Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Mich I just looked up my nose, no hair, I never noticed lol

    Maybe mould the cake into boobs before icing with pink icing, ha ha ha, we will all meet up for a boob party :D

    Xxx

  • Hi ladies,

    Just a little tip for you re: the lack of nose Hair. Put a dab of vaseline inside your nostrill, it stops the dripping.

    I've had my hair cut and I can't say I feel any better for it. I used to have shoulder length hair and I can't get used to seeing myself looking like WorzelGummidge.

    Onward and upwards Ladies, we will beat this. 

    Stay warm

    xxxxx

  • Hi Ladies

    Sue thats a really good tip which i'm going to do when i go to bed, In the last week I have very watery eyes, i checked fec s/e and this is1 of them still i'm not grumbling as sit could be a whole lot worse!

    I'm having my last fec tomorrow so next month i'll start to fret about having the doxetaxel lol still tomorrow is the half way chemo mark! 

    Hope you are all keeping relatively well ladies and good luck with all your up coming appointments / ops

    Linda x

  • Ah thanks Sue, to works! Although at the moment i'm blowing my nose every 5 minutes!

    I've taken a couple more inches off my head now too, feels much better well excpet when i look in the mirror lol!

    I didn't get round to icing me cake, i baked a cake for our neighbour instead.  Well a fruit loaf as its his favourite, its his 50th today.   so maybe tomorrrow....

    Ah yes, I'll have to do a boob cake when we create our warrior club!  I did one a few years ago for a friend, had to use two pyrex pudding bowels!

    Ah Linda, my eyes are streaming all the time now with this cold! That's great you half way there, not long now.... Sure the next drug will be better, i think most of us have found the second lot better than the FEC and EC.  Good luck for tomorrow :)

    xx

     

  • Hi Ladies,

    Linda, I hope your last FEC went well today. The halfway mark whoop whoop!! Another milestone and hopefully the Docetaxel will be kind to you.

    I saw the Surgeon today and I am having a lumpectomy on 5th Feb. Davia, you aren't far behind me.This isn't a journey I ever want to repeat.

    Mich, how's the cold? I would recomend a hot toddy but as youre still on chemo, probably not a good idea!!

    The next time someone tells me I look well, I am going to take my wig off. I still find it hard to look in the mirror. 

    Love and hugs to eveyone,

    Sue xxx

     

  • Hi Sue

    That's good you have surgery date and lumpectomy, I'm not that far behind you, my surgery should hopefully be end of Feb. 

    I know what you mean about people saying, oh you look so well! Year right, see me with no make up and no wig, they would be shocked, but I sat this morning putting on my face and thought about people who have alopecia for life, I told myself off for feeling sorry for myself, but it is hard when your so run down with these cocktails of drugs.

    I have a rare side effect to the carboplatin, I think I mentioned it effects my lower end, well its causing bleeding from behind and I see a RARE side effect is colitis of the bowel, so thank goodness this was my last carbo, fingers crossed it clears up, I will eat bland diet  and I already drink loads. 

    Mich hope your feeling better, 

    Keep well ladies xxxx

     

  • Sue great news that you have a date. You're two days before me :)

     

    x

  • Hi Claire, we will compare notes. Are you having a lumpectomy or masectomy?

    xx

  • That's good news Sue, glad u have a date and not long to wait. My chemo dates have changed again and now treatment is on a Friday and pre assess on Wednesday. I'm still feeling rough, my cough is on my chest now so hubby gone to get chesty cough mixture. I'm keeping an eye on my temp and taking paracetamol every 4 hours and drinking loads of honey and lemon. I had a sneaky hot toddy last night, well with a wee cap full if brandy. I slept better actually. The steriods will ware off tomorrow so just need to keep my chin up and relax. I'm 8n bed today reading and catching up on bits in my laptop. 

    I have my look good workshop in Tuesday, hope I'm feeling better by then. 

    Ah Davia I have bowel issues too, still struggling with the constipation and bleeding. But have a good routine now of lots of fibre, flax seeds and laxido and senokot every day! 

    I've never drank so much fluids in my life I should have amazing skin by now lol! 

    Hugs xxx

  • Hi Mich 

    I really hope your cold is gone before your look good day, it's really grotty you have a cold on top of chemo. I had my picc line done today and the nurse said she's getting over a cold! I said, don't come bear me, I don't want my last chemo postponed, so she masked up and as you know they don't touch anything.

    I drink loads, but with my taste buds the only thing that I can drink is lemon squash, I never drank lemon squash before this journey, only ever water, but water doesn't tast right lol 

    My motions are loose, I very rarely get constipated so I'm going the other way with diet, low residue, again hope it's eased off by Monday. Oh have you had any neuropathy in fingers or toes, I've felt a bit, when you hold cup of tea fingers feel more sensative!? 

    I recon bed is best place to be today, it grotty out there and cold, 

    Keep warm, love and hugs, hope your cold is better soon xxx