Hi Mich, 

Sorry you've been struggling, it is hard some days, and I to get that low morbid phase, I think we're so run down it can't be helped, but I cick myself and get back onto the posative train, but it is hard this chemo. 

I have my bloods done Friday morning and there back by Friday afternoon, then I'm in Monday for chemo, I'm having what I call my big chemo this Monday, carbo and paxo, I find the weekly paxo not to bad, I have stopped eating fruit as I found that really upset my system, but everyone reacts differently apparently, my weak area in bowel so that's what it hits, I know after Mondays chemo I will go down 8n the first week, feel really horrid, moap and be very emotional but by second week I'm feeling better and able to get out and about. I haven't joined to any clubs, yours sounds great, it's nice to meet people who have been here and have posative stories to tell. We are similar in that it's grade 3 in lymphs and we don't know what surgery we're having, I will have a scan after my last chemo, oncologist said, then the surgion looks at scans and I imagion they all get together and decide what's best, as I get nearer I am becoming more nurvouse, I've not had major surgery before, then I will have radiotherapy.

When do you start Pax /carbo Mich?  I do try and follow Rozzes advice about sugar, day before chemo, no sugar day of and day after. My taste buds are rubbish, nothing tastes like it should, I find chewing gum helps with tin taste in mouth. And I try and drink 2lt a day to keep it flushing out.

My last big chemo is on the 30th December all being well, and I have two paxo after that so chemo will finish on 13 Jan so I can see the light at the end of the tunnel at least  

Love and hugs

Hey Davia,

How was the big chemo today?  I've got mine tomorrow, first one! Thanks, hope I'll be ok on these drugs.  How you doing Sue, feeling any better?

I've been quite fortunate my taste buds haven't changed and not put of food.  I'm also eating healthly although still have a sweet tooth! I was meant to make a soup today for tomorrow but helped a friend ice xmas biscuits instead, priorities haha!

I'll be going every Tuesday now with my bloods moved to a Saturday morning, so there is enough gap between the dates. 

Anyways, had better head off as got to be up early.

Hope you all doing ok ladies.

Big hugs

xxx

Hi Ladies,

Good luck today Mich, I hope everything goes smoothly. Davia, how are you coping with the weekly Taxol? Claire, any news on your new treatment plan? Roz, keep on getting stronger and enjoy life to the full.

I'm having my next Taxol on Friday and my last one on 27th if all goes to plan. My hair is starting to grow back very slowly. It's still thin and not very attractive but the bald patches are covered with thin whispy hair. I'm very emotional on Taxol and find it hard at times to be positive. I keep thinking I can feel a lump in my other breast but hopefully I'm just imagining it. I've also had a nasty rash on my body which is apparently a known side effect. 

Keep in touch Ladies, we've come a long way and it's nice to hear how you're all getting on. Hopefully we will all get the 'all clear' around the same time. 

Lots of love to you all,

Sue xx

Hi Mich, good luck today, hope it all goes well, over half way now. Yeah. iced biscuits sound great, I've been watching kirstys Christmas crafter and they were doing them on there, I'm gonna try the boiled sweet melrd in middle of ginger biscuits Glad your taste buds haven't been effected, my mouth just wants to tast tin but I find chewing gum helps, I found fruit was great but can't eat that as the taxol has as I've said effected lower end  

Hope your OK on the carbo/taxol, let us know how your doing

Hi Sue, weekly taxol is OK,  although I've noticed an accumulative effect in that the first few were great and then I noticed on my last weekly taxol that it took longer to get energy back, and to top it all they had to postpone this weeks big chemo as my nutrapines came back 1.5 borderline and I am feeling a bit under weather so oncologist said best not go ahead, I'm gutted as it means my finish date goes forward I was really down yesterday because of it, but better safe than sorry. I also know how you feel with emotions, I'm sure we all have bad days when being posative is just hard, I've had many so your not alone, and also the thoughts of, is that ache something, or can I feel a lump in other armpit, last time I had consolation with my oncologist, I broke down and said, I think it's in other arm now, she was so lovely, she examined me and said no there's nothing there and that everyone feels like this when there getting to end of chemo, it's normal, what ever normal is nowadays lol Glad to hear your hair is growing back, it is very slow growth but at least its growth, mine is still growing very slowly, I'd say a mm a week

Yes like Sue says, keep strong ladies, it's not easy but we will get there ️

Hi Davia,

I'm sorry your treatment didn't go ahead as planned, do you you have an end date yet? It's always touch and go if I have my treatment as the last couple of times my liver readings were way out. It's scarry stuff we are all going through, we are totally in the hands of the Oncologist. 

Let us know how you got on today Mich.

Love to you all,

Sue xx

Hi Sue, 

Thanks, my end date is 20th Jan, fingers crossed, it's so frustrating when that date keeps moving, back, but can't be helped.

Xxxxx

Hey ladies,

Hows things?  Tuesday wasn't too bad, was there quite a while though about 5 hours and i didn't go for the cold cap this time.  I wasn't feel too great in the morn for some reason and couldn't stomach it.  I'm doing ok since Tuesday, most feel drunk and that my body doesn't belong to me, err if that makes sense.  I'm so glad no nausea and sickness, was worried about that.  Still constipated though lol!

I ventured out the house today, went up the road to the shops, was in major slo mo and holding on to clothes rails but good to get out.  Weird being so slow as I'm the one always rushing around everywhere.

I'm up early tomorrow morn for my pre assesment, fingers crossed.  My treatment has also been extended a bit as they have cancelled the combo on the 31st Dec so will have that on the 08th Jan.  So just paxo on xmas eve to deal with then a 2 week break. So I'll be finishing by the end of February.

Hows everying going on your side ladies?

Big hugs all around

xxx

Hi Ladies.

Thank you Mich for mentioning your thread.

I'm Linda and I was diagnosed with Stage 2 Grade 3 TNBC (invasive breast cancer) on Nov 8th. 

Luckily I have no lymph node involvement, I am having 6 rounds of FEC-T and am having my 1st one tomorrow. I am wanting to get it started but I am also very nervous about it all, a right mix of emotions tonight but I guess this is normal as its facing the unknown.

Its strange because I have a lovely supportive family and friends all around me yet sometimes I feel I am so alone as its me going through it.

Linda x

Hi Mich, Well done for getting out and walking, Im normally the one who is told to slow down when walking anywhere so having to slow down is hard and I never took naps in the day, but need them now,

I'm the opposite of constipated lol I've had to stop eating melon, my favourite fruit in fact I've cut fruit out altogether and that's helped, maybe try melon, hope you get moving soon lol 

I've got my combo on Monday, not looking forward to that, oh my oncologist has decided to give me two white cell boosting injections a week, I asked why there not given on this regime and its because we're having paxol weekly and there's no time to bring bloods back to normal before next dose, but my white cells have not picked up, they have been a problem all through chemo, I will inject  Wednesday & Thursday, but Dr was pleased I'm not enimic, apparently that's common to, I was angry with my body, I felt it was weak and feeble even though I have always eaten healthy and was out most nights ringing church bells, ( a hobby I miss as can't ring with picc line in) , but you never know how your body is going to react, Wednesday I had to go A&E as my heart was beating really fast and missing a beat, I got there and my heart rate was 150 pm,tacacardia, they did bloods, put me on introvenouse antibiotics and did two ECGs heart calmed down and the cause is ANXIETY, joy, I've never suffered from anxiety it's gross but I'm glad it's not my heart,

Hope your pree assessment goes well and your able to have  Tuesdays paxo, your doing so well, getting out walking, at least we can see the light at the end of chemo tunnel, keep well xxx ️