Wow 3 hours is a long time, my paxo was always an hour.  The meds they gave me before always made me so sleepy 3 hrs would have been quite good for a long nap :)

Had my last paxo Tuesday. Don't know if you ladies have been following what's been going on in Hong Kong but I was really quite worried I wouldn't be able to get to the clinic but all ok in the end.

Heart mri next week before starting the adriamycin combo the following week which I'm quite worried about.

Hope everyone is ok.

x

Hi. Ladies,

Sorry if you get this twice but I was in the middle of typing and my message disappeared.

Mich, my Taxol is 2 weekly and a high dose. There was a lady having weekly Taxol and she seemed to be in and out. I don't have the cold cap until it's ready as an extra 2 1/2 hours on top of the 3 is too much for me also they faff around once it's ready and don't start the chemo straight away. You need to do what's best for you.

Claire, I have been watching all abou Hong Kong on the news, it looks horrendous and was wondering if you were affected in any way. I haven't heard of your next chemo but I'm sure it won't be as bad as you fear.

I hope everyone has a fantastic weekend, weather permitting.

Love and hugs,

Sue xx

Hey ladies,

I'm glad you are ok Clare and got to your treatment.  Yeah all very scary whats going on there, its been happening for quite a few months now!

I have my last EC dose on Tuesday. You'll be fine, just remember to take your anti sickness meds.  I struggled the first time but much better now they upped my pre treatment meds.  I now take anti sickness meds for the next few days after treament, even when i dont feel too nauseous as it keeps at bay.  The nurse also advised to eat regulary and small amounts and not to get hungry.  Mistake i made the first dose,  i didn't eat while having the treatment and then only ate much later in the eve and got violently sick. I do feel like i've had a heavy night for a few days so mostly just sleep.  I had the heart mri before i started and then blood tests before each treatment. 

Thanks Sue, yeah I'll see what i do on Tuesday, might set it up myself lol! As you say it takes a while and they have quite a bit to sort out with drugs etc 

Hope you are all well and had a good weekend.  

xx

I'll be thinking of you today Mich, let me know how you get on.

Hugs,

Sue xx

Aww thanks Sue, just finished just thawing out now. Last Ec yay! 

Sunshine here, let's hope its lasts.

Hope you are well today. Fingers crossed for me later. 

Xx

Hi Ladies, hope its all going well, Mitch half way Mark, are you  paxo and carbo next? I am on number 2 paxo carbo, had mine yesterday, it takes a bit longer to infuse but you can have a good doze and catch up on ipad, i have noticed my hair is definitely growing back, very slow but there is growth and my nails are growing to, your right about the sickness tablets, I set my alarm and take them before I feel sick for the first week, then maybe drop the early 6am one off and gradually come off the others only having one if I feel sick, I've found the paxo carbo different to the EC it doesn't nock you out as much but it has upset my tummy in the lower region, I had to have a week off to allow it to heal before my second dose of Pax and Carb and the oncologist reduced my dose 20% so I'm really hoping it behaves this time. I also have paxo once a week, it's a pain having to go but apparently it's better tolerated, but some people have no issues at all with it, we're all different, my weakest part is my bowel so thats most probably why it hit there hard.

Keep well and rest when you need to, it helps, I over did it on Saturday and boy did I know Sunday, really tearful, 

Love to you all xxx

Hi Davia,

I had my first Paxo chemo Friday and I'm not tolerating it as well as EC. It's been really harsh on my stomach and I'm exhausted. I'm hoping it's just a glip. 

It's reassuring to know that your hair is slowly growing back. My hair is really thin now and looks awful.

Take good care,

Sue xx

Hi sue

Really hope your better soon, it was really harsh on me to, the oncologist reduced it, so hopefully it's kinder this time, maybe they can do the same for your next dose, I had a week off to so it could heal. Are you having pax weekly? It's a pain going into the hospital all the time but maybe better.

I'm also trying to limit acid food like fruit to see if that helps, fingers crossed it easier this time. Wishing your turned the corner soon and feeling better xxxxxx

Hi Sue, 

I have paxo weekly and carbo three weekly, I have two carbo left so six weeks all going well, after I've finished chemo I have surgery, then radio therapy and fingers crossed that will be it.

I try and take it in small steps as if I look at the whole picture It can be daunting or overwhelming, it's a massive roller-coaster, horrible but doing the job, we will get through this, drink loads it flushes it out, I try to drink min 2 litres a day, hope your feeling better soon xxx