Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Hi Sue

Really sorry to hear that taxol is hitting you hard, i have my paxataxil weekly, third of the dose, they were going to do fortnightly but as I had bad time with epirubicin they decided weekly would be best, I have not found it to bad, it makes me tired like it all does and I need a nap in afternoon and it can give me upset bowel but I'm coping with it, every third week I have taxol and carboplatin, that knocks me back for first week and then I start to come back up, I am extremely emotional on that, anything will start me off, I think because we're so run down it's hard to keep posative when you feel crap, and it is a scary road we're all on, I was told to let the tears flow as the're the release, we wouldn't be human if it didn't scare us or make us feel very emotional sometimes, it's as I've said before a massive roller coaster, but we will get there and I thank rozza for telling us about her cousins posative story and how she is living normal life after two years in clear,

I know you most probably do drink loads but it really helps, I do try for 2 liters a day

Well really hope your feeling a bit better soon, sending hugs xxx

Hey ladies,

How you doing?  Sorry for the delay, I've been struggling a bit too.  Think its hit me now all this lark we are going through.  It's taken me longer to recover from my last EC, thought i was doing ok about 4 days after the chemo and then wham, i felt crap.  I struggled with pains in my body, migraines and headaches and just being low and morbid, which isn't like me.  Dont think the weather helped as it was raining every day and I just couldn't get past this brick wall.  Didn't like it at all, dont like feeling blue.

I started to feel better this weekend and have been out and about walking. So glad I have got over my morbid stage.  I went to see the oncologist today and they are happy with my progress and will have another scan end of Dec or early Jan.  I'm really not sure about my opp yet, guess they will discuss with me once chemo is finished.  I'm still waiting for my BRCA result which oncologist has chased, hope i get it soon.

I'm back at the hospital bright n early tomorrow morn for my pre-assessment and then chemo on Tuesday.  Although apparently my dates are too close together for weekly chemo, as my bloods wont be accurate so i need to change my treatment dates.  Hopefully the will reconfirm that with me tomorrow.  Davia did you have the same with your weekly, where your blood tests and chemo have to be further apart?

Tonight i went to a local group, called Bosom Pals.  They meet up once a month and was my second visit.  We had nibbles and i got to wear my xmas jumper, seeing as though i have missed out on all the work parties.  The team are going to rotterdam next week, lucky buggers!  Anyways, was lovely to see them all again, the group has been going for 25 years.  I'm the only one still going through chemo, actually think they quite surprised i'm going now but happy to have me there. A few of the ladies went through this in the early 90's so all a bit different now.  I'm known as the triple negative girl, great haha!  There is one lady there that was tnbc too, 15 years ago now and she was 34 when diagnosed.  She is all finished with her treatment, quite different from what we have had, different drugs and a different port thing directly into her chest, portacath I think.  She did have a tough time and was i'll with each dose, so glad I'm doing better than that.

Do you ladies have any groups in your area?  If so would you join them?

Funny you should mention Rozza's cousin Davia, i think about that too when i'm feeling down, as i know its all in my lymph nodes an i had big buggers!  I can fight this.

How you doing Claire?  Hope its all going ok for you on the other side of the water.  Let us know what your treatment plans are.

Hugs all around ladies.

xx

Hi Mich, 

Sorry you've been struggling, it is hard some days, and I to get that low morbid phase, I think we're so run down it can't be helped, but I cick myself and get back onto the posative train, but it is hard this chemo. 

I have my bloods done Friday morning and there back by Friday afternoon, then I'm in Monday for chemo, I'm having what I call my big chemo this Monday, carbo and paxo, I find the weekly paxo not to bad, I have stopped eating fruit as I found that really upset my system, but everyone reacts differently apparently, my weak area in bowel so that's what it hits, I know after Mondays chemo I will go down 8n the first week, feel really horrid, moap and be very emotional but by second week I'm feeling better and able to get out and about. I haven't joined to any clubs, yours sounds great, it's nice to meet people who have been here and have posative stories to tell. We are similar in that it's grade 3 in lymphs and we don't know what surgery we're having, I will have a scan after my last chemo, oncologist said, then the surgion looks at scans and I imagion they all get together and decide what's best, as I get nearer I am becoming more nurvouse, I've not had major surgery before, then I will have radiotherapy.

When do you start Pax /carbo Mich?  I do try and follow Rozzes advice about sugar, day before chemo, no sugar day of and day after. My taste buds are rubbish, nothing tastes like it should, I find chewing gum helps with tin taste in mouth. And I try and drink 2lt a day to keep it flushing out.

My last big chemo is on the 30th December all being well, and I have two paxo after that so chemo will finish on 13 Jan so I can see the light at the end of the tunnel at least  

Love and hugs

Hey Davia,

How was the big chemo today?  I've got mine tomorrow, first one! Thanks, hope I'll be ok on these drugs.  How you doing Sue, feeling any better?

I've been quite fortunate my taste buds haven't changed and not put of food.  I'm also eating healthly although still have a sweet tooth! I was meant to make a soup today for tomorrow but helped a friend ice xmas biscuits instead, priorities haha!

I'll be going every Tuesday now with my bloods moved to a Saturday morning, so there is enough gap between the dates. 

Anyways, had better head off as got to be up early.

Hope you all doing ok ladies.

