Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Glad your feeling better Clair. 

It was the white cell boosting injections, I had a dip in my white cells on my first paxo carbo so couldn't have my second dose of paxo, but the cells picked up quite quickly so maybe that's why no need for injections like you say. 

Sue, the look good feel good day sounds great, will have to book myself a space on there, and very good advice on the false lashes, you pick up so many bits of info along the way don't you, I was also told not to wear under arm deodorant with aluminium in it, have any of you heard or been told this?

Well second day after paxo and feeling OK so fingers crossed  

Have a good day ladies 

Xxx

Sue that sounds great. I'm so lazy with make up.

Davia so interesting you were told that about deodorant. I've heard it a lot but usually from alternative therapists, never from someone in the medical field. I switched deodorants about 4 weeks ago and the one I use is very good.

x

Clair what one do you use? I find mine OK but it could do better. Xx

I use earth conscious which I order from babipur. It's not cheap but I suspect none of them are.

x

Thanks Claire I'll have a look and give it a go xx

Hey Sue,

Ah that workshop sounds great, just what you needed.  I have the details so will call so book on the next one tomorrow ;)

Glad you are doing better Claire, hopefully more than toast today.  I'm going through a smoothie phase at the moment!

I need to get different deodorant too, since starting treatment I've been too freaked out to wear roll on lol!  I see there are quite a few options on the market , I'll have a look at the babipur. 

No aches and pains today yay!

Hope you all well.

xx

Hey Sue, 

How you doing? Is it your taxol today? 

I'm OK, just a bit of pain in my right arm. Had my pre assessment this morning so all ready for Tuesday. 

Hope you are all keeping well ladies. 

Xx

Hi Mich

Yes I'm having Taxol now. It takes 3 hours and I was petrified but all ok so far.

How's your hair? I now wear a wig to go out. I've lost about 50% but my hair is very thin and bald on the crown. I'm still having the cold cap with the hope that I don't lose any more.

I hope everyone is well. Stay strong ladies

Love to you all,

Sue xx

Hey Sue, 

Gosh that is a while and still the hour and half afterwards with cap? 

Still sporting the bald patch but can hide with headband. Cold cap was rather painful last time, I'm goimg to ask them to put it one when it's starting up, the 30bmin time then at least it's gradual rather than ice cream brain freeze. Do you have it on earlier or only when ready?

Are u having weekly taxol? Not sure if I should continue as weekly will be a err headache lol! 

Hope you don't have any strange side effects and can relax this weekend 

Xx

Wow 3 hours is a long time, my paxo was always an hour.  The meds they gave me before always made me so sleepy 3 hrs would have been quite good for a long nap :)

Had my last paxo Tuesday. Don't know if you ladies have been following what's been going on in Hong Kong but I was really quite worried I wouldn't be able to get to the clinic but all ok in the end.

Heart mri next week before starting the adriamycin combo the following week which I'm quite worried about.

Hope everyone is ok.

x

Wow 3 hours is a long time, my paxo was always an hour.  The meds they gave me before always made me so sleepy 3 hrs would have been quite good for a long nap :)

Had my last paxo Tuesday. Don't know if you ladies have been following what's been going on in Hong Kong but I was really quite worried I wouldn't be able to get to the clinic but all ok in the end.

Heart mri next week before starting the adriamycin combo the following week which I'm quite worried about.

Hope everyone is ok.

x