chemo or only when u finish treatment? 

I love lemon squash I drink so much of it. At the moment I'm on tropical fruit squash. 

No none if the neuropathy I just had the pains in my arms and chest from when I was on the ec. My body is aching quite a bit now but think it's the cold and now steriods wearing off. 

I have chesty cough mixture now to swig! 

Thank you xx

Hi Mich how you feeling?

The bell is rung at end of chemo, but I've decided not to ring it, me a bell ringer to lol I just feel bad for those who won't be able to ring it :(

I don't know if they will give me my last paxo on Monday, my bowel us quite bad, I've kept my diet bland but today it's still bad, I read its a rare side effect of the carbo.

Well really hope your managing the cold and your temperature didn't or won't peak, healing hugs xxx

Hi Sue

All went ok am so glad I have hit the halfway mark! but I have the bone aches today from the Jabs!

Thats great you have a date for your lumpectomy, how long ago did you finish chemo? I cant remember if my surgeon said he likes to operate 5 weeks after the last round.

Linda x

Hi Linda,

My op will be 2 days short of 6 weeks since finishing chemo. They usually like to operate 4-6 weeks after chemo if all the vital statistics are ok. 

My side effects from chemo are slowly wearing off. I Still feel very tired and I do still feel very emotional at times but our bodies have been put through a lot.

I know it seems never ending but you're at the half way mark of chemo and then onto the next stage.

Have a lovely lazy Sunday and be kind to yourself 

Love Sue xx

Hi Ladies, 

Linda great you have hit the half way mark, I felt tge second half seemed to go quicker, hope the bone ache has gone, I took antihistamines as someone said it helps with the injections. 

Sue, glad you've started feeling better after finishing chemo, next chapter surgery  

Mich, I hope your getting over your cold and it hasn't knocked you back, thinking of you

I didn't have my last paxol today, oncologist was happy to miss it as its caused my rear end loads of trouble and I have red rash each side of my face that is apparently a side effect, so that's it, I have finished with Chemo and had my picc line out , it was very straight forward and I didn't feel a thing next step, scan and surgery, we're (my hubby and me) are looking at it as a transfer from our temporary full time job, that's what we decided to call this journey.

It does feel odd that I won't be going in every week for bloods, I thought they would still do bloods next week to see if body is recovering. 

But I'm happy to be picc free and chemo free. 

Keep well ladies, we can do this warriors xxxxxx