Big hugs

xxx

Hi Ladies,

Good luck today Mich, I hope everything goes smoothly. Davia, how are you coping with the weekly Taxol? Claire, any news on your new treatment plan? Roz, keep on getting stronger and enjoy life to the full.

I'm having my next Taxol on Friday and my last one on 27th if all goes to plan. My hair is starting to grow back very slowly. It's still thin and not very attractive but the bald patches are covered with thin whispy hair. I'm very emotional on Taxol and find it hard at times to be positive. I keep thinking I can feel a lump in my other breast but hopefully I'm just imagining it. I've also had a nasty rash on my body which is apparently a known side effect. 

Keep in touch Ladies, we've come a long way and it's nice to hear how you're all getting on. Hopefully we will all get the 'all clear' around the same time. 

Lots of love to you all,

Sue xx

Hi Mich, good luck today, hope it all goes well, over half way now. Yeah. iced biscuits sound great, I've been watching kirstys Christmas crafter and they were doing them on there, I'm gonna try the boiled sweet melrd in middle of ginger biscuits Glad your taste buds haven't been effected, my mouth just wants to tast tin but I find chewing gum helps, I found fruit was great but can't eat that as the taxol has as I've said effected lower end  

Hope your OK on the carbo/taxol, let us know how your doing

Hi Sue, weekly taxol is OK,  although I've noticed an accumulative effect in that the first few were great and then I noticed on my last weekly taxol that it took longer to get energy back, and to top it all they had to postpone this weeks big chemo as my nutrapines came back 1.5 borderline and I am feeling a bit under weather so oncologist said best not go ahead, I'm gutted as it means my finish date goes forward I was really down yesterday because of it, but better safe than sorry. I also know how you feel with emotions, I'm sure we all have bad days when being posative is just hard, I've had many so your not alone, and also the thoughts of, is that ache something, or can I feel a lump in other armpit, last time I had consolation with my oncologist, I broke down and said, I think it's in other arm now, she was so lovely, she examined me and said no there's nothing there and that everyone feels like this when there getting to end of chemo, it's normal, what ever normal is nowadays lol Glad to hear your hair is growing back, it is very slow growth but at least its growth, mine is still growing very slowly, I'd say a mm a week

Yes like Sue says, keep strong ladies, it's not easy but we will get there ️

Hi Davia,

I'm sorry your treatment didn't go ahead as planned, do you you have an end date yet? It's always touch and go if I have my treatment as the last couple of times my liver readings were way out. It's scarry stuff we are all going through, we are totally in the hands of the Oncologist. 

Let us know how you got on today Mich.

Love to you all,

Sue xx

Hi Sue, 

Thanks, my end date is 20th Jan, fingers crossed, it's so frustrating when that date keeps moving, back, but can't be helped.

Xxxxx

Hey ladies,

Hows things?  Tuesday wasn't too bad, was there quite a while though about 5 hours and i didn't go for the cold cap this time.  I wasn't feel too great in the morn for some reason and couldn't stomach it.  I'm doing ok since Tuesday, most feel drunk and that my body doesn't belong to me, err if that makes sense.  I'm so glad no nausea and sickness, was worried about that.  Still constipated though lol!

I ventured out the house today, went up the road to the shops, was in major slo mo and holding on to clothes rails but good to get out.  Weird being so slow as I'm the one always rushing around everywhere.

I'm up early tomorrow morn for my pre assesment, fingers crossed.  My treatment has also been extended a bit as they have cancelled the combo on the 31st Dec so will have that on the 08th Jan.  So just paxo on xmas eve to deal with then a 2 week break. So I'll be finishing by the end of February.

Hows everying going on your side ladies?

Big hugs all around

xxx

Hi Ladies.

Thank you Mich for mentioning your thread.

I'm Linda and I was diagnosed with Stage 2 Grade 3 TNBC (invasive breast cancer) on Nov 8th. 

Luckily I have no lymph node involvement, I am having 6 rounds of FEC-T and am having my 1st one tomorrow. I am wanting to get it started but I am also very nervous about it all, a right mix of emotions tonight but I guess this is normal as its facing the unknown.

Its strange because I have a lovely supportive family and friends all around me yet sometimes I feel I am so alone as its me going through it.

Linda x

Hi Ladies.

Thank you Mich for mentioning your thread.

I'm Linda and I was diagnosed with Stage 2 Grade 3 TNBC (invasive breast cancer) on Nov 8th. 

Luckily I have no lymph node involvement, I am having 6 rounds of FEC-T and am having my 1st one tomorrow. I am wanting to get it started but I am also very nervous about it all, a right mix of emotions tonight but I guess this is normal as its facing the unknown.

Its strange because I have a lovely supportive family and friends all around me yet sometimes I feel I am so alone as its me going through it.

Linda x

Hi Lindyluu 

Yes it is very scary, I keep telling myself, it's been tried and tested many times and the oncologist and team really look after you, I to had mixed emotions on my first infusion, you really want to start it but like you say it's scary going into the unknown, but it's doable,

Wish you all the best for tomorrow, take it in little steps you'll get there, let us know how it goes xx

Hi Davia

I think its because i'm focused on the side effects if i'm honest even though my husband keeps teling me not to lol

I'm sure i'll be fine once i'm up and running, i'll let you know how I get on.

Linda x